Still Waiting

[JWPMP]

Last Tuesday:

So it's official...after an MRI, two planning scans, an "advanced imaging" scan, they cannot do EBRT to the prostate due to all the hardware.

So the local RO has passed it back to UCSF. Dr Mohamad will discuss with the board Friday (which was last Friday) about brachytherapy. With the constant bad news I'm afraid they're going to throw in the towel. Don't know how long the ADT can hold down the Fort if the prostate doesn't get put out of commission. And why it took almost 3 months to figure out they couldn't do it, I'll never know. The yes, no, maybe, hurry, wait....frustrating and discouraging.

As of today, Tuesday, no word from UCSF. Now I'm even more afraid they won't do the Brachytherapy. Does it seem unusual to not hear anything yet?

Have they given up on Jim?

Should we go elsewhere?

I don't think I can get him to go to UCLA.

Thanks, Again, for listening.

Paula

[Tall_Allen]

I think the hormone therapy (Lupron+Zytiga) is his principle therapy. With the T4, I doubt that debulking the prostate will have much effect.

[JWPMP in reply to Tall_Allen]

Even though he is oligometastatic? I thought with his low volume mets that it would make a big difference in how long the HT would work.

Really appreciate your time TA.

[Tall_Allen in reply to JWPMP]

I don't think they had many T4's in that trial. It might have an impact, but who knows? Meanwhile, he is getting Lupron+Zytiga.

[JWPMP in reply to Tall_Allen]

Thank you TA. Sounds bleak. The RO at UCSF felt Jim had "many many years, even as much as 10" with all the available treatments and new stuff coming down the pike. Sounds not so promising now.

I'm worried how no treatment is going to effect Jim's view of his condition, i.e. they are giving up because he's "hopeless". That could hurt his "fight" psychologically .

Anyway, no matter.

Appreciate your time and expertise .

[Tall_Allen in reply to JWPMP]

Perhaps I'm not understanding. He is getting treatment, isn't he?

[JWPMP in reply to Tall_Allen]

Yes 4 month Lupron shot

1000mg Abiraterone daily

5mg prednisone daily

calcium supplement & D3

Sorry

thank you

[JWPMP in reply to Tall_Allen]

One more thing...in this forum I've only seen one person that didn't get RT.Am I misunderstanding?

Thank you again

[Tall_Allen in reply to JWPMP]

Many had RP.