I am going to broach this subject on ... - Advanced Prostate...

Advanced Prostate Cancer

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I am going to broach this subject on taking supplements again 😎

Haniff
Haniff

My Dear Brothers & Sisters

These are my supplements regimen every good morning. Just let me know if I am

1) overdoing it

2) or should not do some of them

3) overtaxing my poor kidneys and should do them on alternate days

Thanks guys, my love to all 😍

Haniff

46 Replies
oldestnewest

Haniff....Supplement issue is touchy and contentious on this forum. There are huge supporters on one side and then, there are huge naysayers on other side. And this split causes little bickering off and on.

Let me analyse your supplement collection one by one.

(1) Vitamin D3: very important vitamin specially for people with PCa. Best source is 30 minutes of Sunlight every day. Supplement of Vit D should ideally be taken after knowing blood level of it as excessive Vit D can accumulate in liver and may cause toxicity.

If checking level not practically feasible, just taking 1000 Units a day may be more than sufficient,

(2) Curcumin/turmeric: This is a golden stuff..time and again hundreds of studies all over the World have found that it works as AntiInflammatory, Anti Oxidant and Anti Cancer and might slow/stop cancer cell replication. This one is my number one favorite.

(3) Vitamin C: helps with immunity,,thats what people say. It is basically harmless stuff. Lemons,limes, Amla berry, oranges etc have plenty of this Vitamin. Even if one takes excessive amount...it is thrown out in Urine ...just makes your urine bright yellow color.

(4) Berberine is like natural metformin. Now, there is lot of info that metformin does slow PCa growth. I will not mind taking Berberine but will monitor my liver function .

(5) Vit B12: Unless your blood shows low levels of B-12...less of it is better.

Its probably better to take a VIt B Complex tab than only B12 tab.

Too much intake of B12 can adversely affect PCa ..some studies say.

(6) Magnesium, Iodine and Potassium: If you eat good amount of veggetables, fruits ,seeds and nuts..there is really no need for these three supplements...Taking potassium supplement every day can be dangerous because it can lead to hyperkalemia which can further cause heart problem. Level of blood pottasium should be checked and if it is at 4 or higher, no need for potassium supplement.

I hope this information help you to take supplements safely and in right amounts.

Some beneficial foods /supplements to be considered: Cruciferous vegetables (Cauliflower, brocolli, Cabbage, Radishes) ..Tomatoes / lycopene....Pomegranade and Grape seed powder .

Zinc from eating pumpkin seeds and last but not least..Ginger root.

My rule is ..natural form is preferable to artificial or synthetic form as long as possible.

pjoshea13
pjoshea13 in reply to LearnAll

The majority of men with PCa will or have used a supplement for PCa.

A minority view supplements as a scam.

When used for cancer, as opposed to a way of supplying nutrients insufficiently found in the diet, they are untested drugs. One arguement is that it might be counterproductive to take pharmaceutical doses before there has been a rigorous clinical trial. Another view is that none of them work - although that has not yet been proven in a rigorous clinical trial. LOL

My feeling is that if standard care will only give one a median survival of a few years, it is foolish to disregard supplements.

I have just searched PubMed for <prostate curcumin> & got 399 hits.

I added <analog> to the search & found that 110 of those studies were looking at potential drugs based on curcumin. If one turns out to be super-effective, we will be charged $5,000 or more a month to use it.

In any event, the smart money is looking at curcumin, so why shouldn't we?

Just one example.

But most curcumin supplements do not deliver. It's important to understand how a supplement might help, but also to avoid shoddy suppliers.

-Patrick

Haniff
Haniff in reply to pjoshea13

Thanks Patrick

Brother, I really appreciate your opinion, thanks 🙏

Will reread and take note, 🙏

❤️

Haniff

Whimpy-p
Whimpy-p in reply to pjoshea13

The minority report 😂😂😂

Haniff
Haniff in reply to LearnAll

Thank you LearnAll

I am humbled and so appreciative of your breakdown of the supplements I am taking.

Thanks Brother 🙏❤️

❤️

Haniff

A few thoughts in addition to what others have said: you may want to take vitamin K with D. The way I understand it, D helps absorb calcium from diet, but K is what helps it get into the bones in addition to possibly attacking cancer directly.

Also, my MO reccommended taking B complex when I complained of possible neuropathy during chemotherapy and it does seem to be helping!

I also drink a whey protein shake every couple days as it's easily digested protein and my digestive seems to have trouble with absorption during chemo. I use the cheap stuff that has creatine and taurine added which have been recommended as individual supplements in other threads.

And finally, I'm taking celecoxib and atorvastatin for pain and high cholesterol, but also have some studies indicating increased survival in prostate cancer patients.

And of course, I can't say this enough: EXERCISE!

Haniff
Haniff in reply to tom67inMA

Hahaha Tom, yes exercise is really important but with this virus in the air, our government has been advising us to do it indoors. So I have been doing simple calisthenics and aerobics by getting ideas from YouTube.

