Scan swapped again.: Well, I got the... - Advanced Prostate...

Advanced Prostate Cancer

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Scan swapped again.

Shooter1 profile image
8 Replies

Well, I got the regular PET/CT scan canceled and had Axium scan put in it's place. Now that one too is out the window and a NaF18 scan is in it's place. MO seems to think it is a better scan for bone mets. Is this right??

Told to wait till later in the year for F18-DCFPyl. scan to be available on west coast. I told the lab to put me in line for it and they replied that they will be notifying all their scan ordering Physicians when it is available from them.

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Shooter1 profile image
Shooter1
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8 Replies
6357axbz profile image
6357axbz

The Pyl scan is by far the scan of choice now that it’s been FDA approved. It will do the best job of identifying mets. You’ll need a PSA of at least 0.5 for good resolution

Shooter1 profile image
Shooter1 in reply to6357axbz

No problem with PSA of 0.5 or more. Was 0.54 last check up 83% from a month earlier. If it takes them a year to get it out and available and all else remains the same with this steep climb, it will be 760 next June. Hope we can level out the climb and find and fix the problem before them. (The doubling time over the last 6 mo. has been 25 days.)

6357axbz profile image
6357axbz in reply toShooter1

You can probably get a GA68 Pet-PSMA scan at UCLA with little wait. It’s about equally effective as the Pyl scan. Prior to FDA approval they were charging about $2,800. Now that it’s approved insurance may cover it.

in reply toShooter1

That’s pure bs amigo . Please don’t wait a year .with a rising PSA? I was told “ see ya once a year “ if I decided to drop the tak?? There is no way that I’d drop adt then not test for a year. That’s ludicrous. Good luck shooter!

Tall_Allen profile image
Tall_Allen

The NaF has a high risk of false positives because areas of bone remodeling (like arthritis, fractures, and infections) can show up. You can wait for Pylarify or you can get Ga-68-PSMA-11 now at UCLA or UCSF.

Shooter1 profile image
Shooter1 in reply toTall_Allen

Should be a pretty scan then. I've had over30 broken bones in my 71 years.

Tall_Allen profile image
Tall_Allen in reply toShooter1

That'll light up like a Xmas tree and be pretty useless.

Shooter1 profile image
Shooter1 in reply toTall_Allen

It did light up with some small flares from arthritis and wear and tear, but the big spotlight was in the pelvic area where nothing showed before. Just one.... Hope maybe I can zap it into submission.

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