Lymphoma & PC

[StayingOptimistic]

I have 6 LN Mets in the pelvic and abdomen areas. Is this categorized as “ lymphoma” or PC in the LN is called something else?

I Just trying to understand the medical terminology when I am searching or reading.

Thanks

[tango65]

Lymph node metastases.

[StayingOptimistic in reply to tango65]

So, these are two different types of cancers? Thanks a lot, Tango.

[tango65 in reply to StayingOptimistic]

Yes, some info about lymphoma

training.seer.cancer.gov/ly...

[Tall_Allen]

Not lymphoma. Lymphoma is a primary cancer in a lymph node or nodes. You have prostate cancer that has metastasized to your lymph nodes. Completely different diseases.

[StayingOptimistic in reply to Tall_Allen]

Thank you, sir.

[doc1947g]

My Lymphoma is a disease in the bone marrow.

[RonnyBaby]

I got my Dx n 2017 and it was called 'node positive' - indicating that there was local spread outside the 'prostate envelope'.

It might also be referred to as a form of localized spread (N1).

The addition of 'M1' category would classify it as metastatic (regional / regional+).

It is still PCa, with that terminology (N1 / M1), unless you have been diagnosed with a different form of cancer. I also had a high Gleason score (9).

You may want to consult your MO to get the staging identified correctly.

Wishing you well on your journey ....

[treedown in reply to RonnyBaby]

I had suspected LN involvement, MO said I was regional but RO said N1M0.

[RonnyBaby in reply to treedown]

That makes you 'node positive'.

I was surprised when my MO told me that statistically, a smaller percentage of men get that as an initial diagnosis. Of course, I knew nothing when I consider the bigger picture.

I've had a BCR, so I'm due for a bunch of scans to see where I'm at - but I did enjoy an ADT holiday for about 2 years. I feel fine and played a lot of golf this summer - felt like my old self for awhile.

You'll learn to read up on the stuff that is more relevant to your particular circumstances. Knowing what N1/M0 means, is a key first step.

The long(er) term prognosis could be much worse - at least I hope so 4 U ....

IF / When we progress, there should be better options for us. My original Dx was in May of 2017 - today my PSA is probably around 5.0 (last test was 3.2 in Aug) so I'm going to go back to some form of ADT and perhaps more radiation IF they can find the source of rising PSA.

I still have my 'gland' because RP was not an option - I was too far gone, so RT and ADT was the choice that I made. I'm still castrate sensitive. I responded well to treatment, but had a rough ride with the ADT.

[treedown in reply to RonnyBaby]

Don't understand "The long(er) term prognosis could be much worse - at least I hope so 4 U ...." but sounds like we had a similar initial dx correct? I got 80 gy in 44 treatments to my prostate and 28 to my lymph nodes pelvic and para-aortic I believe. My PSA hit <0.1 before the end of radiation and about 6 months from start of Lupron. I am not having a hard time on ADT (lucky me) but lost about 45 pounds si ce getting my PSA if 156 after a random test. I am very active and have in fact increased my cycling this year and if distancw and speed mean a increase in fitness that to. Just hoping for the best and really learning to enjoy and love life in the present. I do hope I make it to a ADT holiday at the 2 year mark in 10/21 as planned to see what the return of T does for my cycling. Yesterday road 31 miles through the mountains with beautiful views of Mt Baker and the Sisters and a downhill contest against a friend 24 years my Jr. We hit 41 miles per hour, we hoo. Of course the descents on the gravel roads were slower but equally exhilarating and for nearly 10 miles.

[RonnyBaby in reply to treedown]

We do have some things in common - My initial PSA was over 300. Similar also in terms of radiation. You're in much better shape that I ever was during the disease - I'm 68 - here's the 'good news' - bone scans - negative - no metastasis (yet) - the long(er) term prognosis - most likely to survive beyond 5 years - probably 7 + - could go past 10 IF the progression can be managed. That assumes nothing else is an issue that could be fatal in that time frame.

Some who post within already had 'mets' - more advanced and looking at more complex treatment options.

Quality of life could become an issue due to long term effects of ADT - that could be a BIG negative.

Of course, it is impossible to predict how most will respond to treatment(s). There are so many exceptions and possible mutations - forget the crystal ball - live the best way you can and take care of yourself and others. You have reasons to be optimistic, in spite of the obvious Dx - no one celebrates cancer ..... expect that within a few years, some medical advances will increase the likelihood of longer survival stats for many of us ......

[treedown in reply to RonnyBaby]

All good points thanks so much for taking the time. I am younger at 57 and have been active since about 2000. Prior to that I was not aking very good care of myself and putting all my energy into making money ney. There's much to look forward to and fear about the future. We are all better for the discussions here and for those who have traveled these roads before us. I hope the future gives us all something worth the wait.

[j-o-h-n in reply to treedown]

We have something in common, you cycle Mt. Baker..... and I visit Mt. Bakery often....

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 10/04/2020 6:26 PM DST