When I read some bios, so many have advanced diagnosis when first tested, is this because ment don't recognise the symptoms or are there some who are asymptomatic until it's gone too far.What's the latest dictates say about early detection/screening/educating us males etc.
In my case regular psa tests due to family history picked mine up, thankfully early
I had a friend diagnosed at the same time as me six years ago. I was testing because my dad had recently died from it. He had symptoms because it had spread throughout his body. I am doing well he is in Hospice care
I never had a symptom caused by the cancer itself. Just PSA increases and then a lot of symptoms caused by the treatments.
I had no symptoms. Bone met was seen in MRI ordered for a different purpose. Subsequent diagnostics confirmed Stage 4 PCa.
I had no symptoms. Fatigue was big, and I thought it was work-related. 60+ hour work weeks & travel. Went to the doctor did have a low PSA. It moved to 12. Has never been higher than that. I am currently stage 4 metastatic to my lungs. I was diagnosed at 62. I'm 68 now. Ironically at age 50 my ex-wife found a lump on my chest. I thought it was from weightlifting. It turned out to be stage 2 breast cancer. I had a radical mastectomy, lymph node removal and followed procedures just like any other woman would for follow up treatment. Ironically to that I had no idea that I had breast cancer.
Because of my cancers, my 36-year-old son is already testing for PC. Recommended for him by my Oncologists
It's probably not a good idea to generalize. I had no symptoms that seemed like anything serious was wrong (such as pain), my PSA was below 4, but I still had aggressive cancer. I know two men, now dead, who were diagnosed very late. One hadn't been going to any doctor and one had a doctor who falsely thought that because of his age, he didn't need to be tested.
Get your annual PSA test!!!
I had pain in my groin after sex. Difficulty urinating. My family doctor gave me antibiotics for enlarged prostate my PSA was 95. I finally seen a urologist and got a biopsy and scans. Was diagnosed Gleason 9 with multiple bone metastasis on ribs and pelvic bone at 52 years old. I had family history of prostate cancer and still didn’t understand the the disease. I thought I was too young yet to get it. My grandfather and father had been diagnosed in their late sixties and both caught it early.
Hi there islandboy, can I ask you if your oncologist ended up giving you a statistical life expectancy. Only asking because at this original stage my father was given 5 years but we find it odd since so many people live way longer with this despite spread.. just wondering if we should be getting a second opinion because we want to get the best odds rather than just being written off
no one can say how much time you have left , with any degree of certainty. When I was diagnosed, my first offer care was hospice …. the thinking being I had a couple weeks - few weeks at best. not many guys have as many mets spread to as many places as I do . Here it is 49 months later and I’m like a Timex watch. Takes a lick’in, but keeps on ticking. Feels like I still have a few miles in the tank too. There are generalities that are used …. But just a few years ago, time projected was often just 18-26 months…..nowadays 5-7 years or better is fairly common. Many on the group in that range or better. New procedures and drugs are coming at a brisk rate these days too.
Just say’in
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Thanks Kaliber, you seem very positive despite what you are going through. I hope you live a long life and hoping new procedures and drugs come out quick for anyone dealing with this. Cancer is a real bitch. Excuse my language but it is just so upsetting how it will hit someone so young and with so much life in them. The positive posts formthis community is really helping me get through this and feel like we are not alone. I know i myself am not fighting the cancer but it feels like I am when it is one of my parents dealing with it. This community helping me be strong and positive for my father
thank you…. I know the “ dark “ places that Debbie Downer can take any of us. I put a lot of effort into not going there at all. Though all of us croakers ( stage 4 unfortunates ) are faced with our inevitable demise, still guys are living longer with the newer treatments…. and meds can keep us comfortable….. could be a whole lot worse . 😁😁😁
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They don’t like to give you a life expectancy. My wife wanted one and he said 4 years was the median time and 8 years was the maximum number using statistics. He said it was difficult to measure as we all know every ones cancer is different and we respond differently to different treatments. I am currently at 5 and 1/2 years and just became castrate resistant 6 months ago.
Hi Islandboy, thank you so much for the reply . I am sorry to ehar that you have become castrate resistant. What are your next steps? I am researching so much and am currently trying to find if there is any new ways to treat a patient when it becomes castrate resistant
I hope you find success and live many more years my friend. If i come across anything that may help I will send it to you
sorry FormulaRob …. The post was meant for GP63 …. You probably figured that out …. Lupron fog yayahahahaya
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Nothing major that even made me think anything was wrong but took awhile to get a checkup. Finally went in for a wellness check and elected yes to PSA test. PSA was 156, G7 T3N1M0.
