Read a story of a guy diagnosed Stage 4 Prostrate Cancer in 2005 on Quora site, said it spread to Lymph nodes, bones and lungs, also saying he didn't take any treatments for a year (just supplements ). The whole story sounds like BS but found it difficult to call him out, I think this kind of stuff can be dangerous, as people can be misled on how serious not taking the right treatments.
I have called out a few where they claim all natural cures and selling false hope, some people are desperate and can so easily be duped and it breaks my heart to read stories of people suffering because they were misled.
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I agree to most of what you said. Alarm bells start going off when people make these natural claims and are also selling these natural goods.
Conventional and natural treatments can work side by side but one should not just drop treatments because of unproven claims, like I said I find it hard to call someone out on a survival story, it may sound unlikely and suspect but it can also be true.
So many vulnerable people out there looking for hope
In the past 17 years I have seen a number of cure claims. Invariably, the man has withheld information & either did not have advanced PCa, or eventually died of it.
I do believe that we should not automatically think of metastatic PCa as a death sentence. There are things that might help turn it into a chronic but manageable disease, IMO.
How many deceased members put their faith in standard care & were gone within 24 months?
It's interesting that a surprising percentage of men on palliative protocols, turn out to believe that they might nonetheless be cured. While it's good to have an optimistic attitude, a proactive approach might be more useful.
You were very diplomatic in your description of how discussions of supplements have been all but shut down on this site. Some medical treatment options have also been condemned in the most extreme way; not a service to those on this site interested in exploring treatment options.
Although I went the alternative treatments route at the same time as double adt and imrt , I know that the pc needed the poisons to delete it . I was stage#4. T, 4 . But I know that in my case doing the alternative med and holistic diet alongside of the standard of care gave me an advantage towards healing . I pray chemo kicks your pc ‘s ass . 😷
For me its hard to put down someone who does suppliments along side of SOC especiallly if it make him. Feel better but do like to remind people to continue to research the effectivness of suppliments. A healthier style of living and suppliments that build youre immune system can only be a good thing but not really a cure for APC. Just my 2 cents
Bodysculpture wrote >>> " ...I never let a plumber cut my hair"
Last "PROFESSIONAL" haircut was in May 1973 just days before my wedding and have been butchering myself since then, BUTT then again "I ARE AN ENGINEER ;o)" at least that is what my BSCE diploma implies. 2 x ;o)
Bodysculpture wrote >>> "I concur A person just diagnosed will clutch at any information they believe will save thier lives
Especialy someone quite convincing... "
In 2016 an acquaintance mentions that for his Prostate CANCER the urologist will be removing his prostate. Both he and his wife are OVERJOYED that the cancer will be gone. Within 2 months of removal he died.
He was late 70's. He had some minor health issues. 1 core of 3+3 CANCER (????)
maybe, JUST MAYBE if he went AS instead of following the "EXPERT'S ADVICE" he would still be ALIVE !!! (?)
Supplements can give statistical "bumps" and show great promise. The passage of time almost always proves the supplemental self-treatment to have no effect. I believe sometimes -in a select few cases- cancer cells can be kept "asleep" and increase lifespan. How long they can be kept asleep is unknown but if you are using a non-injurious supplement in might be worth a try. Each of us is a one-off study.
RP, SRT+ADT. Off lupron now. T=440, PSA=undetectable so once again I am in the vacation zone. Cannabis oil seems to have helped in the past so I will keep it up.
It would be interesting to see a collection of success stories or 'statistical outlier' stories, if you prefer. Such stories would be motivating to the rest of us.
You should talk with your Oncologist on anything you are trying outside of their treatments, if you're hiding these kinds of things, maybe you should ask yourself why.
I talk with mine about diet, treatments talked about here and supplements and he never gave me a hard time. He has always been straight with me (I asked for that on day one) and I always respect his input.
Supplements (some) will mask PSA readings - you should be aware of which ones because you may be getting 'false' readings - some of the readings (lower) might not be a big deal, but it depends where you sit on the PSA scale to determine IF you are close to a threshold and NOT seeing it.
Another thing about supplements - do you bother to check for drug interactions? IF not, you may be acting in a reckless way by consuming 'chemical / herbal / what-evers' for what reasons ?
You should GOOGLE 'supplements that suppress PSA readings' -> You'll find a few - turmeric is certainly one of them and I believe another might be biotin or folic acid -
another that I read about and a NEW one in these forums about 2 weeks ago IF I recall correctly. But there are several that you should AVOID for a given timeframe prior to testing.
(I didn't take the time to search out which one was the latest because I was NOT using that supplement). You should also look t 'multi-vitamin' supplements - the formulations are not all the same and some should not be ones that PCa patients take.
In addition, long term use of SOME supplements or an ingredient within could be dangerous. ESSIAC is one of them - although there are some that take this 'concoction' within these forums - of unknown or dubious AMERICAN sources - because the original form came from Quebec in the 1930s or 40s or 50s - something like that -then - from a nun/nurse. The 'original' formula was never officially 'disclosed' but lab analysis was 'probably' used to TRY to figure it out.
