lymph treatment

[arete1105]

nambuccaguardian.com.au/sto...

My cancer has spread from prostate, to lymph to mets. I asked my Onc if it would at least help with the lymph involvement. The Kaiser Onc said no. Does anyone think otherwise?

[cesanon]

You should do something about the lymph nodes.

But you need to be careful about radiation killing off the CD4 Tcells (that are non-replaceable).

[SuppWife in reply to cesanon]

What can be done to avoid radiation killing CD4 Tcells? Could you elaborate? Thank you

[cesces in reply to SuppWife]

You can operate instead of burn.

You can maybe use fewer more targeted treatments. Sbrt instead of Imrt.

[SuppWife in reply to cesces]

Oh, I see. I was thinking post RP/adjuvant/salvage. Thank you.

[lewicki in reply to cesces]

Is pinpoint proton radiation a possible treatment?

Thanks

[cesces in reply to lewicki]

I don't know.

The standard practice is to bath the whole area in Imrt radiation. There may be a good reason for that.

Sbrt is already pretty precise.

[ian222 in reply to lewicki]

Yes, I had "proton" on it. But no impact on PSA...

[arete1105 in reply to ian222]

I was more interested in stopping lymph progression.

[curt504aa in reply to SuppWife]

I'm offering something for you to investigate, and since theres zero down sides from diet modification, to considier the Ketogenic diet, for life extention.

I was just at metabolichealthsummit.com/ where there where a few talks on cancer management via the keto diet. True the successes where with brain Glio's. Theres no studies / on PCA or mets on keto.

There's also a few books:

amazon.com/How-Starve-Cance...

amazon.com/Metabolic-Approa...

and also CARE oncology coctail of off lable drugs (near zero sides)

careoncology.com/

More kitchen sink; medical cannibis healer.com/

Everything above is out of pocket, or has efficacy numbers, but has low sides and helped someone, some of the above is cheap; intermitant fasting + keto diet...

You might look up a few holistic + cancer orgs near you. I agree some locations are devoid of non-std of care practicioners. Here in Atlanta is nearly a health care desert (from our criteria).

I might add though that medical cannibis (soo many variations efficacy is product specific) can be a useful choice to be non-opiate pain management for higher quality of life.

Getting on airplanes is how things get done (cannibis), for us its how practitioners are seen as well.

Best of luck

[Kaliber in reply to curt504aa]

I have a tendency to being overweight and like to hover around 340 pounds unchecked. For the last 25 or so years I have lived on a strict mostly vegan keto diet of 50 carbs, 1000 calories daily and that nicely kept my weight around 220 to 240 pounds for nearly two decades.

The downside is that I was discovered with a psa of 1400-1600 and am borderline hospice care material. If you asked “ me “ if a keto diet was beneficial for PCa I’d have to say “ yes “ , keto makes prostrate cancer big and strong and now I wonder if my keto diet helped seal my untimely demise. The truth be known, I suspect if you are genetically destined for prostrate cancer, diet will have little effect. At least I hope so. If keto contributed to my massive case of PCa , then it partially would be my fault. ☹️

💪💪💪

[Tall_Allen]

If you have had spread to distant metastases beyond the pelvic lymph nodes, there is no known survival benefit to closing the barn door after the horses are out.

[kaptank in reply to Tall_Allen]

They did it for lymph nodes at or below L4.

[ian222 in reply to kaptank]

Or L3, or L5- oligometastatic approach...

[kaptank]

For this, very accurate RT required. Stereotactic or image guided intensity modulated RT, which is what Shakespeare uses. I gather its based on Ga68PSMA imaging. Very interested in this. If you only have a few lymph mets below L4, may be feasible

[Rocketman1960]

I had successful treatment of a lymph node at L5 with SBRT. The PC is still lingering elsewhere but the one node they hit is now clean per PET scan.

[RCOG2000]

I had a good response with radiation to pelvic inguinal and peri aortic lymph nodes

The precision radiation i had is known as tomotherapy.

[arete1105]

Now does this mean that your nodes in the radiated area are dead, still function or what?

[barrybayarea]

Hi Arete, I am in the same situation as you. My Onc at Kaiser, maybe the same doc if you are at Kaiser Oakland, also said no to radiation. As you can see from the replies to your post, the community here, as well as the docs all over are divided on this issue. A lot of people think it is too late to radiate now. If you see my old thread, you will see a lot of similar opinions - healthunlocked.com/advanced...

The radiation oncologist I saw at Kaiser said that if I saw enough radiation Onc one of them would recommend it. However, studies show that benefits, if any, would be marginal. Some of us may be OK with marginal, I was, however, I would still need a doc at Kaiser to recommend it, going outside to get it is not an option for me. I felt that at Kaiser, given that the benefit may be marginal, they did not want to spend the extra money to give me radiation treatment, it may just be a perception.

At Kaiser and Stanford, they have a study going on, where you would have a 50% chance of getting treatment to your prostate and/or around it. You can ask your doc if you can sign up for this - clinicaltrials.gov/ct2/show...

I almost joined it and then they discovered a small carcinoid tumor in my lungs. Although it is not active right now, no activity and not a "real" cancer yet, however medically it is, so I do not qualify for that study anymore since technically I have 2 different cancers.

Best of luck.

[barrybayarea]

You might have already seen this but there is a discussion on the subject on this thread too - healthunlocked.com/advanced...

It is so difficult for us to figure out these things by studies alone, after all we all have a slightly different variation of PC. At some stage we have to listen to what our docs say, which should be easy if you trust your doc. However, we all know that docs make mistakes (which in this case means your life) and sometimes even have financial considerations for their employers (the hospital).