Also thanks for sharing what you’re doing to boost and motivate yourself ❤️

Haniff

I can't see what the dose of B12 is in the photo, but that is the one in the group that I'd be most wary of (taking too much, too frequently) unless specifically indicated. Although it is essential, the body typically requires very, VERY small amounts. High doses MAY in some instances contribute to rising PSA (as reported in at least one observational study).

Haniff
Haniff in reply to noahware

Hi Noahware

Sure will keep an eye out on the B12 as some brothers have also brought it to my attention.

Thanks Bro ❤️

Haniff

Whimpy-p
Whimpy-p in reply to noahware

I take very little b12 in a bone complex.

Over the years I have taken a lot of supplements. I treat them as I do standard medicine. If my PSA begins to rise I assume my cancer has found a work-around to that one and move on to another.

Through it all the only vitamin do continue to take is vitamin D3. A doctor told me to have my D3 level checked. Sure enough it was very low.

I am a big believer in monotherapy with few exceptions. My advice is to do your own research do what feels right for you. Above all tell your doctor what your taking. Many doctors will tell you it does no good. That is his/her opinion.

Haniff
Haniff in reply to Magnus1964

Hi Magnus

You’re my role model Bro. I want to be able to hold on to my beautiful life as long as possible as you’ve done ❤️

Ok will run through with my oncologist when my appointment is due next and yes you’re right, I’ve asked before and he said supplements don’t help. But no harm asking though. Thanks Brother, my best to you.

❤️

Haniff

Whimpy-p
Whimpy-p in reply to Haniff

The onco will most likely say no to much . Western med doesn’t care much for nutrients .. I follow a naturalpathic .. ✌️

Whimpy-p
Whimpy-p in reply to Magnus1964

D-3 & k-2 go together .🤙🏽

I don’t take the c or Berberine ? I do take about five others that you don’t have here . ? How do feel taking these. It’s a pain in the butt and costly too. I look at it like we are at least trying to help our selves. Food is medicine too.. let’s eat right too..I think you’re doing good , others will give their expertise. Take care Haniff !💪🤙🏽

Haniff
Haniff in reply to Whimpy-p

Hi Whimpy-p

Yup you’re right Bro, taking these supplements does put a dent in the good old leather wallet but I am trying to push the envelope further with these supplements.

To be very honest, to you and all my good brothers and sisters on this motivating forum, I am at a lost.

Let me explain: After doing 6 cycles of Chemo, and on 3 monthly Lucrin jabs, other than praying, eating right, juicing and eating fruits and vegetables more than I’ve ever done in all my 57 years before being diagnosed in late 2017, exercising daily, being mindful and grateful, even, even accepting the lost of my libido ( 🥴😩 ). Not doing anything else seems like kind of I am not doing anything to help myself...just that feeling that I should do more...but what! So to make a very long story short and sweet, taking vitamins seems to help me feel better and determined to keep Death at a great, great Social Distance...hahaha, but you know what I mean 🤷‍♂️

Phew...this is what happens when you have to stay home and rich with time, you tend to ramble 😀

❤️

Haniff

Whimpy-p
Whimpy-p in reply to Haniff

We are doing all that we can do . For the love of life .. you call that rambling? You haven’t seen my diatribes lately than . This is a good place to ask and let things out. I’m very similar to you . Hang in there..

Haniff
Haniff in reply to Whimpy-p

❤️😊

Tumeric is gold! 🤙🏽

Of course I’m no expert, but I believe you want to lose that low dose vitamin C ... you can google “ low dose vitamin C promotes prostrate cancer “ for more info.

I take about 30 supplements every morning ... just for ducks. More than likely just the placebo effect ... got all of them from guys here on the group. Many bright knowledgeable guys here brother.

Peace ✌️✌️✌️

Haniff
Haniff in reply to Kaliber

Hey Kaliber

Oh wow 30 every morning...phew, makes mine looking lame ;)

May I know what supplements you take, if its not too much trouble brother, thanks.

Haniff

Kaliber
Kaliber in reply to Haniff

The primary cancer related supplements are :

Pectasol - c modified fruit pectin 6 caps , 3X a day

Lycopene

Pomi-T

Boswella extract

Sam-e

Coq-10

Mega green tea extract

Curcumin

Calcium w/d

Broccomax

Optimized saffron capsules

Raw saffron threads

Probiotics

Cancer drugs:

Xtandi

Others ...

metformin

general daily multi’s

Amlodipine

Lisinopril

Hydrochlorothiazide

( Lupron injection and Zometa infusions )

Hydromorphone

Vicodin

Total daily intake about 39 drugs / pills daily ( minus the opiates ) the top group are the supplements I’ve discovered on the group

My psa has been undetectable for 17 months now , down from 1400 at DX. Unfortunately the adt is devastating my body , nearly making me Crippled/ immobilized, and making my cardiac rhythms, alt - liver , blood glucose and blood pressure unstable. Other than that, no biggie. As always it’s vital you discuss your supplement regimen with your medical support team. My onc is taking notes about my supplements and is fully on board with it ... particularly since I’m a croaker anyway. He doesn’t feel like they will hurt me at this point, so if I want them ...have at it .

