Quick recap: Urologist wanted to start Lupron without even re-running labs or an MRI, when we refused the Urologist was pissed and sent us back to MO.
Today we had a consult w/Dr. Nick Vogelzang (after a 3T MRI) and he completely agreed with that decision as there are no Mets and the tumor in the prostate had only increased by 1mm since MRI 3yrs ago. Dr. V has said it is in Chuck's best interest and QOL to continue with active surveillance. We were also told that the Urologist actually called MO and told him that "if he didn't treat Chuck w/Lupron asap, he will die and and you will be committing medical malpractice"... I am dumbfounded at the gaull of this Urologist, all because little, tiny me (95lbs 💪) called him out and reminded him that he works for us and we had zero interest in improving his batting average... I really wish I had taken a picture of his face after I said that. I have to say that Dr. V's assurance that I/we made the right call.
So, to all of you care takers, spouses and loved ones, DON'T be intimidated by the white coat, do your homework, read, ask questions and above all stand in the gap for your loved one. If it doesn't make sense keep pushing until it does. Wishing all of you warriors strength and love 💕
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Saydeebugz
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My senior partner in business was the smartest most successful man I know. I asked him what is the best advise he can give people that will lead to success and good health. He said, “ Always be willing to question your experts. It doesn’t matter if they are doctors, lawyers, engineers , architects or whatever. The good ones will respect you. The ones that are offended snd imply you’re too stupid to question them, run as fast as you can the other way.” I can not tell you how many times that advise has served me well in all walks of life.
Beyond impacting QoL, also consider that Lupron (with that cancer, at that age) might not even extend life. It is even possible it could help shorten it.
One might think that this urologist cared only that his patient did not die of the PC, as if dying by some OTHER cause would be perfectly fine.
Excellent statement, you know your body better than anyone else. If it doesn’t sound right don’t do it. Get a good oncologist,quit messing wit the urologist. Keep up the fight warrior 🙏🙏
Everytime I hear a Warrior is under the care of Dr. V I send thanks to GOD!! This Dr has been in my life for over 10years, he's treated my mother, husband and now my family friend, I've been the caretaker and advocate for all of them, and I would've gone off the rails without him! If I can ever be of any help to you (even if it's just a friendly ear) I'm here, feel free to reach out 💜
Nal, I do have to say Thank You to you as well! I have read EVERYTHING you've posted here. Your advice, thoughts and information is and has been invaluable to me in my journey of care/advocacy. I have also drawn immeasurable strength from your postings, many times a "Nal" posting/story has brought me desperately needed "calm" to keep fighting. So THANK YOU sir, you are a true blessing as well 💜
He was so livid and taken aback at the fact that a tiny little woman (I'm 5', 95lb) was bold enough to question him/his advice, that all he could get out was "you need to go back to MO, I can't treat someone who won't listen to me"... It WAS a beautiful thing and I have NEVER felt so confident in a choice!!
This story is testament to the fact that once you have been diagnosed (and possibly have RP) by a urologist your primary cancer care should be from an MO.
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