Vacation never meant this much before.

[Scotch7239]

I am currently off the Lupron train again. Second time. I am guessing this will be good for close to a year before my doctor freaks out again. With PSA doubling at a rate of 5-6 weeks he gets nervous. I however do not fear it anymore. The Lupron works really well to put my cells to sleep. Takes about two 3 month doses and we are back to the crappy feeling the goes with the slew of side effects from it. The hood news is that 6 years ago the doctor thought I would progress rapidly and be losing a unbeatable fight. Not true and I think the way things are going I will be around for a long time. I have lost so many family and friends to worse issues than I have. I have been blessed with the one illness that can be fought. Don't get me wrong this sucks really bad some times but the alternative is far worse.

[Tall_Allen]

Why are you taking Lupron in the first place? Recurrent? Newly diagnosed metastatic? Non-metastatic? Castration-resistant?

[lawerence in reply to Tall_Allen]

recurring after bicalutamide then lupron then zytiga with prednisone. psa down to .20 from 1.87

[Tall_Allen in reply to lawerence]

Not sure why you're replying for Scotch7239?

[lawerence in reply to Tall_Allen]

sorry, wasnt my intention

[Scotch7239 in reply to Tall_Allen]

Sorry. I had persistent PSA following surgery. 9.4 post surgery.

[Tall_Allen in reply to Scotch7239]

No salvage radiation? No Axumin PET scan?

[Scotch7239 in reply to Tall_Allen]

Nope. I tried to get a auximin scan this last time but insurance wouldn't cover it so went with the bone scan and typical useless ct. Only suspect stuff found but nothing confirmed. I was back on Lupron before we could do any thing else.

[Blueslover]

Love your attitude!Hugh

[Maidtuck]

Thanks for posting that—it’s exactly how I feel about intermittent therapy. I watch as my husband’s fatiguegets worse and cognitive changes occur when on Xtandi

but so far it takes the psa down and then he’s able to get off of it for a few months. Readjustment going back on is

tough but worth those months of feeling better. Good luck to you and enjoy your “vacation”!

[Horse12888]

Insofar as you're able to take vacations, you may consider switching to relugolix, an oral LHRH antagonist that enables rapid T recovery when stopped.

[V10fanatic in reply to Horse12888]

Is Medicare paying for this now?

[JPnSD in reply to V10fanatic]

No more than any other drug in that tier.

[Break60]

Have u considered switching to estradiol patches? Much easier on ur body.

[JPnSD in reply to Break60]

It would be nice to see a list of approved ADT drugs and their profile of effects, administration methods, Medicare costs, approval level, contraindications...etc. Why have I not seen this to date? Lazy clinicians?

[Boywonder56]

Slantje'