😁

Whimpy-p
Whimpy-p in reply to Kaliber

What a line up ? I like the nutrients . Sam-e helps me a lot . Calmer and more energy with it than before . Raw saffron threads.mm m good medicine also . She gets our saffron from Persia for cooking. That flavor that you always want to eat more of. ?

Kaliber
Kaliber in reply to Whimpy-p

Yea I got the Sam-e from you when you flashed a picture of your extensive supplement line up yayahahahaya. A couple of others too I think, maybe the saffron. Remember when I asked you about them? Got the fruit pectin from Nal etc.

I look at the successful guys like you as the example ,...

success speaks for itself. I want some of that too . Makes you feel like you are trying to take an active role in your own survival 💪💪💪💪✌️✌️✌️

Whimpy-p
Whimpy-p in reply to Kaliber

I took the c-pectin got my first two years until nat dr told me to drop it . Say even if it’s a placebo effects , it’s something. Probiotics rely helps my gut function. I’m good on Sam -e , Don ever plan to cut that either . APC is a damed circus 🎪

Haniff
Haniff in reply to Whimpy-p

Thanks 🙏 Brother

❤️👌

Haniff
Haniff in reply to Kaliber

Oh Wow Kaliber

Thanks a million Brother 🙏

I am going to study it, make notes and definitely ask my oncologist, his opinion.

Thanks Kaliber ❤️ for sharing

My best to you Bro and take good care

Haniff

Kaliber
Kaliber in reply to Haniff

👍

Kaliber
Kaliber in reply to Haniff

Probably near 100% of the top group of “ supplements “ I take came from advice of well established knowledgeable people here in the group. That , strongly based in supportive knowledge found on google. I was clueless about them before coming here. If they , all together, only give you a few percentile of benefit .... it’s good. Seems like most of those guys using them like whimpy-p , Nal and the others have ALL been hanging on for 5 to 18 years or more. I want some of that too yayahahahaya.

💪💪💪👍👍👍🌸🌼🦋🌻

Haniff
Haniff in reply to Kaliber

“Seems like most of those guys using them like whimpy-p , Nal and the others have ALL been hanging on for 5 to 18 years or more. I want some of that too“

Yes, me too. I want to get on that boat too, that’s why I am asking around how I may do so. Thanks Brother for guiding and showing the way.

❤️

Haniff

Kaliber
Kaliber in reply to Haniff

Rite on brother .. 💪💪💪✌️✌️🌻🌼🌸🦋

Whimpy-p
Whimpy-p in reply to Haniff

Even a wise man knows that luck is a factor . I figure only good going in ups our chances of good results.

Whimpy-p
Whimpy-p in reply to Kaliber

We will hang til our number is called up ? 🙏

My research medical oncologist to me, “Do you take supplements.” Me, “No”. Medical oncologist, “ Good. I don’t want you to screw up my treatment for you.. if you take anything, anything at all, tell me first. “

During six months of chemo, he prescribed 500 mg of Vitamin C, three times a day. I never viewed this as a supplement; only part of his treatment.

My advice, discuss supplements with your medical oncologist.

Gourd Dancer

Haniff
Haniff in reply to gourd_dancer

Hi gourd_dancer

Thanks for the advice, appreciate it ❤️

Haniff

My Dr told me no high dose anything. He said it’s proven to cause more death than not. I did high c IV’s throughout treatments anyway along with many other daily nutrients. After I went in to remission . Dr said whatever you’re doing keep doing it .Hahoo!

Was it IV’s?

No. Oral only. Nothing IV. Taxotere and Adrimyacin were via port-a-cath. The later was a 24 hour pump.

GD

Your B12 dose seems too high for a daily intake. You could take it every three days. I am a vegan and must take it. Are you a vegan or vegetarian?

Haniff
Haniff in reply to CalBear74

Hi CalBear

I eat a plant based diet which I sometimes add lean chicken for protein. Noted about the B12 and will take it every 2-3 days time frame. Thanks Brother for the advice ❤️

Haniff

Of course.... don't forget to take your memory pills........

April 16th. Day my Dad passed away many years ago (can't forget)

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 04/16/2020 6:46 PM DST

Haniff
Haniff in reply to j-o-h-n

Hi j-o-h-n

Sorry about your Dad’s demise all these years ago, he is in my prayers.

Oh yes, brain fog has been a big part of my life after the chemo. And it was really hard on me the last year or so just before I retired from teaching. Imagine this, at times, I couldn’t even remember the name of the rascals in my class while I was trying to discipline them. And they were standing right in front of me! But I thanked God for helping me find my way home every evening after work...😆

So yes memory pills are definitely in my list ✅

❤️

Haniff

Whimpy-p
Whimpy-p in reply to Haniff

How about a magic pill for everything? That’s what I’m waiting for?😂

Haniff
Haniff in reply to Whimpy-p

Yup that's something worth waiting for. I'm next in line, don't worry, I'll keep my distance ;)

Haniff

Whimpy-p
Whimpy-p in reply to j-o-h-n

🧐

Whimpy-p
Whimpy-p in reply to j-o-h-n

That date that will

Live in infamy . Sorry -j -o-h-n

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