Swollen Legs: Hi, Has anyone... - Advanced Prostate...

Advanced Prostate Cancer

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Swollen Legs

landcrab profile image
15 Replies

Hi,

Has anyone experienced swollen legs. I'm on Xtandi plus 3-monthe Lupron.

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landcrab profile image
landcrab
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15 Replies
Tall_Allen profile image
Tall_Allen

For men who are metastatic and castration resistant and taking Xtandi+ADT, peripheral edema was noted in 12% vs in 8% of those taking ADT alone.

noirhole profile image
noirhole

Yes always have a Lasix on hand and a restroom near. One pill usually resolves the issue. Good luck.

Magnus1964 profile image
Magnus1964

My ankles have been swollen for years while I was on zytiga and xtandi.

Shooter1 profile image
Shooter1

Swelled up fine on full dose xtandi, but that was my least important side effect. Full dose tried to kill me.....

tango65 profile image
tango65

Peripheral edema developed in 12 to15% of patients taking Xtandi. Severe edema only in 1%.

accessdata.fda.gov/drugsatf...

Bodysculpture profile image
Bodysculpture

Yes I did After docataxal legs and calves were swollen and painfull

I started walking daily

I increased my distance as I progressed

I did loads of riding as well not long distances but enough to create a sweat

Move those legs land crab

Loads of water and exercise in 1 month I was back to a reasonable speed and distance

The swelling is gone

No pain in the legs today at all

We all do it we limit ourselves thinking we are making matters worse

One thing that effects us most especialy Those on ADT

Is inactivity

You must move

Headphones with music you love will encourage you

A walk around the block

Days you feel a but better do it twice

B

Started yoga recently

Beginners

One of the best things I have ever done been putting it off for years

My flexibility is better now rhen when diagnosed

I was complaining, and looking for answers, about edema in my left leg for over two years. I finally got my answer from a vein doctor, who told me I have Lymphedema. This was as a result of having 27 lymph nodes removed from my groin area along with my prostate.

I am now getting specialized physical therapy for it, and it is controlling the swelling. I use a Velcro leg wrap and a Flexitouch pump from Tactile Medical each day. Both were covered by my insurance.

mrscruffy profile image
mrscruffy

I get ankle swelling about every four months, never more than a day.

Dropzone profile image
Dropzone

That began with me right after open RP surgery. My surgeon removed several nodes on the right side and since then my right lower leg and foot tends to swell. Its fine in the morning but if I don't keep active it will be swollen by end of day.

kenner profile image
kenner in reply toDropzone

My left leg has experienced some form of edema for the last 20 years. The more active I am the better it is.

jfoesq profile image
jfoesq

I have had swelling in my right shin and in both feet since treatment began more than 8 years ago. Wasn't sure if it was related to the 30+ lymph nodes removed (at the same time as when they removed my prostate) or if it was Lupron-related. Not sure it really matters which one is the cause. I think the swelling also negatively impacts my recovery from a total knee replacement, for which I have already required 2 follow up surgeries where they cut scar tissue and manipulated it.

Mjex profile image
Mjex

If it is Lymphedema, I would highly recommend pressure socks. They improve lymph flow and are a good for most older people anyway.

treedown profile image
treedown

I get Lymphedema from ADT and/or radiation most days when sitting at work, possibly because of how I cross my legs. I discussed a specific type of massage with my RO but since I can make it go away with exercise he said don't bother and keep doing what I am doing.

j-o-h-n profile image
j-o-h-n

Got them too (two).... Red, swollen and hurt..... I'm raising my legs over my heart at bedtime.... I think it's because of a lack of sex..........

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 01/18/2021 7:48 PM EST

in reply toj-o-h-n

See if you can get them behind your ears

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