Has any one else developed Lichen scl... - Advanced Prostate...

Advanced Prostate Cancer

21,808 members27,295 posts

Has any one else developed Lichen sclerosus as a side effect of taking apalutamide

rogerwegner profile image
8 Replies

Lichen sclerosus as a side effect of Apalutamide

Written by
rogerwegner profile image
rogerwegner
To view profiles and participate in discussions please or .
8 Replies
Eliga profile image
Eliga

Your doctor should evaluate you and prescribe Enzalutamide is more tolerated, with fewer side effects

rogerwegner profile image
rogerwegner

Thanks , I am using clobetesol for the next few months. It seems that females when they get this they show signs of androgen receptor blocking. That is what the apalutamide does in me. It seems that 12 years on ADT has caused me to cross the male female divide. The itch is very intense,but the steroid has toned that down. I think that this is one that I will have for life.

in reply to rogerwegner

12 yrs , holey moley! I’m five years in myself with adt . Caught in the great divide brother . Hang in there . Hope you find relief .

monte1111 profile image
monte1111

Sorry. Crossing the male female divide and intense itching has to be uncomfortable. Hope your Rodger is ok Roger. I suppose the next side effect for us is algae sclerosus. It seems to never end. Try to enjoy.

rogerwegner profile image
rogerwegner in reply to monte1111

It does keep my doctors on their toes. I am always bring them something that they have not seen before. It took a long time to get the proper guy to look at the problem. It was always chalked up to just more severe jock itch. But the bleeding just would not get better with lotrimin. Urologists are not the best sounding board for problems. My palliative care doctor referred my to a dermatologist who knew right away what was going on and what to do about it. this was after a year of talking to the urologist and getting nothing more than zinc oxide, which I would promptly bleed right through. I think that I am slightly biased against urologists. Stay strong

monte1111 profile image
monte1111 in reply to rogerwegner

Yes. I have been seeing oncologist for so long and neglecting primary doctor. Seen him a while back after first meeting of three years ago. Got a shingles and pneumonia shot and declined flu shot. The male mentality. If it isn't broken don't fix it. If it's fractured whine. If it is broken, ER, right now, step on it, to hell with the stop lights.

rogerwegner profile image
rogerwegner

I think that you have got that correct.

tallguy2 profile image
tallguy2

Not I.

Not what you're looking for?

You may also like...

As I reach completion of year 3 De-Novo Stage 4, Gleason 9 crpc. I wonder what is the longest one has survived under the same circumstances

I’m looking for additional inspiration even if it’s just anecdotal.

Side effect of a Rash with Xtandi and Apalutamide?

Has anyone gotten a rash from either of these drugs? Has anyone taken an Antihistamine for the...

Has any one had success with salvage radiation for recurrence of cancer

Gleason >7 3+4 should you use utrasesative psa test or regular test

Is anyone else experiencing repeated bouts of Prostatitis as a result of their cancer therapy?

I have been plagued by repeated hospitalizations for infections that are seated in my prostate....

Anyone taking Darolutamide develope asthenia, a known side effect? I've read similar SEs with Xtandi, so is this with all lutamide drugs?

My husband, who is mCRPC started Darolutamide 1 month ago. Shortly after, he started to become...