New patient.

[samuelachglue1952]

Although just beginning this battle, I am very positive and hopeful.

I am researching and under top notch care. My diagnosis was very tardy.

[Tall_Allen]

Welcome! Where are your metastases and how many are there?

[samuelachglue1952 in reply to Tall_Allen]

Possibly four locations: T2 and pelvic area(3). The prostate received 20 12-minute doses in April. Since then I've received several scans and 2 MRIs. Second Lupron received 6/3/22.

[Tall_Allen in reply to samuelachglue1952]

You should be doing more than Lupron for that:

prostatecancer.news/2017/06...

The latest innovation is triplet therapy:

prostatecancer.news/2021/05...

[samuelachglue1952 in reply to Tall_Allen]

In four days I am scheduled to begin a series of three more radiation treatments for the mets....My psa is VERY low now.

[Tall_Allen in reply to samuelachglue1952]

PSA is not your cancer.

[samuelachglue1952 in reply to Tall_Allen]

I realize it is just my prostate specific antigen reading. I am learning. On 6/3/22 my psa was 0.069 ng/mL. and that made me happy.

[samuelachglue1952 in reply to Tall_Allen]

Yesterday I received radiation treatment to my ribs. That was the first of three as part of on-going therapy. The spine is next.

[Tall_Allen in reply to samuelachglue1952]

Don't be alarmed if you feel pain there for a couple of weeks. That's just an inflammatory response to the radiation. Steroids or NSAIDs can be used for the pain.

[samuelachglue1952 in reply to Tall_Allen]

Your reply was very timely. I was wondering about that. So far the entire staff

has been extraordinary.

[samuelachglue1952 in reply to Tall_Allen]

Just read the two referenced attachments. THANK YOU. My mets are small and targeted for treatment now. I read all your messages.

[j-o-h-n]

Greetings sam,

Would you please be kind enough to tell us your bio. Age? Location? When diagnosed? Treatment(s)? Treatment center(s)? Scores Psa/Gleason? Medications? Doctor's name(s)?

All info is voluntary, but it helps us help you and helps us too. When you respond, copy and paste it in your home page for your use and for other members’ reference.

THANK YOU AND KEEP POSTING!!!

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 02/21/2022 6:52 PM EST

[Shooter1]

Tardy, that's a nice way to say your Drs f#cked up. Mine too. Stage 4, gleason 9/10 at diagnosis... Best of luck to you, I am starting year 5 with my 2nd BCR. Life Is Good, good drs help..

[samuelachglue1952 in reply to Shooter1]

Thank you.

[Hidden in reply to Shooter1]

Drs. F up? 😳

[Shooter1 in reply to Hidden]

Sometimes..... The drs. earlier said " bruised or cracked", my CT scan today showed #7 rib broken and healing without reconnecting... I guess I will have a #7 front rib and #7 rear rib from now on. At least it isn't hurting like it did soon after my fall.

[Hidden in reply to Shooter1]

Last year my nuke scan showed anterior L- 3 nondisplaced rib fracture . I didn’t even know it . Just another random pain . This new scan said it healed . Whoohoo! Bone nutrients and prolia?

[samuelachglue1952 in reply to Hidden]

Had my ribs treated 6/16/22. Spine is next.

[larry_dammit]

Well. Welcome to our club. No one wants to be told they have cancer, but as my oncologist says there’s never been a better time to have cancer 😡. Keep up the fight warrior

[SeosamhM in reply to larry_dammit]

HA! Oh, I remember the first time I was told this - as true as it is, my wife was not amused!

[samuelachglue1952 in reply to larry_dammit]

Thanks, Larry. Every day is precious. We march to our physician's orders.

[cancerfox in reply to larry_dammit]

I can think of a better time. NEVER!

[Pianodude]

Tardy... Sounds familiar. My urologist screwed up big time.

[NickJoy in reply to Pianodude]

And my husband's neurologist!

[samuelachglue1952 in reply to Pianodude]

My physician assured me that prostate C moves very slowly (Nothing of concern). Finally, after years of requesting proper testing, they realized my situation after the first test...(biopsy).

[addicted2cycling in reply to samuelachglue1952]

samuelachglue1952 wrote --- "My physician assured me that prostate C moves very slowly (Nothing of concern)... "

Could be YES and Maybe NO. It's Imperative to have a proper biopsy because without that ??? just guessing

[Hidden in reply to samuelachglue1952]

You were tardy, I was early , to this party at 53. Some of youngest members are just in their 40’s and have it bad . I feel for those young men the most here . “Moves very slowly “ Yah right! until it tries to kill us! You do you . Good luck!

[samuelachglue1952 in reply to Hidden]

Young patients may have the option of robot-assisted surgery. Not so much for seniors.

[Hidden in reply to samuelachglue1952]

I was beyond surgery .

[samuelachglue1952 in reply to Hidden]

Me too.

[strummer in reply to Pianodude]

my husband's GP and two Urologists missed it and ignored complaints of symptoms and no PSA from any of them. awful

[Hidden in reply to Pianodude]

Mine also! 😖

[Grumpyswife]

Welcome. The more information you can give us in your profile on here, the more help you will receive.

Are you 69 years old? My husband was diagnosed at 57 and it was quite a kick in the arse for he who never went to the doctor. He was only a 3+4 and avoided ADT for 14 years. There are lots of high gleason men on here alive after many years with a good quality of life.

I did not know that elderly were ineligible for robot assisted surgery. Seems like they might benefit the most. My guy was 57 when he had his robotic prostate removal and it wasn't covered by insurance as it was deemed not medically necessary.

[samuelachglue1952 in reply to Grumpyswife]

I'm 83. Dx was 12/21. Luckily, I have the very best care. (now.) I truly relish the data and input from Health Unlocked participants. But I have trouble deciphering the abbreviations on this site. I'm learning. I am optimistic.

❤️

[Hidden in reply to samuelachglue1952]

Sam you are amazing! Your great attitude is in your favor! Welcome aboard. Scott

[samuelachglue1952 in reply to Hidden]

On 11/11/22, my urologist reported my PSA is at 0.008.

I am due for my sixth and final Xofigo infusion in two weeks.

What a journey. Eleven months.

Thanksgiving.

[Lrv44221]

You.re attitude is wonderful and that is so important. Did you read my post called BELIEF SHITS BIOLOGY FROM NOV 13🦊🦊

[samuelachglue1952 in reply to Lrv44221]

I copied your STOP FEEDING THE BEAST article and will follow its regimen. Most of it we know, BUT we forget. Old habits are hard to break.

[Lrv44221]

Yes Change is Hard. But I am glad of your attitude. Belief shifts Biology.

So many of the people in here can and do have advice and suggestions.🌹👍🍏