Decided to start LU-177 in June - Advanced Prostate...

Advanced Prostate Cancer

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Decided to start LU-177 in June

bellyhappy profile image
17 Replies

After seeing PSA markers continue to rise from last Oct ( 0.83) till May this year (3.92) and the PSMA scan showing some of the previous cancer spots on the bones and lymph nodes are improving and healing. The not-so-good news is ..some of the previous cancer spots on the bones are starting to grow. The oncologist suggested that I proceed with the LU 177 treatment and not wait any longer. His comments were that if the situation deteriorates like having pain in the bones or spread to other places, then we have to deal with multiple issues.

Had been on Zytiga for the last 8 months...Looks like I am done with Zytiga.

Like to hear from any opinion or thought or have me in your prayers

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bellyhappy
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17 Replies
GP24 profile image
GP24

You can get a Lu177 therapy now. Where do you plan to be treated?

spencoid2 profile image
spencoid2 in reply toGP24

i read it was available somewhere but forget where. UCSF is doing trials. no idea how insurance covers the treatment. I do not qualify for LU177 because my PC is still castrate sensitive ??? I am very interested in hearing of your progress. I have both shrinking and growing mets. PSA not dropping fast but at least not going up? If it does and there is evidence of castrate resistance. LU177 was what I had my hopes on.

Concerned-wife profile image
Concerned-wife in reply tospencoid2

I believe there is a new LU trial with hormone sensitive but you need to be off adt for quite a while.

GP24 profile image
GP24 in reply tospencoid2

In the Netherlands they did a study treating recurring patients, which were hormone-sensitive, with Lu177 therapy.

clincancerres.aacrjournals....

Usually the objective of treating hormone-sensitive patients with Lu177 is to provide a period of ADT-free survival. You may also hope that this will translate into a longer period until castration-resistance occurs, measured from the start of the Lu177 therapy. The therapy will not cure you. However, you may repeat it if you wish.

After my Lu177 therapy two years ago I had no ADT because two PSMA PETs did not show any new lesions. My PSA value is rising but the European guideline says, do not treat the PSA value with ADT in a recurrent situation. So I wait until something shows up with a PSMA PET and want to treat that with SBRT and not with ADT.

bellyhappy profile image
bellyhappy in reply tospencoid2

Will definitely update my progress in my treatment. God bless

bellyhappy profile image
bellyhappy in reply toGP24

I am having my treatment in Singapore.

in reply tobellyhappy

🙏

Tall_Allen profile image
Tall_Allen

Are you able to get Xofigo?

bellyhappy profile image
bellyhappy in reply toTall_Allen

Was told I dont need Xofigo as I have no pain...

in reply tobellyhappy

Thank God for no pain🙏

j-o-h-n profile image
j-o-h-n

We all Hope and PRAY you get into a new LU-177 therapy here in the States and it does wonders to you and your makes your belly happier.....(and of course your med ins foots the bill),,,Trifecta

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 05/22/2021 7:04 PM DST

bellyhappy profile image
bellyhappy in reply toj-o-h-n

Thanks John...I am in Asia...

in reply tobellyhappy

We are pulling for you . Good for you means hope for us all . 🙏

in reply toj-o-h-n

🙏

Spyder54 profile image
Spyder54

Here is to your LU-177 success! 🙏 Show us the way, we are half a step behind you.

in reply toSpyder54

🙏

🙏

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