PMSA PET SCAN , pet scan? Ive asked... - Advanced Prostate...

Advanced Prostate Cancer

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PMSA PET SCAN , pet scan? Ive asked on cologist and said it would not be of benifit???

Mrtroxely profile image
9 Replies

my diagnosis was T3N0M1 gleason 4+5=9

I asked what test they did to see the nodes were N0??? Oncologist said It was the mri of my pelvice.

So I asked about the spread else where and if I could have a scan? Answer was there would be no benifit to this....

So after reading, watching, listening,. It sums up get as much info as possible, apply what is relevant to ourselves.

Ive not had a pet scan (mri to pelvice area, bone scan and prostate biopsy)

If I had pet /pmsa scan then surely this give good overall insight into where and how cancer is.

But also good insight into haw cancer was before and after treatments???

Im thinking I should be strongly asking and pushing for this?

Any thoughts would be appreciated

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Mrtroxely profile image
Mrtroxely
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9 Replies
Tall_Allen profile image
Tall_Allen

"If I had pet /pmsa scan then surely this give good overall insight into where and how cancer is. But also good insight into haw cancer was before and after treatments???"

The purpose of a PET scan or any other diagnostic test is not to gain "insight." The purpose is to guide treatment decisions, You already know what is necessary to guide your treatment,

Mrtroxely profile image
Mrtroxely in reply to Tall_Allen

thats good way looking at it.

Thats for treatment.

But as individual going forward, chemo, radio, therapy and all other treatments can actually and factually have done nothing to aid life, in lots cases may do opposite.

Surely pmsa test clearly show benifits or not before and after?

Would you say no value in this way of thinking?

Gives clearer picture of whats happened, happening, and whats worked best???

Tall_Allen profile image
Tall_Allen in reply to Mrtroxely

If you're talking about monitoring progression, you will be monitored with blood tests (PSA and ALP) and conventional imaging. If your treatment makes no difference on those tests, or if they deteriorate, the treatment will change. If it does make a difference, treatment will continue. Any way you look at it, the test is only useful if it drives a treatment decision.

Conventional imaging must be used because all the data we have as to what works and what doesn't is based on that.

Mrtroxely profile image
Mrtroxely in reply to Tall_Allen

thank you.

Thats clear info.

👍

tango65 profile image
tango65

Your cancer is oligometastatic, a possible treatment is to treat the prostate and the whole pelvis with radiation, plus systemic therapy. If radiation is decided, then a PSMA PET/CT should be useful to guide the radiation therapy (radiation plan).

Shooter1 profile image
Shooter1

PSMA/PET scan ordered... so far all that has shown up are bones, but PSA skyrocketing, up 375% this month (damn steep rise). MO wants to get and see scan and then possibly send me on to specialist in Seatle...

CAMPSOUPS profile image
CAMPSOUPS in reply to Shooter1

Was that your first PSMA scan?

Had my first PSMA about a month ago. Cant compare to previous scans to well of course and mine didnt have a SUV values reported. 3 years into this and the PSMA scan looks like all those bone mets I had 3 years ago are still there/active. PSA was about 12 at time of PSMA scan.

If approved/accepted I'll be in a trial and have a traditional bone scan right away. Will be interesting to compare to my past bone scans and to what the PSMA report stated.

Hope all goes well with treatment.

I spent half my childhood in Seattle.

MateoBeach profile image
MateoBeach

no, you actually do not have enough information without the PSMA PET scan to guide optimal treatment. So you should insist on it. Your PSA of 0.96 is sufficient for it to be diagnostic in showing if there are any other metastasis sites especially beyond the pelvis. If there is just the one, or less than four total, then you could benefit from metastasis directed therapy, SBRT targeted to the met(s) and perhaps whole pelvis lymph node fields. Go consult with your RO again. Perhaps he will order the PSMA PET scan.

timotur profile image
timotur

A PSMA scan would confirm M1 mets seen on MRI/CT (or not), and would give higher confidence level of whether there is LN involvement (or not), especially if your PSA is over 0.7, and the PIRAD score was < 4.

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