Why I feel alive...still: So far after... - Advanced Prostate...

Advanced Prostate Cancer

22,993 membersβ€’28,547 posts

Why I feel alive...still

Hailwood profile image
Hailwood
β€’32 Replies

So far after the RP, the scans, the bloodwork, the Lupron shots and the Erleada, I'm one lucky man in that the PSA is undetectable, I appear to only have mild symptoms of the usual side effects and so without any real external identification, life goes on with full time work and readying for a vacation in the UK. Some days are good, and then there some days that just almost hit perfection.

"If the day could be imagined, it simply couldn't have been put in better order.

Firstly, a light clean of the large air cooled motorcycle that isn't a Ducati. With air-cooling comes an absence of radiator and assorted pipes and a lot of engine heat in the summer days, with the sensation of lightly roasted legs, but in a really good way.

Its not a deep, deep clean, but enough to get rid of the dirt and allow the light patina to shine through and remind me how 70,000 kms and 6 years ago that it first looked brand new, but unloved and dusty in the corner of a large BMW/Yamaha dealer. It needed rescuing to join the other bikes, but it become the favorite because of its urgency when ridden hard and its elemental simplicity in turning a spanner to most of the tasks.

The day was almost perfect for this type of engine, around 12C and warm enough for those of us who ride during the dark, wet, cold and dreary winters and who start to shed layers as the daily temperature rises to double figures. Like the sensation of this disease, somehow the good days are so appreciated almost as if that is the meaning of the dark times, just to make the light more appreciated. With motorcycles, its called climatization and if you don't try the colder weather, don't blame anyone as you sweat in your Gore-Tex and thermal liners at 20C.

If every day is summer, where is the difference and/or the challenge? Today was so beautiful and surprising because of the contrast to the recent saturation of Pacific or as its called "Wet Coast" rainfall.

It then, on this day, became perfect. Dry roads, a clean bike with excellent tires and a car pulled over by two patrol vehicles, that meant clear unpoliced roads to the Fraser Valley. Tires could grip almost to the edges, slipping only as my right hand became more exuberant, warm and comforting, yet riveting and exciting at the same time.

There are perfect days, some just slightly more perfect than others and I will miss them hugely. I'll miss them as this insidious crab digs in its claws to the furthest parts of my body, as yet showing others no external authentication, allowing only glimpses of its advances through rising blood markers, increased pain, changed medications and ruined expectations".

I'm hugely into Carpe Diem and Propero Protinam.

Cheers to everyone, I hope that you all find some perfect days.

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Hailwood profile image
Hailwood
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32 Replies
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mrscruffy profile image
mrscruffy

Nothing but. I find my perfect days on the boat

Tonwantonga profile image
Tonwantonga

I'm still looking for some perfect days. Every day is a Monday here. my caretakers added Bupropion to my daily chemical stew, maybe that will help. I still haven't figured out how to deal with the lost T in my brain yet.

there's a 1918 Dodge Brothers Touring car in my shed, with the cylinder head off, waiting for three more valve guides to be replaced. i think getting out on the back roads of Ohio on a sunny morning in Lily (she got her name the day she followed me home) would get me closer to a perfect day, but lately I have been spending all my wrenching time on the numerous Jeeps around here. I hope to get back to her soon.

β€’ in reply toTonwantonga

Hey Tonwantonga! I d love to see a pic of that Lily if you could do so? Thanks

Tonwantonga profile image
Tonwantongaβ€’ in reply to

well, for some reason I am having trouble finding any recent pictures of Lily - but i did find one from the day i got to drive her for the first time. i had rebuilt the engine and mechanicals, and i decided to let a brake man put the linings on the brake shoes and bands - and they sat on his counter for a couple weeks. i should have pounded all those rivets in my self. sorry it's a terrible picture - it's a picture of a picture on a different computer. She has her fenders and running boards now, but she was wide open that day. oh yeah, that toad behind the steering wheel (can you call it a 'wheel' if it is only spokes?) is me .

car
Tonwantonga profile image
Tonwantongaβ€’ in reply toTonwantonga

this is a picture of what she COULD look like - someday - but I am torn between leaving the faded paint and rust, or going full restoration.

car
β€’ in reply toTonwantonga

Of hec yah! You look cool driving that . A real touring car ! It looks like a totally different car while topless ! πŸ˜‚πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘

β€’ in reply toTonwantonga

Thanks for showing this . Made my day . My bro has an old Ford that’s looking similar . πŸ€™πŸ½

Carlosbach profile image
Carlosbach

Sounds awesome.

