"If I had pet /pmsa scan then surely this give good overall insight into where and how cancer is. But also good insight into haw cancer was before and after treatments???"
The purpose of a PET scan or any other diagnostic test is not to gain "insight." The purpose is to guide treatment decisions, You already know what is necessary to guide your treatment,
But as individual going forward, chemo, radio, therapy and all other treatments can actually and factually have done nothing to aid life, in lots cases may do opposite.
Surely pmsa test clearly show benifits or not before and after?
Would you say no value in this way of thinking?
Gives clearer picture of whats happened, happening, and whats worked best???
If you're talking about monitoring progression, you will be monitored with blood tests (PSA and ALP) and conventional imaging. If your treatment makes no difference on those tests, or if they deteriorate, the treatment will change. If it does make a difference, treatment will continue. Any way you look at it, the test is only useful if it drives a treatment decision.
Conventional imaging must be used because all the data we have as to what works and what doesn't is based on that.
Your cancer is oligometastatic, a possible treatment is to treat the prostate and the whole pelvis with radiation, plus systemic therapy. If radiation is decided, then a PSMA PET/CT should be useful to guide the radiation therapy (radiation plan).
PSMA/PET scan ordered... so far all that has shown up are bones, but PSA skyrocketing, up 375% this month (damn steep rise). MO wants to get and see scan and then possibly send me on to specialist in Seatle...
Had my first PSMA about a month ago. Cant compare to previous scans to well of course and mine didnt have a SUV values reported. 3 years into this and the PSMA scan looks like all those bone mets I had 3 years ago are still there/active. PSA was about 12 at time of PSMA scan.
If approved/accepted I'll be in a trial and have a traditional bone scan right away. Will be interesting to compare to my past bone scans and to what the PSMA report stated.
no, you actually do not have enough information without the PSMA PET scan to guide optimal treatment. So you should insist on it. Your PSA of 0.96 is sufficient for it to be diagnostic in showing if there are any other metastasis sites especially beyond the pelvis. If there is just the one, or less than four total, then you could benefit from metastasis directed therapy, SBRT targeted to the met(s) and perhaps whole pelvis lymph node fields. Go consult with your RO again. Perhaps he will order the PSMA PET scan.
A PSMA scan would confirm M1 mets seen on MRI/CT (or not), and would give higher confidence level of whether there is LN involvement (or not), especially if your PSA is over 0.7, and the PIRAD score was < 4.
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