We know that you suffer with us, differently, but with us. Your love and care is both needed and greatly appreciated - even when we are miserable and donβt show it.
Just like John Denver sang, βYou fill up our sensesβ¦β
We see your waiting
- Waiting on us to finish appointments, treatments and infusions
- Waiting with us on results of tests and scans
- Waiting and dreading the news that the disease has progressed
- Just donβt wait to live
We hear your mourning
- Mourning for the life we used to have
- Mourning for the person we used to be
- Mourning for your own losses, stress and fatigue
- Just donβt let the mourning devour us before the cancer does
We feel your loving
- Loving and holding us
- Loving us with your tenderness and compassion
- Loving us despite how we have changed
- Remember to also keep loving yourselves
We smell you, recognizing you
- Recognizing your presence - You smell of love, home, comfort and life
- Recognizing your absence and the smell of something missing, a fragrance, your hair, your breath, your coffee
- Recognizing you (and ourselves) in the memories rekindled by aromas
- Please try to remember what we smelled like to you when we were healthy
We taste you in our dreaming
- Dreaming of tasting your kisses
- Dreaming of being awake and alive to taste you more
- Dreaming of the taste of your naughty bits
- Lets fill our senses with each other
From those of us fortunate enough to have you to support and love us, Thank You.
Written by
Carlosbach
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Very nice first thing in the morning. I dont dare show it to Barbara. She will cry all morning. It bums her out now just when she seeβs me reading HU. She knows there is no cure. I explain, we are just extending life now, knowing that Cure or extended Remission are coming. In the meantime we live (with maybe an hour of research in the morning and before our afternoon napβ€οΈ
Thanks Spyder. I understand, my wife Tammy goes through times of stubborn denial and she hates the worrds palliative care. We supported both of her parents as they passed from cancer and it is hard to think she will go through that again.
Thanks Leo. I understand and feel the same way. Tammy and I have 43 years together. Sometimes its been great, sometimes a struggle, but I wouldn't want anyone else with me for this journey.
Wow, you've been at this for a while. I'm glad my tribute touched you, I hope you feel appreciated. I'd be lost without my wife's love, support and friendship.
Thanks Spence. I find if I obsess about the cancer, then it becomes my life. So I'm working on focusing on the people and things that give being alive meaning and value.
Carlosbach, as a wife reading your verses, I so appreciate you. I do the reading to keep up with research, the searching for the appropriate specialists, keep up with the meds, records, meals, scheduling, literally all of the worrying (because my husband is so laid back), My husband is 11 years older, has some cognitive impairment, and ended up with CLL secondary to radiation for PCa. I want him with me and I will do absolutely anything to make that happen. Some of the spouses just about crater with you guys under the stress. I know that many husbands do the same when their spouse has health issues. It's called love and commitment.
Thank you more for being such an awesome support and caregiver to your husband. I'm glad that in some small way my words recognized your love, commitment and devotion.
So many do not have someone to support them in the things that they are unable to do for themselves. Many of the rest of us are conditioned not to express their appreciation, even though they are extremely grateful in their hearts. As I thought about my wife's journey through my illness, I felt compelled to put my thoughts into words.
As a wife of 47 years - thank you for these kind words. Its a terribly tough ride for all you men but nice to see this reflection on the contribution of partners Xx
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