Restarting xtandi: Headaches just about... - Advanced Prostate...

Advanced Prostate Cancer

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Restarting xtandi

Echotango51 profile image
10 Replies

Headaches just about gone, Dr said start back with 2 pills. I’m thinking about 1 pill first to see if it has any effects on blood pressure then 2 pills maybe a week later. Will 1 pill do any good. Any thoughts will be appreciated.

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Echotango51 profile image
Echotango51
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10 Replies
Benkaymel profile image
Benkaymel

I'm not a doctor but I plan to start with 1 pill for at least a week then ramp gradually. From what I've read on HU, 2 pills seems to be effective so maybe stick at that for a while and monitor readings.

in reply to Benkaymel

My husband will be starting this drug soon, Thank you, this info is so helpful!

Echotango51 profile image
Echotango51 in reply to Benkaymel

Thank you Benkaymel, that was what I’m thinking about doing.

Rondief profile image
Rondief

I can’t speak to the headaches but I was on the 4x40mg and it kicked my a$$. We stopped it completely for 10 days and restarted at the 2x40 and I have had no issues. You’re trying to control the growth of the cancer so I would say go as strong as you can but still have quality of life.

Echotango51 profile image
Echotango51 in reply to Rondief

Thank you

Echotango51 profile image
Echotango51 in reply to Rondief

I was starting my third bottle, 2 months with no problem, then the headaches and then my blood pressure when up.

Rondief profile image
Rondief in reply to Echotango51

I’ve been on Extandi since the first week of June. Towards the end of June I started experiencing fatigue, loss of appetite, dizziness and nausea. I lost 15 pounds and blacked out twice, both prompted the change. We made the adjustment to 2x40mg around July 15, I have had no problems since. Hope this helps.

Echotango51 profile image
Echotango51 in reply to Rondief

Thank you Rondief, this really helps. Did you have headaches and did your blood pressure go up.

Rondief profile image
Rondief in reply to Echotango51

No headaches and I already am on meds for high blood pressure so it’s hard to say.

Echotango51 profile image
Echotango51 in reply to Rondief

Thank you

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