Recommendation Please

[JolleySprings]

Who is the best Oncologist at MD ANDERSON for Biochemical Recurrence?

Who is the best Oncologist for Biochemical Recurrence at Mayo in Rochester?

Thank you!

[Javelin18]

I've only met with Dr Aparicio at MD Anderson for a consultation on potential drug trials. I liked her willingness to describe details at the high level of my questions. My cancer is aggressive and hasn't responded well to SOC, so we talked about aggressive cancer variants, and the trials she is running.

[Tall_Allen]

You can't go wrong at MD Anderson's Dept of Genitourinary Oncology. Paul Corn is very well known. At Houston Methodist, there is Eleni Efstathiou.

Mayo Rochester doesn't presently have any well-known urologic oncologists. If you live in Minnesota, you are better off with Charles Ryan at the University of Minnesota who is also the President of the Prostate Cancer Foundation.

[skateguy in reply to Tall_Allen]

Hi TA. Do you have an opinion of Dr Eugene Kwon at Mayo Clinic in Rochester?

[Tall_Allen in reply to skateguy]

Yes- very good for genomic testing. Otherwise, not very good. He's not an oncologist but markets himself to patients and is popular for his unsubstantiated views about MDT that tell patients what they want to hear. He would never get away saying those unsubstantiated things to his peers. He is not an out-of-the-box thinker, just a sloppy one, IMO. I believe he is sincere.

[skateguy in reply to Tall_Allen]

Would you like to recommend an oncologist to me? I live in Fredericksburg, Virginia, about 60 miles south of DC. I have seen many oncologist over the last 11years. I have not found one that I felt was able to help me. Most all followed SOC. Just last month I have been told to go to Hospice, but recently came across DR Kwon who gave me hope and start Jevtanna w/ Carboplatinum. Third dose next Thursday. As of January, I’m wheelchair bound do to a tumor compressing on my nerves inside my spinal column. Any thoughts would be appreciated 😊

[Tall_Allen in reply to skateguy]

You could probably get Jevtana+Carboplatin from any of the excellent MOs at Johns Hopkins

[skateguy in reply to Tall_Allen]

I switched for the next dose to JHH with Dr Denmeade. Who do you consider an excellent MO at JHH?

[Tall_Allen in reply to skateguy]

Denmeade is fine.

[Nusch in reply to Tall_Allen]

Sorry, but I know Eugene Kwon, had a long and very good and open personal discussion. He stated none of the above to me.

[Tall_Allen in reply to Nusch]

I'm glad to hear it. Unfortunately, his youtube videos continue to justify his use of MDT, even if he no longer does. The Internet keeps giving erroneous info forever.