Start and End of Treatments

[PSAJohn]

There Is a start but really no end as long as you accept treatment plans presented by your doctors.

[Jimhoy]

Seams to be more the rule than the exception!!! Most will not stray from the SoC (standard of care) protocol. Not just in this field though!! Likely because there are twice as many lawyers out there as there are doctors!!!

The key to success is to learn all you can. I found sites like this to be the best school. Men and women that have walked the walk is so much richer and complimentary to a book smart Dr. i’ll never forget the first time I sat on the paper covered table and said to my Dr... “okay, but what about this” and watched his jaw drop.

Learned enough to fire Dr’s that you find are working for Big Pharm more than working for your wellbeing.

Jc

[GeorgesCalvez]

Hi there,

Doctors do tend to try and play by the book and not take risks.

For example if it says three years of ADT that is what most of them will go for. Never mind that three years of ADT is pretty much a non recovery option for most men in terms of testosterone and that in itself has risks to health.

My doctor was keen on three years at the beginning and then downgraded that to two years. I had seen how fast my PSA fell at the debut of the ADT before the IMRT and read that eighteen months was almost as effective plus a better chance of recovering testosterone so in the end I did nineteen months.

So I have upped the ante but I am playing for a bigger pot, if it comes off I could live as long as if I had done the three years but with a better quality of life.

As Keynes said we are all dead in the long run!

[joeguy in reply to GeorgesCalvez]

3 years of ADT gave me ischemic heart disease, so I told them enough of that shit. Luckily 3 yrs of ADT also got my PSA to zero (Xtandi was the miracle drug) , so I guess it was a trade off. Not sure what the plan is if and when my PSA starts coming back up......

[GeorgesCalvez in reply to joeguy]

My plan for the moment is that I may be cured.

I had a post prostatectomy PSA of 2.07 with clear scans so maybe the little monsters were confined to the prostate bed and environs. If that is so then maybe the radiation and ADT has knocked them out.

If not and my PSA starts to rise again then I have various options in hand.

I can opt for going back onto some form of ADT as I am not yet castrate resistant as far as I know.

I could also let the PSA rise and then go for some sort of scan to try and find out if I have an active site in a lymph node which I could then try and knock out with radiation, etc.

[Hidden in reply to joeguy]

Hey joe guy! I’ve been on adt myself for almost five years. What a ride?

[joeguy in reply to Hidden]

Have you done xtandi, if so, how did it work for you?

[Hidden in reply to joeguy]

No Sir. I’m on a failed test adt drug tak-700 thats kept my adrenal production of “T” halted thus far . I started on firmagon 1 month then eleguard tri moths the lupron until I dropped shots with orchiectomy 9-17. Still on pill form tak -700 with terrible side effects . Or is just being completed castrated .? It’s a charm .

[Hidden]

No exit strategy.?