As I reach completion of year 3 De-Novo Stage 4, Gleason 9 crpc. I wonder what is the longest one has survived under the same circumstances

[No_stone_unturned]

I’m looking for additional inspiration even if it’s just anecdotal.

[Maxone73]

I do not know, but look if you qualify for a trial with arx517

[Jancapper]

I feel for you brother, such a devastating Dx at such an early age. Freaking makes me tear up.

[Hidden]

Remember posting about this 3 months ago? Gave me a lot of hope. Scientists are so very close to a cure.

healthnews.com/news/aoh1996...

[Yzinger in reply to Hidden]

This is promising to read for sure. How often are we getting these promising notes? And, I did some google searching but didnt learn much more about this one? I guess we wait for additional phases?

[No_stone_unturned in reply to Hidden]

Has anyone here read this book?

Gentle treatment options

[ArchimedesTex]

Michael Milken has lived over 30 years with Stage IV PC. MD Anderson has current patients that have been living with mPC for 40+ years,

[dhccpa in reply to ArchimedesTex]

Milken had Stage 4? How many distant bone Mets?

[ArchimedesTex in reply to dhccpa]

I read his book after I was diagnosed in 2019 but my recollection is that he had mets to his lungs as well as widespread lymphatic mets.

[daleboy3]

Hello I wish to share my experience with treating my Prostate Disease since 2005 i have had a catheter inserted, but two weeks ago I found FenBen a parasite cleanser tablet of 222mg it has the ability to destroy cancer cells caused by parasites that live in the prostate area etc that are named toxoplasma Gandii the FenBen breaks the lifecycle of the parasite causing inflammation to reduce & prostate to shrink so please do some research using FenBen

[85745 in reply to daleboy3]

Thank you for posting this, I am on 2000mg of Fenben/ 1/2 tsp dmso mix with distilled water daily, and added Ivermectin 72mg 5day on /2day off. taken late evening along side 600mg bovine Lactoferrin. Not to get graphic but my urine flow is back and puff daddy. lol. My liver and kidney function all good, Return in a month for psa lab work. Fenbendazole reportedly has 4 onco pathways to attack cancer cells. I plan on adding DCA along with the fenben, DCA is a lengthy topic and prereq knowledge required beforehand. Zeolite is another good carrier for fenben and Zlt is a documented known detox agent, heavy metals, radiation and other harmfull chems. . Research chemo and Zeolite synergy .

[gsun in reply to 85745]

Where did you get your info on Fenben for cancer? It's for deworming animals.

[85745 in reply to gsun]

Fenben while being a vet drug only, it is one of a anthelmintic of meds, links are many but ....... ncbi.nlm.nih.gov/pmc/articl... healnavigator.com/fenbendaz... fenbendazole.org/fenbendazo...

[daleboy3 in reply to gsun]

Lookup FenBendazol.org for humans using google a host of information available

[spencoid2 in reply to daleboy3]

would like to hear more about fenben. is the theory that it kills parasites that enable cancer to occur? how is it taken and how safe is it? i am taking ivermectin without knowing if it is helping at all since disease is progressing. i do not have a clone of myself to do a controlled study. ivermectin and fenben are used to treat the same parasites. is there supposed to be a difference in how they effect PC? take both?

[85745 in reply to spencoid2]

How many mg a day are you taking and is it every day or days off. I take both but not together at same time, Ivermectin in evening only

[daleboy3 in reply to 85745]

FenBen 222mg tablets I got mine from the USA 1 a day for 5 days then a gap of 3 days then 5 days 1 a day it’s surprising how your feces change colour as it clear the colon etc

[spencoid2 in reply to 85745]

pretty much every day for the iver but forget now and then i am taking 1 ml of 1$ solution so assuming that the density of iver is the same as the carrier (probably not but i do not want to make it too complicated) it would be 10 mg a day if i got it right. that is about 27 times the dose i give my dogs once a month the "toxicity" of ivermectin is suggested to be 5 to 5 mg per kg of body weight so for me at the lower level that would be 180/2.2 * 5 or about 410 mg

[85745 in reply to spencoid2]

I am taking 72mg have gone as high as 84mg , Best together with Lactoferrin rumble.com/v21o4vs-dr-chett...

[spencoid2 in reply to 85745]

i started the video with Dr Chetty. i have to start by saying that i have a bias toward Indian doctors. they tend to be less influenced by financial concerns than the doctors in the US. India has 3 billion people and can not afford the BS we follow in this country. M y oncologist is Indian but at UCSF so he probably can not be as free with his opinions as a doctor in India. He does impress me as not being a bullshitter and I trust what he says. I'll ask him about ivermectin and lactoferrin. My other oncologist said he could not prescribe ivermectin because the clinic only follows "evidence based" medicine( or dollar based medicine) but he did not say that I should not take it or that it was dangerous in any way.

So I am very interested in hearing the whole presentation. I will record the audio so I can listen without an internet connection.

In the mean time can you share what you consider a reasonable dose and source for Lactoferrin? Seems there are many different forms.

[85745 in reply to spencoid2]

Sure, Apolactoferrin, I get the best out there natural bovine lactoferrin from the Lactoferrin. co lactoferrin.co/collections/...

[spencoid2 in reply to 85745]

quite pricey $54 for 20 grams plenty on amazon for a fraction of the price but are they useless? what is the recommended dose, if 500 mg that is almost $1 per doe=se which is not a big deal if the stuff you linked is good but others are not. If others can be just a good they are much much cheaper

[85745 in reply to spencoid2]

I started out buying a good rated brand on amazon link , With the ivermectin I take 600mg, now not confuse but it also works well with curcumin so for that only 300mg of lacto. amazon.com/Pepeior-Liposoma...