SOME of the ingredients in ESSIAC ARE TOXIC in long term usage - but don't dare mention that to some of the enthusiasts - again - it depends on the 'dubious' source. You will also note that ESSIAC formulations will vary from one source to another - something else the enthusiasts don't like to hear.
It reminds me of CBD oil - that is a 'blanket' category - because there are different sources and there may or may not be terpines involved that are under-researched - but that is where the science is going - terpines and BIG Pharma is heavily involved in the growing filed of medicinal cannabis.
How would I know that ?
I'm a licensed grower of CBD / medicinal cannabis - so I KNOW a lot more than they do, I do NOT take CBD oil for PCa - there is insufficient evidence to prove it is significantly effective and I have concrete oncological proof through extensive bloodwork to prove it.
I use CBD for arthritis.
IF CBD was a cure for PCa, I would be healed by now after 3+ years of ongoing consumption.
I did a LOT of research BEFORE I got my license to grow ......
The BEST strategy to follow is this -> IF you want to continue with supplements STOP taking them for at least a few days BEFORE getting your NEXT PSA reading. AND verify - do some research on what you are consuming.
I take multiple supplements - but they are not all related to PCa. I have severe arthritis nd auto-immune diseases - so attacking 'inflammation' is my goal and SOME supplements appear to "HELP' apoptosis in some strains of PCa cells - with ongoing research to help guide us to those that hold the most promise.
Do some homework -> THAT way you'll get the best of both 'worlds'.
Yes, I am planning to have CBD 3 times/day and THC on evening only.
The maximum they are giving me is 20mg of each.
I am starting CBD 4mg and every 3 days I increase by 2 mg so for 33 days then I will start the THC at 2 mg an every 3 days increase by 2 mg for 30 days.
If the pain is not improuve then I will start to use THC 2 or 3 times a day.
After all that, if I do not have a relief, they will have to increase my Fentanyl from 87 mcg/hr to 100 mcg/hr.
I am assuming that you are getting 'competent' assistance with your medical cannabis Rx.
I observe that they are increasing your dosage gradually over a period of time.
I'll make ANOTHER assumption and that is 'they' are hoping to give some effective relief as they 'attempt' to reduce your fentanyl.
It is a reasonable approach - and there is the factor of 'impairment' that cannabis (THC) levels are understood to anyone who thinks about 'weed' - that needs to be factored in. When you ingest it, the effects change dramatically. I QUIT smoking years ago - NO thanks to that suggestion.
I'll assume you aren't driving a vehicle or at least you are restricted in that activity and that you are limited physically in what you can do - due to the side effects that these drugs deliver.
I'll offer THIS as a comment to the track you are on - in terms of medical cannabis, the 'terpines' that are associated with the specific strain(s) that are available vary greatly and that the 'products' that are sold by medical cannabis providers may FALL short in their effectiveness to provide appropriate relief for the specific aliment(s) they are targeting.
A 'GENERIC' extraction that commercial growers provide usually fail in their effectiveness because they simply don't have the capacity to 'custom' grow what would be the MOST suitable 'strain' / variety that is best for YOUR specific particulars.
Unfortunately, for the majority of cannabis 'patients', they simply can't grow what would benefit them most, because they simply can't do it.
THAT fact is what led me to GROW MY OWN after extensive research to find he BEST solution for me. I make my own extractions using MCT oil. I grow HIGH quality CBD plants that are specifically selected for MY needs. I minimize or avoid THC based on experience and selection criteria.
I sincerely hope that the 'genetics' THEY have chosen for you will be a good match.
There is a CHART that is available from LEAFLY - online - a 'pie chart' thst is a QUICK guide to helping you understand what could be of benefit for you. You'll also find some information on terpines if you dig deeper - that is a lot to digest, but that is where the science points to. Think 'full spectrum' and the 'combos' and genetics that are available 'out there'.
My final comment on the subject is that it seems you are headed for a 1 to 1 ratio in terms of the CBD / |THC mix. The good news - CBD acts like an antidote to THC - the more CBD you consume per volume, the more THC you can consume to maximize the benefits that COULD happens for you.
Time will tell if they got the genetics 'right' - but there is one other thing to consider - the scaling / escalation over a period of 30+ days may be too long a time frame for the relief they are trying to deliver. You MIGHT want to shorten the period you take to increase the dosage - an increase of 2 ml over a 2 day timeframe could be the better route to go. IF you don't feel well because you are 'escalating' too quickly, you could slow down to a slower ramp up.
However, you are still looking at a 'reasonable' timetable - IF you DON'T feel a difference on 'their' timetable, I'd go for a more rapid 'climb' - go UP 2 ml every 2 days and that a more dramatic increase in the CBD dosage should NOT have any negatives - you won't get impaired from CBD and that is where you should find the most benefit, It is NOT unusual to see ratios of CBD to THC at the 3 or even 5 to 1
values - you MIGHT save a lot of money and the benefits would still be there.
