Back on the PSA Rollercoaster... - Advanced Prostate...

Advanced Prostate Cancer

22,292 members27,989 posts

Back on the PSA Rollercoaster...

bassguy profile image
6 Replies

I am writing to share my story and see if anyone has had any kind of similar experience...I know hard and fast answers are virtually impossible. I am in a place where my PSA is up and down to the extreme. My history:

8/2016 2.1

3/2018 1.5

2/2019 4.6

3/2019 3.8 4K SCORE of 7 (quite low I suppose)

4/19 2.2

6/19 5.9, then a day later for re-check at 4.2, then had a 3T Multiparamentric MRI and got the lowest score possible PIRADS 1

9/2019 1.6

12/2019 2.08

and yesterday... yowza! 13.17 My urologist was shocked as he still maintains cancer doesn't "behave" like this, but he is nonetheless concerned that something might still be up.

Maybe I should have just stopped at the negative MRI and the low 4K and waited a full year or more for a retest. I'm in good health, no complaints, no symptoms of anything. all urinalyses have been negative as well. BTW I am 56yo

Any reactions?

Signed, not quite sleepless thanks to pharmaceuticals in NYC

Written by
bassguy profile image
bassguy
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Tall_Allen profile image
Tall_Allen

I'm confused, possibly you are posting on the wrong forum? Have you been diagnosed with advanced prostate cancer?There is another forum called "prostate cancer network" where there are people who do not have advanced prostate cancer. You may get more relevant input there.

healthunlocked.com/prostate...

bassguy profile image
bassguy in reply toTall_Allen

Thanks. I posted here with a similar inquiry last year so I thought I was in the right place again.

Tall_Allen profile image
Tall_Allen in reply tobassguy

You will get answers, but from the POV of men who have had advanced PC. They would tend to be more cautious, I think.

bassguy profile image
bassguy in reply toTall_Allen

Okay, re-posted on that other thread that you sent me the link to...much appreciated.

Tall_Allen profile image
Tall_Allen in reply tobassguy

I'll respond there :-)

2dee profile image
2dee

Understand that we are all different and we are treating PCa and not PSA.

The rest of blood panel and scans are how a trained MO makes his judgements.

How's your ALP for example.

If not confident in your MO then get more opinions. MY PSA is a fairly good marker for ME, maybe not so much for you.

Learn more...

2Dee

Not what you're looking for?

You may also like...

Persistent psa

I’m wondering if anyone has had experience with benign prostatic tissue left behind after RP. My...
Bkln77 profile image

Fluctuating PSA

I am currently 53, and exercise frequently. I started testosterone therapy because my Free...

Psa concern

Hello everyone. I’m new here. It’s been 12 months since my RP Surgury. I have tested at < .04 for...
Dan-A profile image

PSA rollercoaster

I was diagnosed 5 years ago Gleason 9. Had cryotherapy, 42 sessions of radiation 6 shots of...
George79 profile image

Received results today from Axumin scan performed last Thursday. They plan to start me on ADT with radiation in 8 weeks. Thoughts welcome.

Any feedback you have is welcome. IMPRESSION: 1. Fluciclovine PET/CT with no definite signs of...

Moderation team

Bethishere profile image
BethishereAdministrator
Number6 profile image
Number6Administrator
Darryl profile image
DarrylPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.