Pet Scan result

[Chubby42]

Hi all hope your keeping well, my Pet Scan revealed just the one spot on my Spine L2 my Onc said So I am guessing that is good my Onc is sending me for higher dose radiotherapy to try & kill that off.

That is the only spot they can see any PC

So hoping that gets killed off & gives me more time before moving on the next hormone drug. Currently on Zoladex thats the only one I have had for nearly 3yrs.

Cheers take care.

[JNunes]

Congratulations, Mr Chubby42

[tango65]

This article could be of interest:

jamanetwork.com/journals/on...

Best of luck on your journey!

[Tall_Allen]

That is certainly a mistake to delay aggressive hormone therapy just because you zapped a met. Please read this:

prostatecancer.news/2020/07...

[Chubby42 in reply to Tall_Allen]

My Onc wanted to try the Zap first as my PSA is going up slowly so if it keeps going up I guess we will move onto adding another hormone treatment probably Casodex.

Cheers

[Tall_Allen in reply to Chubby42]

That is a mistake. If you read that article, you will see why.

[Chubby42]

Ok so are you saying I should have both radiotherapy & another hormone because the article does say zapping does give good local control.

[Schwah in reply to Chubby42]

Yes. TA is correct. Zap, lupron and Zytega. Don’t wait. I did not and I’m doing well.

Schwah

[StayingOptimistic]

Pay attention to Tall_Allen suggestions, he knows better.

[RGD115]

I was only stage 2 prostate cancer had proton which hits the target without damaging other organs then l was put on Zoladex for 3years if you can have proton

treatment it is more powerful than radiotherapy l refused this treatment because of the damage it does and l don’t regret going to Prague l haven’t looked back since my treatment 4 years ago

[Chubby42 in reply to RGD115]

So who paid for your Zoladex, ? On a previous post you have said the NHS won't help as you had treatment in Prague.

That is what worries me if I say no then go somewhere else they may decline further treatment & I don't have private cover.

[RGD115 in reply to Chubby42]

I had to pay for the proton treatment as the nhs or the consultant wouldn’t allow me to have treatment in Prague ( he just wanted to play with his hi tech toys and cut out the prostate ( which could and most probably lead to a life of incontinance ) when l had the treatment and returned to my local hospital l happened to see a doctor who was understanding and allowed me the Zoladex on the NHS for 3 years but it was a long fight to get ( as these injections are £240 each Good Luck for the future

[Chubby42]

Hi RGD115 how much was the proton beem therapy, I'm in the UK so not far away but been on the NHS not sure what say I have with regards to the treatment on offer, sure I could say no but depending on costs pay for the proton.

Best I could hope for on the NHS is to have both radiotherapy & start on Casodex or Lupron.

[j-o-h-n]

Hey Tubby.... listen to Tall_Allen he knows this shit...

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 09/18/2020 5:31 PM DST

[RGD115]

In Prague it costs £18500.00 that was my pension money gone and my new Audi but my wife said she couldn’t manage without me if you think this is within your means look them up on you tube and internet

all the best for you and your family ( ps if you think they can help you they do a consultation for about £90 )

[RGD115 in reply to RGD115]

Zoladex took me down from PSA 13.1 to 2.5 in 2months

[Chubby42 in reply to RGD115]

Hi m8

I started Zoladex halfway through my Chemo have been on it for almost 3yrs

My PSA has just started to creep up currently 0.4.

You said in a previous post you was having trouble getting NHS to cover you as you went privately to Prague did they cover the Zoladex for you.

Cheers

[RGD115]

Yes after treatment on returning to uk l managed to see an understanding doctor who agreed for NHS to finance my Zoladex injections