I was diagnosed in December as de novo 1met on the sacrum and my prostate biopsy was messed up as they started the adt to early so couldn’t get the Gleason Reading
I’m low volume from ct scan and the MDT are keen to go early with docetaxal alongside the adt
I’m trying to get a gauge of life expectancy I’ve seen as short as 3 but 5 is possible or even more potentially
Can anyone enlighten me as to what is a realistic life span to expect given the best drug administration
Thank you in advance
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Farn
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Toss those life expectancy tables. They are outdated. Newer treatment protocols are extending life by many many years. Focus on the here and now....leave tomorrow to God.
I would not guess at your life expectancy and any doctor who does is an idiot. Everyone responds differently to treatments and everyones cancer is different.
My first surgeon told me I had 5 to 10 years to live. That was 29 years ago.
Hi I think the inference was that the adt changes the way the biopsy’s present themselves under the microscope was the way it was explained to me I may have misunderstood
I was told the same. That is why I had to wait with the beginning of my adt. It looks that it was a good decision to wait as we may delay the castration resistance this way. I still don't have any bone pain.
Yes that's what happens. The same thing happened to me. The radiation oncologist I saw offered to give me an ADT injection (Firmagon) straight away, probably because he noted the panic in our eyes at the shock diagnosis I had received just 3 days earlier. So when I had a biopsy about 3 days after the injection, they couldn't give a Gleason Score. The comment was simply, "the cells are exploding due to the Firmagon treatment and it's not possible to give a Gleason score". Frankly, it's never worried me that I didn't get one. It's now almost 4 years later and I'm (fingers crossed) still doing fine. Hope you do too.
I was told the same 3 to 5 year thing. They all must have heard that in medical school. Plus I guess that is the best way to rush you into a treatment decision. It sure scared me.
If I were you, I wouldn't worry about life expectancy. Now a days there are so many treatment options that even the most aggressive cancer can be treated very effectively. From the information provided, your cancer may not be aggressive.
"People" say and ask all kinds of useless things on public forums.
If you have metastases you should not be under the care of a urologist - you should be seeing a medical oncologist. If he's competent, he will not biopsy.
Hey Brother, don't sweat the stats, old data said a #stageivpca had a 28% chance of a 5 year survival. I'm in my 7th year now.Do chemo and ADT now, that will give you the best chances to kill as many as possible when you are younger and better able to deal with side effects.
Btw, had 15 Taxotere chemos in 2015, 6 more on a year ago, just had 4th of 6 planned Cabazitaxel sessions yesterday.
Do cardio and weight lifting to offset side effects of meds.
Go lean protein, plant based, & whole grain diet. Low animal fat. No bangers and mash or steak/kidney pie😊
Look up intermittent fasting for health and before chemo.
Welcome Farn ! You’ll get proper answers here. How old are you ? Do you have any co morbidities? Docs can state stats .. you can do better than they say . Your attitude demeanor and lifestyle can help much if positive. Throw out bad habits . Live in the moment from here out. My uro told me 36 months max. I’ve doubled that now . No PSA or pc six yrs .. Good luck Sir!
Love yourself Farn , APC is a bitch of a man depleting disease . When I was first diagnosed at 53 ,I said to myself “ I deserve it” somehow I’ve survived? Pc for me was hereditary promoted by a self imposed stress to earn$$$$ ..
I was given by my uro, a year and half, I promptly got a second opinion, I was given a year by another uro , in 2017. Last I checked Im still here. I asked the same question, unfortunately.
Just my unprofessional opinion, but from what I've seen/read/heard, at 64 your chances of dying from prostate cancer are slimmer than a man who is diagnosed at a much younger age. It appears that young men usually have more aggressive cases. I was 60 when Dx'd and my urologist gave me 'at least' five years...will be 79 in 2-1/2 months and still feeling great! Hope this gives you some encouragement?
When you say ADT, do you mean pills like abiraterone and shots? You might want to read the Peace 1 study. Sounds like that is the treatment you are receiving. Ps it sounds like you are de novo low volume oligometastatic if you want to read other studies but Peace is the newest. And had good results with your treatment.
ADT is the 3 monthly injection in stomachReference Peace 1 the oncologist is not recommending the Zytiga stating that’s for high volume people so just ADT+ Docetaxal
We had 3 opinions. Abi was what was recommended. And what many experts are saying, even after the Peace study. In any case , best of care to everyone here!
I had BCF eight years after my RP. Using 'Oestrogel' (transdermal estradiol gel...tE2) as my only form of ADT (and taking only an 80 mg aspirn) for almost 4 years, my PSA is undetectable. My only side effect is little boobies which is a small price to pay to keep the PCa at bay. Gave up on doctors 4-1/2 years ago! Hope the next time a doctor is required is just to 'pronounce me dead'!
Hi Farn welcome to the club nobody wants to join. We all know that diagnosis feeling of when will I die. You are better off considering how will you live. I'm almost four years into the fight and still here. Best advice I can give you is find the best medical team and follow the instructions they give you,stay active,and most of all stay positive. Never give up Never surrender Leo
Expect to live for decades with optimal self care and the best treatments. Then live each year like it could be your last: a rich full life replete with love happiness and adventures.
Nuttin like taking a bike out for a spin in the country . Right up to the three sisters . I can see ya! I was a bit devastated because my bud Tom morey walked off in October ,check out oct obit in Washington post . They called him the Ben Franklin of surfing . We probably will be in San Jose with Marcia next winter Jan feb . . Happy trails compadre! Hasta Luego! 🏍🏜
I hate when I hear Docs making life predictions. How long did you think you were going to live before cancer? We don't know! Live and enjoy. My Dr gave me me 1 year to live. I told him there was no way I could pay his bill in 1 year. So he gave me 2 years. Nyuk nyuk nyuk
I had a biopsy Gleason 3+ 3 in 2009 . I did not get surgery or radiation at that time . Avodart cut my PSA from 8 to 4 . I thought I had dodged a bullet when my PSA stayed below 10 for ten years. 2 . 5 years ago I stopped Avodart for a month . My PSA started to rise and got up to 61 earlier this year when I had a PSMA PET and a bone scan both showing no visible metastases. Johns Hopkins said they would not treat me without a new biopsy. MSK , where I’m in the middle of 26 radiation treatments currently ( with Orgovyx and Zytiga with prednisone ) , said no biopsy necessary for my localized non -metastatic high risk ( due to PSA 61) PCa .
I'll play devils' advocate here and speculate that why we often hear 2 to 5 years (or less than that)is because until our treatment starts it is not known how we will respond. I think many of us asked the question before our treatment started.
As we see here it can be unfair as a brother may have PCa that runs rampant and within less than a year has gone thru multiple treatments.
Others of us respond well and glide along responding well with the treatments given us.
I have thought about this before in my case and there I was in front of the Urologist and then the Oncologist with PSA 1621, mets from skull to shins.
My treatment other than Lupron had not begun. What should they have said when it wasn't even known yet how I would respond to chemo and adt.
I guess they could say we just don't know.
But being pressed they said 2 years but 5 is very possible and if you make it to 5 then making it to 10 becomes possible.
After a few of my chemo infusions and the good response I was having I made a comment in jest to my Oncologist and she smiled and said you have many,many,many years ahead of you. I think she felt better giving an optimistic outlook once we knew I was responding well to treatment.
But again we just don't know what course our individual cancer will take.
And neither do our dr.'s. We just have to stay positive. Live well everyday we are still here.
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