PSA 0.04 after 6 years

[poofers123]

Hi Guys: It has been a while since I last posted but here is the latest going on with me...7 months ago my PSA had gone from undetectable to 0.03..I was soo disappointed after having joined the undetectable club for over 5 years. Oncologist told me then that it was clinically insignificant. Retested 3 months later (August 7 2020) It was still at 0.03. I asked and he gave me a 5 month PSA testing vacation.. Tested a few days ago and it is now 0.04. He still says that it is insignificant.. He ordered scans which came out negative with no evidence of metastatic disease. He told me that 6 years ago when I was diagnosed the scans lit up like a Xmas tree. Abdominal CAT scan also found no evidence of metastatic disease. So I guess that the beast is slowly rising it's head, but I am grateful that it is not yet raging. The Oncologist informed me that my disease is totally under control...Good way to start 2021 after the most miserable year (2020) imaginable in many respects.

I feel good, regularly exercise so all is good for now.

I hope the start of 2021 is good for you guys also and please, please stay well and get your vaccine as soon as you can.

Cheers

[Tall_Allen]

Is this without ADT?

[poofers123 in reply to Tall_Allen]

I wish...Firmagon and Casodex...

[Tall_Allen in reply to poofers123]

That makes a lot more sense, now. If PSA starts to rise, try getting rid of the Casodex - sometimes the cancer evolves to feed on it.

[poofers123 in reply to Tall_Allen]

Hi TA...I realize this and my Oncologist mentioned this to me.. He said that 20% or so achieve a PSA drop after discontinuing Casodex.. I wish that Darolutamide would get approved for guys like me...everything I read is that it works as well as Xtanti with fewer side effects. Do you have any word when that may happen?

[Tall_Allen in reply to poofers123]

It is certainly the hope that SEs are fewer with Nubeqa, but there are no comparative studies yet to prove that. One (Nubeqa vs Xtandi) is scheduled for Sept 2022, but schedules are all topsy turvy now.

The Darolutamide trial for men with metastatic hormone-sensitive PC was scheduled to have early results in June 2021

clinicaltrials.gov/ct2/show...

[Alexcohen in reply to poofers123]

IF you have no evidence of metastatic disease and have undetectable PSA , why are you on ADT and casodex?

[Magnus1964]

Your doctor is correct this are insignificant. They could be due to small irritations or inflammations. Watch for three consecutive rises greater than 0.05.

[j-o-h-n]

How old are you? Answer is not necessary, but I'm a nosey son of a bitch........

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 01/09/2021 10:51 PM EST

[Hidden in reply to j-o-h-n]

From his name I'm guessing 123. Doing pretty good I'd say.

[Hidden in reply to Hidden]

Off by 50%. Not bad. I think horse shoes is your game.

[Hidden in reply to Hidden]

Horseshoes and hand grenades.

[poofers in reply to j-o-h-n]

62 years young

[j-o-h-n in reply to poofers]

Thanks.... Stay young (in health and spirit).... BTW I've got dandruff older than you....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 01/23/2021 1:08 PM EST

[Hidden in reply to j-o-h-n]

Ear wax too

[j-o-h-n in reply to Hidden]

LOL Yep and nose hairs too........

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 01/23/2021 1:23 PM EST

[Hidden in reply to j-o-h-n]

Given your greek ancestry, those are closer to 83 years of age.

[j-o-h-n in reply to Hidden]

More like LXXXIV to be exact.....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 01/23/2021 2:46 PM EST

[Hidden in reply to j-o-h-n]

They are Roman numerals!!!

Your grandfather is rolling over in his grave

[j-o-h-n in reply to Hidden]

Grave? He's still alive.... Owns a Diner, the Athenian Restaurant in Philly....He also speaks Latin............

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 01/23/2021 3:26 PM EST

[spinosa]

That's remarkable - 6 years at that level.

[TEBozo]

Mine just came back at 0.04 after stopping ADT November 2020