The CBD is the key and the THC acts like an amplifier at a LOWER percentage but helps avoid the impairment.
IF you can avoid the 1 to 1 ratio, you might feel less impaired and STILL get the maximum benefit from it.
Wishing you the best on your journey -> I hope you can find some relief .....
The math is important - and you are correct - based on the strength of the tincture - the 20 mg one you are using is typical - there are stronger versions out there - depends on the jurisdiction as to where you purchase and who produces it.
I did some sublingual DHEA the other day based in some info it might raise Testosterone. I don’t think I recommend it based in my PSA going up. But I can’t say the two are connected. I guess I will know if it goes down. I only took it a few times. Also made me feel a little agitated.
Any possibility of getting some highlights of the “starving” techniques? Otherwise its one more thing to buy, along with supplements , deductibles for scans and visits, etc
How is prostate cancer starved? From my experience pc is starved by restricting testosterone production in the body. This is called androgen therapy or hormone therapy, in my case Lupron or Eligard with Bicalutimide or Xtandi. Other people seem to think that you can starve by avoiding sugar or saturated fats but I have not known my metastasis to stop or slow growing due to any foods other than lycopenes as in tomatoes, heat over 106 degrees F, or south magnetic fields. In the case of lycopnes it is temporary - only when the lycopenes are in the small intestine with veggie oil, and in the case of heat and magnetics it is not exactly growth-slowing but actual cell death, but not always total or permanent. This is only from my own experiences. but they originated with online studies. Lowering pH or consuming other foods such as garlic, ginger, bittermelon, vitamin B17, black pepper, tumeric, capsaicin, and other things, I tried but did not find effectiive.
I should add that castrate resistant prostate cancer is not starved or affected by testosterone reduction. Mine is .
I assumed ADT treatments were off the discussion table given the original post and the book How to Starve Cancer. I'm asking how, without take ADT or other medications 💊, how someone e goes about starving cancer?I don't think it's possible.
True, monte, however, the point I was trying to make was that in my own experience, I have found that high lycopenes intake seems to temporarily eliminate pain from prostate cancer tumor growth in metastasis, which I believe to be prevention of growth or shrinkage of tumors. I can refer to dozens of lymph node swellings in my own body which are no longer there, over a period of the past eight years. I personally don't think cancer can be starved to death but it can be slowed, which is something to behold.
I know these things sound, but I've been able to keep from doing chemo and radiation for 6 years and 3 years after being told I had 60 to 90 days.please don't send me a bunch of flaming retores I'm just telling you what has happened. I don't know what to say..
On the other hand unfortunatley people will do anything for money.
I would have to see all of the reports, blood work, and diagnostic as proof..keep in mind there is alot of money involved in the pharacuetic cancer industry as well. You can get that info in the truth about cancer a 9 part documentry. or Thetruthaboutcancer.com.
please don't flame me I'm sharing info..every person, body,cancer, and situation is unique. so you can black or white, it just is. God bless you all I wish you all the best.
I agree with you that there's a lot of grasping for straws out there and it's easy to get sucked up into it. However, I believe solidly that a combination of standard treatments, supplements, diet, and exercise are required for the best results. That's based on my own personal experience fighting metastasis for the past 7 years, still tumor free--although one did show up in a lymph gland 6 years ago. At that time I started double ADT (Lupron and Casodex) but continued my diet, supplements and exercise for 6 months, at which time the tumor disappeared and a PSA over 45 dropped to 0.03. Since then, I've only done ADT sporadically, whenever the PSA jumps substantially.
There is somebody on the " Advanced Prostate Cancer" that prone that CBD and Essiac Tincture control his PCa. Here is his resume:
"I was diagnosed late 2016 with metastatic prostate cancer with mets near esophagus, aorta and groin.
PSA was12.
Biopsies gave Gleeson score 8.
A top surgeon told me surgery no longer an option because it had spread and put me on ADT Zoladex. I elected to have monthly 3.6mg implants rather than the bigger 3 monthly implants.
I stopped the ADT after only 2 months because of side effects. I had been told ADT wasn't a cure, just a way of slowing down the spread. When I stopped ADT my PSA had fallen to 1.4 from 12.
Since then I have been taking CBD oil and Essiac tincture everyday and haven't had any surgery, chemo or radiotherapy.
My oncologist expected my PSA to continue to rise and the mets to spread.
For the first 2 years my PSA slowly rose from 1.4 to 14 but PSMA PET CT scans showed the mets reducing in size which surprised him.
I have PSA tests and oncologist visits every 3 months. My last June PSMA PET CT scan still shows cancer in prostate but mets near esophagus and aorta have now resolved and showing signs of calcification.
My last 6 PSA results are 14, 13, 10, 9.6, 8.7 and 10 (the most recent in June 2020).
My oncologist is amazed at my results and how well I look and act. He knows what I'm taking and can't explain it, but tells me to just keep doing what I'm doing.
I know the alternatives I'm taking might not work for others but they certainly seem to be helping me.
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