I had no obvious symptoms other than moderate urination difficulties. However, my former idiot urologist ran a series of PSA tests over the course of a few years, and either never looked at the results or neglected to tell me that three of the tests were above normal. I switched providers and my primary care doctor found my PSA was very elevated. So thanks to my previous doctor, I have metastatic cancer.
Unfortunately too many men, for whatever reason, fail to be screened. They get diagnosed only when symptoms appear and the disease is advanced. BTW, my PSA was only 2.7 when I was diagnosed at age 66. The dreaded DRE (fickle finger) turned up an anomaly and got me sent for a biopsy. Wish we could find a way to educate men to the need to get screened. That foolish Preventive Services Task Force didn't do men any favors with the ridiculous policy they came out with years ago.
Absolutely - on that report. I recently read a report on the number of men only now being diagnosed with advanced PCa probably due to that report and their GPs believing it and not checking the box for a PSA test with an annual physical. That and the reluctance of GPs to stick their finger up your butt..
I had some frequent urination issues. My PSA was 3.5, if it wasn't for the finger test, it would have been too late. I hope it was caught in time, G9 local mets.
my husband had low PSA and no symptoms. Was caught rather by chance on a routine colonoscopy where the Dr did a DRE (not sure why he did, i understand its not really required or normally done..but thank God he did. Looking back my husband was tired a lot, but he works like a crazy person in a stressful job, so we always just thought it was that...any maybe it was. no way to know if the fatigue was in anyway related to PC.
I am 75, diagnosed at 74. I had no idea there was a problem but I had been urinating a little slower during the preceding few years. At my annual physicals, my doctor had skipped the DRE’s for about two or three years but he was prescribing a PSA test. One afternoon, I got a phone call from him to inform me that my PSA had increased .8 in the past year. He said that was a “high velocity” increase and that it was up to me whether to see a urologist or not. My PSA was 4.6. He said, “ You are 74 and it would take about 18 years or so for this possible cancer to kill you.” Well, right or wrong, I decided to go to a urologist. He did the DRE and determined I needed an MRI. We did that, then I had the biopsy and found that I was Gleason 8, t3b advanced, and the cancer had spread to the outside of the prostate. Further tests showed no visible metastasis, however, there was a unknown nodule in my right lung. My pulmonologist sent me for a CT scan of the lungs. In the meantime, I had started ADT with Trelstar, and I had started and finished 45 IMRT’s. I just had my last lung CT and the nodule has all but disappeared. It is my assumption that the nodule was PC related and the ADT knocked it down. Planning on living through 100.
I had normal PSA numbers for several years, with a 1.74 in 2019, but then in 2020 my PSA was 38, and further testing showed i had 'numerous and extensive' mets in pelvis, back, one femur, sternum, ribs. the only symptom I had, and it was only for about 2 months before going in for my yearly physical, was failure to maintain a firm erection. early testing wouldn't have caught mine.
My Dad had PCa so I checked every year (PSA and DRE). I was told if under 4 you are ok, DRE was always ok. So I thought I was ok.
In 2020 my PSA was 3.6 and DRE clear, I was DX'd BPH in 2018 so urinary stuff was an issue but always thought it was BPH.
Skipped 2021 physical due to COVID. (lesson learned).
04/10/22 - I knew I needed to be check., Went to my urologist and checked PSA was 6.9 (DRE was clear supposedly). My Urologist thought it was an infection/prostatitis/BPH. When through the process, that lead to a MRI and Biopsy in September (took 5 months).
9/15/22 - DX'd PCa G9 (4+5)
9/28/22 - PSMA Pet scan clear. Spent month of Sept/Oct deciding surgery/radiation
week of 10/17 - Met with several different RO's / Urologist to discuss treatments
10/27 - Decided on SBRT + 18 months ADT for localized high risk (G9). Started ADT
11/29 - Will start my treatments this coming Tuesday
NMN supplement and PC
Weight Lifting/ Bodybuilding with PC
How Many Types of PC ?
“We currently know of no way of curing metastatic PC.“
NVA PC Doctors
