Hmm... So, I went to my Uro for my si... - Advanced Prostate...

Advanced Prostate Cancer

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Hmm... So, I went to my Uro for my sixth Lupron injection...

westof profile image
23 Replies

Guess who's the squirrel?

Although, after hanging around this forum, I'm guessing I'm just one of a huge scurry of squirrels!

I didn't even mention this to " my darling wife of 46 years"!

Best,

AJ

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westof profile image
westof
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23 Replies

Just One of the Hurd .At least we ain’t Lemings

westof profile image
westof in reply to

Yep, point well taken!

For me it was a good day that I did the chop chop and no more lupron shots. Yah!

MJCA profile image
MJCA in reply to

You’re lucky. Today i got a Lupron shot AND Xgeva. I’m a lucky guy! NOT

in reply to MJCA

I still take a pill form adt and now prolia also .

RICH22 profile image
RICH22 in reply to

you might've mentioned it before but what ADT pill is that?

in reply to RICH22

the defunct test adt drug tak-700 ..

in reply to MJCA

Lucky to be alive . Yes! I’ve been on this castration train five years now with constant adt . Whooo hoo. Lucky me! Appreciate what you can in life brother.

westof profile image
westof in reply to

Hmm... Scott, with the amazing attitude that you have, I think you'll be around for quite awhile!

Best

AJ

in reply to westof

Being around is preferred.. enjoying being around is key.. take care 🕊

westof profile image
westof in reply to

Just keep the faith Brother, no one knows what new treatments may be right around the corner.

Best

in reply to westof

Or what pandemic? Is more likely brother?😩😩😩

westof profile image
westof in reply to

Again, point well taken!😧😧😧

Danielgreer profile image
Danielgreer

I Wonder if I can bury my acorns in the backyard and dig them up later when I need them😀? Although I think I read somewhere that squirrels lose about 75% of the acorns they bury! I’ll have to make sure I mark them well maybe with gps coordinates 😀. But seriously, are the SE’s lessened when you give up your acorns? It’s hard to imagine being on Lupron for the rest of my life.

in reply to Danielgreer

It’s so very tuff to say if the side effects are lessened ..I think 🤔 the side effects are from having no t. It makes sense that the SE’s are lessened on one form of adt instead of two . Or are the side effects lessened or do we just adjust and accept them better in time? A bit of both it seems. I was happy to ditch the shots . I was told that I’d be on adt for life ...now nobody knows what to do with me???

RICH22 profile image
RICH22 in reply to Danielgreer

as far as i know, squirrels have never validated the 75% figure. The SPFNAS (Society for the Prevention of Fake News About Squirrels) insists that it's more like 74.8% -- ahhh, the fun never ends!

PCa feeds on a bunch of different substances, but supposedly selects Testosterone over everything else. LHRH agonists like lupron inhibit T production by the adrenals and the PCa itself, not just the main suppliers, your acorns. I'm trying to avoid that route, since making the PCa cells unable to use T makes more sense to me. Casodex (bicalutamide) has been used in Europe for decades and now has younger cousins: enzalutamide, apalutamide, darolutamide - not sure about the other -lutamides yet.

Good luck, amigo!

in reply to RICH22

So many dammed cocktails going around. They are always going to come up with new drugs. Some dam day they just might find a cure. Let’s be here for that .

BigSwede profile image
BigSwede in reply to RICH22

You write:

"PCa feeds on a bunch of different substances, but supposedly selects Testosterone over everything else. LHRH agonists like lupron inhibit T production by the adrenals and the PCa itself, not just the main suppliers, your acorns."

It is important to know that this is wrong. LHRH agonists ONLY inhibit T production in the testes. Zytiga, however, inhibits all T production.

RICH22 profile image
RICH22 in reply to BigSwede

thnx brother, my mistake. LHRH ANTagonists include inhibition of adrenal T production. I stand corrected.

j-o-h-n profile image
j-o-h-n in reply to Danielgreer

Remove one.....if it's working then remove the other one...

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 02/15/2010 1:24 PM EST

in reply to j-o-h-n

😂😂yep,that’s how I did it . TG

westof profile image
westof in reply to Danielgreer

Dan, all I can say is that I'm very lucky (so far). 18 months of Lupron (6 months of Casodex and 12 months of Zytiga and prednisone).

SE's, too few to mention.

Best

tallguy2 profile image
tallguy2

8 years with Lupron/Eligard with decades more to come!

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