What is the best place to get genetic... - Advanced Prostate...

Advanced Prostate Cancer

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What is the best place to get genetic testing

Casper3 profile image
13 Replies

I’ve seen 2places mentioned for genetic testing on this forum. Is one of them better than the other? I had a bone biopsy done at MSKCC back in November but have not gotten the results back yet. It was supposedly done at MSK and not at either of the ones mentioned in posts here. Has anyone used MSK and are they as comprehensive?

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Casper3 profile image
Casper3
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tallguy2 profile image
tallguy2

And his care provider will have to order this from FoundationOne.

Tall_Allen profile image
Tall_Allen

MSK is the home of some of the best genomic testing anywhere.

Casper3 profile image
Casper3 in reply to Tall_Allen

I hope MSK is one of the best because I’ve tried everything including brackytherapy,cyber knife,xytiga,xtandi,xofigo and both forms of chemo with no success. So I’m hoping this genetic testing will come up with a treatment that will work.

Tall_Allen profile image
Tall_Allen in reply to Casper3

Unfortunately, there are few genomic mutations that are actionable, and those few are rare. It's an evolving field, but worth taking a look.

tallguy2 profile image
tallguy2 in reply to Tall_Allen

I hope that 10 years from now the results of genomic testing will be actionable. MDA has my current cancer cells in a clinical trial. Maybe that will help.

Tall_Allen profile image
Tall_Allen in reply to tallguy2

If it one day is, it will be because of you and guys like you who have participated in those clinical trials.

Namork profile image
Namork

Would it be inconceivable for your treating MO to not seriously consider treatment options based on genetic testing?

I'm not familiar with treatment options over SOC that become more viable in certain mutations.

Casper3 profile image
Casper3

Talking to foundation one might be an option but I would have to get another biopsy so they would have tissue to analyze and that would require the doctors ok and would the insurance cover a second biopsy so close to the first one? Would MSK not do as comprehensive analysis as foundation one?

tallguy2 profile image
tallguy2

Nal...that's what I meant. In my case my MO completed the form and ordered the testing. My insurance paid for all of it, too.

Hotrod65 profile image
Hotrod65

I'm a patient advocate for Foundation Medicine and travel across the Nation for them speaking about my journey and the lifesaving testing they do with Genomic Sequencing and the Advancement of Immunotherapies and precision targeted therapies, have visited and spoken at both their facilities in Boston and N.Carolina...im well connected in the company and can provide contacts if desired?

Casper3 profile image
Casper3 in reply to Hotrod65

Mostly everyone has recommended Foundation One.since you appear to be connected, if you could provide me with the best person to talk to and their number i would appreciate it . I’m hoping to get MSK’s results when I go for my next appointment on Wednesday but would like to have it repeated at Foundation One to see if their results match Foundation Ones . How long does the analysis take? I had the bone biopsy back in October but they still didn’t have results back in December.

Hotrod65 profile image
Hotrod65 in reply to Casper3

Send me your email address?, The testing takes 2 weeks for their solid tumor sequencing with CDx panel.

Casper3 profile image
Casper3 in reply to Hotrod65

Hi hotrod65 thanks. Here’s my e-mail pgundlac@nycap.rr.com

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