[spencoid2 in reply to 85745]

so it would not be a waste to buy that from amazon? and what about the curcumin

[85745 in reply to spencoid2]

No not a waste, but if you can swing it the other I feel is better For the curcumin you can buy on amazon life extension brand or a more bioavailble form that I am using link amazon.com/Ultracur-Curcumi...

[spencoid2 in reply to spencoid2]

what about this mcsformulas.com/vitamins-su... the powder 2 gms for about the same price is 7.5 times as high

[85745 in reply to spencoid2]

MCS is a great company I buy my honokiol, betulinic acid from them, they offer many cancer supps. So yes well trusted

[dhccpa in reply to 85745]

I've been on fenben 3.75 years now, iver for 3. Numerous other things. Stable on just Lupron for 5 years but have no idea what is doing what. Gleason 9 and 3+ bone Mets.

[85745 in reply to dhccpa]

Fenben has worked well as a combination along side conventional treatments, First Lupron the for 1.25 yrs before starting fenben to currently? Hope I got that right. what about side effects from Lupron? All good great to hear

[dhccpa in reply to 85745]

Yes, I didn't know about fenben till Feb 2020. SEs from Lupron include loss of libido and energy crashes. I do worry about long term bone/muscle issues.

[85745 in reply to dhccpa]

So far it sounds like it's not to bad , wish you the best,

[daleboy3 in reply to spencoid2]

Lookup Fenbendazole.org for humans if you find the right section it also shows 4 case studies of people surviving stage 4 when taken with 4 herbs together

[daleboy3 in reply to daleboy3]

Just to add there have not been any adverse effects to date

[spencoid2 in reply to daleboy3]

share the secret, what are the herbs and dose?

[daleboy3 in reply to spencoid2]

Lookup FenBendazole.org for humans it’s all within makes interesting reading

[85745 in reply to spencoid2]

Let me jump in, look up liposomal Honokiol

[No_stone_unturned in reply to daleboy3]

Lol. I may have been the first person on this forum to admit that I was giving myself a fenben trial after discovering the joe tippers story 2 years ago. I did both fenben and ivermectin; no apparent clinical evidence in my case during the 18mo I was using it. No toxicicity either so I figure why not. Unfortunately I had to go off everything as a condition of the Arv-766 trial. I sneak some supplements in here and there, but I’m pretty much completely back to SOC. Has anyone discovered any real world evidence that it works for prostate cancer?

[Nestorian]

There is a user called Magnus who has been fighting stage 4 GS9 PC for almost 30 years.

[Ian99]

Are you being scanned and is there evidence of radiographic progression? No mention in your profile. The numbers may not tell the whole story.

[No_stone_unturned in reply to Ian99]

Yes. I get scanned every 2 months.

[Woodstock82]

52 months.

[EdBar]

I was dx stage 4, Gleason 9 almost 10 years ago. I became castrate resistant about 2 years ago, my PSA is currently very low and I’m in the process of playing whack a mole using SBRT when PSA begins to rise. Beyond that there’s still some treatment options available, I’m just trying to keep those bullets in the holster as long as possible.

You stated you were castrate resistant from the time of dx? ??

Ed

[No_stone_unturned in reply to EdBar]

castrate 18 mo in

[85745]

Single greatest question for all of us dealing with this . Hats off to all .

[skiingfiend]

I was diagnosed stage 4, G 9, 12 months ago, not CR yet. I am intensely interested in this question like you and will be following your progress closely as you post.

I see you are on ARV-776 (AR degrader trial) and it seems to be having positive effect. Please keep us posted on your progress.

[skiingfiend in reply to skiingfiend]

oops -> ARV-766

[Bangkok]

I was told 4 years ago the median is 7 years. When introduced to my Thai oncologist he said: "Where's the patient?". I've been physically fit for the past 40 years so I'm banking on being on the upper limit of the data that produced that " median".

[Miccoman]

My Stage 4, Gleason 5+4=9, Dx was in 2014.

Became castrate resistant in about 18 months. Been through lupron (2 years ago was castrated so no more lupron), casodex, xtandi (for 7 years), provenge, docetaxel (only 4 due to toxicity) and am now on Pluvicto.

So approaching my 10 year "anniversary" next fall after I turn 75.

Not a health nut but eat well and get some exercise and avoid as much stress as I can.

[GoBucks]

I wasn't de-novo but probably was. Upstaged to GL 9 in Oct 2017 after Ralp July 2017. Been <0.01 since January 2018. Not on any meds since June 2022.

[j-o-h-n]

FenBen ate my dog........ and now I've got a bathtub full of worms........(Fishermen welcomed)..

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 10/23/2023 6:13 PM DST

[No_stone_unturned in reply to j-o-h-n]

I reply only John can deliver. Love ya buddy!

[Johnstonearch]

I was first diagnosed in the last Century on December 23 1999 with Stage 4 and given 6 months to live. I found a clinical trial with 7 men for high radiation treatments for men who were terminal as well. The other 6 died and I am here today. It has returned 4 times and new diagnostics and treatment have pulled me through each time. Find the best Medicean and friend team you can and keep a positive attitude. It won’t be easy but it is worth those wonderful moments when you are glad to still be alive. I promise.