As most of you know HDguy61 was my guy. He passed away peacefully in December after being transfusion dependent for 6 months. Dealing with a chronic illness of my own (stage 4 cirrhosis), I relate very much to the need to find joy even in the midst of uncertainty. We were very good at that together.
We spent a lot of time on this board searching for answers and options and enjoyed all the QOL posts. So, this is my stab at one. Enjoy me on this journey if you like. Stay tuned… It’s going to be a nice little ride.