Gleason 5 + 5 (10): Dx Oct 202... - Advanced Prostate...

Advanced Prostate Cancer

22,292 members27,989 posts

Gleason 5 + 5 (10)

Pop1959 profile image
7 Replies

Dx Oct 2021 Gleason 5 + 5 (10)PSMA clear of Mets. Completed 39 sessions Rad late Feb. Am told I any in very small number of men who have felt major pain in prostate from day one, unfortunately having this pain ment Urologist was convinced I had prostatitis and treated this for 6 months, I have had prostatitis in the past and new pain was different , lol but what do we know. Now on ADT since Oct for two years. Last psa was 0.1. Fingers crossed and on we go.

Written by
Pop1959 profile image
Pop1959
To view profiles and participate in discussions please or .
Read more about...
7 Replies
billd50 profile image
billd50

Yes, on we go! Stay positive and active. I was diagnosed 6 1/2 years ago at age 65 with Gleason scores of 5x9s and 1x10. Not good. After ADT for 2 years, 81 units of radiation and 6 x 3wk cycles of taxotere, I'm doing fine. PSA leveled off at about .9 and I'm tracking it with PSA tests every 6 weeks. If it starts moving up, I'll get a PET/PSMA and deal with it. There are options now that didn't exist 6 years ago.

Pop1959 profile image
Pop1959 in reply tobilld50

Thank you, yes lot more options around today, I seam to be a bit of a odd case here, not a lot of 10s caught this early. PSMA scans also not a standard here so was lucky with that. My new motto...I'm taking the p*ss out of life before life takes the p*ss out of me 😆. Can I ask how the radiation side effects are going?

billd50 profile image
billd50 in reply toPop1959

I had minimal side effects of the IMRT radiation. 81 gray given over 45sessions. I did have a little proctitis about 6-9 months after the completion

of radiation. A little bleeding every once in a while in my stool. They fixed

it when I had a routine colonoscopy (spot weld).

Pop1959 profile image
Pop1959 in reply tobilld50

Yes having a bit of Proctitis, wife filled me up with bone marrow coligin soups before and during 79/39 sessions. Big problem is hot flashes and insomnia, hot sweats can last up to 30 minutes at a time ie in one flash, only getting an average of 4 hours sleep does this get any better, I'm 9 months into ADT. Thank you for you time with this.

billd50 profile image
billd50 in reply toPop1959

Yes I did suffer from Insomnia due to the ADT. I could only sleep in 2 hrperiods. Hot flashes were mild for me.

garyjp9 profile image
garyjp9 in reply toPop1959

Hi Pop1959, I know several men whose hot flashes have been helped tremendously by the EMBR Wave from EMBR labs. Mine are not too bad, and I have never used it, but every guy I know who has used it says it has helped. For what it's worth.

Pop1959 profile image
Pop1959 in reply togaryjp9

Thank you.

Not what you're looking for?

You may also like...

Gleason Score 5+5

My gleason score is 5+5 =10. I watched Dr.Scholtz's talk who mentioned 5+5 case is rare and I...
Formosan profile image

Gleason Score 10.

New study below [1]. A GS=10 is rare, but that's no consolation to the men who receive the...
pjoshea13 profile image

New here, diagnosed age 52, Gleason 10

Regular yearly psa test since 2006 because of family history of PC. Psa had always been near 1.0....
Glsn10 profile image

Androgen Deprivation Therapy & Gleason 8 Versus Gleason 9-10.

New study below. The Gleason scoring system has been around for fifty years & ADT since before I...
pjoshea13 profile image

Latent Gleason Number 5.

New Japanese study. I don't know what percentage of U.S. men are diagnosed with Gleason score 4+5,...
pjoshea13 profile image

Moderation team

Bethishere profile image
BethishereAdministrator
Number6 profile image
Number6Administrator
Darryl profile image
DarrylPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.