20 years on continuous Lupron started... - Advanced Prostate...

Advanced Prostate Cancer

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20 years on continuous Lupron started with PSA of 30 and I have been below 1.0 for about 6 years now.

ShenStone profile image
13 Replies

On December 23 of this year I will experience my 20 th year of continuous Lupron. Side effects have waned some but are all still there. Exercise exercise exercise. When you are tired.....sleep.

Note: I met e new Lady about two years ago and she inspired me sexually for the first time in 18 years. You are capable of a “DryOrgasm” with vibrator stimulation to the soft little stub. Ironically the sensation is stronger and more intense than the usual and it lasts longer! I can get three orgasms in one session. Need to be mentally in the mood first. Of course.

Quality of Life is still acceptable!

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ShenStone profile image
ShenStone
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13 Replies
dbrooks_h profile image
dbrooks_h

Yikes

Danielgreer profile image
Danielgreer

Amazing!!!

Whoa Daddy! This is an amazing story...So miracles do happen for you . 20 years on Lupron must be close to a record . Love rules ..Great for you ! Thanks for sharing . 🎄

Fantastic! what was yoour Gleason score at diagnosis and how advanced? Did you have radiation, operation or chemo or only lupron?

RJ-MN profile image
RJ-MN

Thanks for this, ShenStone. I was on Lupron+bicalutamide for 12 months before becoming castration-resistant. Now, because of "protocols" with other treatments, I have remained on Lupron consecutively for 10 years. PSA did return to <0.01 for a year+ during an Enz+ProstVac Tricom trial @ the NIH (5+ years!), but that is over now and PSA was last @ 54 on Abiraterone with one small scan progression. lt's a little frustrating to have Lupron be a life sentence ... but if it actually does help to preserve life, then it's certainly been worth it.

20 years is amazing. Besides the sexual ramifications, I'm wondering how you are doing metabolically? Have you found exercise to negate the weight gain? The constant loss of muscle to fat? What of cardiovascular issues?

I'm hoping your answers continue to give the HOPE that your post above certainly has given!

Congratulations...…….

Sandy752 profile image
Sandy752

Do you mind if I ask how old you are? I'm 74 and been on Lupron for six years. PSA has been around .25 for the past two years.

j-o-h-n profile image
j-o-h-n

"I can get three orgasms in one session." Reminds me of when I was young.... I could get three orgasms in one second.

No more orgasms, just chocolate chip ice cream (two scoops).

Great bumper sticker: Put a bumper sticker on your car that says: "Honk if you have a small penis" and then intentionally cut people off in traffic...

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 12/16/2019 6:40 PM EST

monte1111 profile image
monte1111 in reply toj-o-h-n

Very funny. Maybe not if you have a small car. Next to your Road Runner sticker would be excellent. Honk, honk.

j-o-h-n profile image
j-o-h-n in reply tomonte1111

Beep Beep......

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 12/16/2019 11:12 PM EST

VictoryPC profile image
VictoryPC

Truly Amazing....

tallguy2 profile image
tallguy2

Incredible. Thank you for posting!

Captain_Dave profile image
Captain_Dave

Thank you for the inspiration!

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