My camp trailer is loaded and hooked up to my tow rig. Heading out for the Oregon coast this afternoon with my grandson. He's now 14 and we have gone camping someplace different each year for his spring break.

Tomorrow, a long bike ride, flying kites on the edge of the surf, some great fish and chips, a fire on the beach, and card games when we finally get back to the trailer. More of the same over the next week.

Awesome to be able to live, even with this disease.

β€’ in reply toCarlosbach

Oh yah! It’ll be the best days for both of you guys! That’s awesome man . Enjoy! πŸ˜ŽπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌ

Carlosbach profile image
Carlosbachβ€’ in reply to

Thanks Scotty. Having a blast, just rolled a 152 bowling, started a day with a long bike ride with my grandson through a herd of elk, now listening to β€œSpirit in the Sky” and β€œLayla” (important to educate the younger generations), and finishing with a cheat day dinner of full on loaded pizza.Take care my friend

β€’ in reply toCarlosbach

Pizza! Bowling! Fun! You’re doing it! Teach him right ! πŸŽ―πŸ‘πŸ‘πŸ‘

j-o-h-n profile image
j-o-h-n

I'll be spending a few days trying to remember what I can't remember..........

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 04/01/2022 7:35 PM DST

SeosamhM profile image
SeosamhMβ€’ in reply toj-o-h-n

Brother, everyone needs a hobby! :)

β€’ in reply toj-o-h-n

What ? Are we talkin bout? 😳

j-o-h-n profile image
j-o-h-n

Funny you mentioned that......cause when remembering what I couldn't remember I remembered I had a hobby......Collecting door knobs......but I can't seem to remember where I stowed them.🀑

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 04/03/2022 6:54 PM DST

Boywonder56 profile image
Boywonder56β€’ in reply toj-o-h-n

Lmao.....is your mattress lumpy.....

j-o-h-n profile image
j-o-h-nβ€’ in reply toBoywonder56

Hallelujah..... that's where they are..... Thank you......

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 04/03/2022 7:53 PM DST

door knobs 1
β€’ in reply toj-o-h-n

Oh hell yah! Your the King of knobs Johnny! I’m not being sarcastic either …. I dig your style my friends . Those things are cool . πŸ˜ŽπŸ‘πŸ‘πŸ‘πŸ‘

dockam profile image
dockamβ€’ in reply toj-o-h-n

Do you collect knockers? 😜

β€’ in reply todockam

Nuttin against knocked ,the female is quite enticing still to me . However , I was more and ass man myself? That’s if my distant memories of mammaries serves me right? 😳😳🦍

j-o-h-n profile image
j-o-h-nβ€’ in reply todockam

Collect them? I actually grow em....... 😜

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 04/07/2022 10:41 PM DST

β€’ in reply toj-o-h-n

How many do you have? I Saw some

Boywonder56 profile image
Boywonder56

I golf when i can...mostly 9...dometimes 18....do some construction consulting...cuz the nest egg aint lasting cuz the wife wont leave the expensuve hell hole that is houston....i can live cheap at our mtn home in n.m....but i cant live without her....the days that are a struggle some how pass.....perfect days with apc....the needle that meters that is a little bent...

j-o-h-n profile image
j-o-h-nβ€’ in reply toBoywonder56

Well If you decide on the New Mexico home.......I got the door knobs....

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 04/03/2022 8:03 PM DST

β€’ in reply toj-o-h-n

You’ve got the best knobs!

Carlosbach profile image
Carlosbachβ€’ in reply to

Just got a call from my wife and she is waiting for my knob to get home Wish I could remember what she wants it for...

β€’ in reply toCarlosbach

Call j-o-h-n ! He’s got a basement full of antique brass knobs ! No bs.. I’ve had no hob knobing since pc . 😩✌️

β€’ in reply toBoywonder56

You’ve got a needle?πŸ˜‚πŸ˜‚πŸ‘πŸΌπŸ‘πŸΌ

Carlosbach profile image
Carlosbachβ€’ in reply to

Pretty much, but I’ve also got 10 flexible digits

β€’ in reply toCarlosbach

I was just pulling your leg Carlos . I tend to laugh at our common foe . Glad you got the digits ! ✌️

Ride on! Hombre! I remember cruising my BmW cruiser across the plains of New Mexico at 80 mph all the way. Purring like a sewing machine. Nothing like it. Freedom baby. Keep rocking ! Yours is an inspiring post . Thank you Sir!

🏍🏍🏍🏍🏍🏍

Scout4answers profile image
Scout4answers

Nice piece

Carpe Diem

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