Humanity: I’ve spent the morning... - Advanced Prostate...

Advanced Prostate Cancer

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Humanity

Dachshundlove profile image
24 Replies

I’ve spent the morning browsing posts here and I felt compelled to share a feeling that I have about this community. It is a refuge, populated by wise and generous spirits, sharing their time and love with strangers and friends they’ve yet to meet.

Thank you to all who thoughtfully respond and share. The ripple of what you give reaches further than one can comprehend. Cheers— To Humanity

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Dachshundlove profile image
Dachshundlove
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24 Replies

Having stage 4 has taught me what is important and I'm sure that goes for the others here. We also know and understand what other people are going through so we can offer support from the "inside".

Dachshundlove profile image
Dachshundlove in reply to

It’s a humbling disease. One only understands it fully when one has walked in these shoes.

dockam profile image
dockam

Hi,

A great post! I've become way more engaging, friendly, optimistic, and interactive post #stageivpca dx in 01/2015. A week after my son/his wife and I did the Sarria to Santiago Camino (The Way) in Spain - 112km (69.65 miles). He asked my wife " when did Dad become so talkative?" :-)

I've said to my dental patients about my Camino (journey) that I feel that the web can be such a sewer, but also there are online forums such as this one that has connected world wide PCa victims and or/ family. Where we celebrate success and, unfortunately, mourn the loss of our "Brothers"

If you check my previous posts, most have been positive about things I've done etc and not much of a downer. Wanna post as much positivity as I can

I've also become more proactive about getting squeamish men to get screened via a back bib sign on my back at marathons.

Life is still beautiful even with PCa.

Fight on y'all

Randy

Dachshundlove profile image
Dachshundlove in reply to dockam

Dockam:

I probably speak for many, when I say— You have been such an inspiration In sharing your path here. It’s hard to imagine that the old you (the You before PC related enlightenment) was going about life quietly...

I find myself interjecting the “male cancer” elevator speech wherever I can. Your races with you decked out in your PC educational regalia are a constant reminder that the way forward is to take what we know and share it to prevent the unnecessary suffering of others. A focus on helping others creates a purpose for this suffering.

Darryl profile image
DarrylPartner

Thank you. I and my colleagues at Malecare work very hard to make our communities helpful and welcoming. Posts like yours give us the energy to continue.

Dachshundlove profile image
Dachshundlove in reply to Darryl

Dear Darryl:

Thank you for creating and maintaining this sacred space where we can all share the struggle and in doing so, elevate each other. Access to good information, empowers people, and changes lives. Your work matters enormously.

Dalipup profile image
Dalipup in reply to Darryl

Darryl, this site is a blessing in so many levels! Thank you for your hard work!

j-o-h-n profile image
j-o-h-n

What about Humormanity?

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 11/25/2019 5:43 PM EST

Dachshundlove profile image
Dachshundlove in reply to j-o-h-n

Humormanity draws us back when we are out on a ledge. A critical coping tool in the face of adversity. Thank you j-o-h-n

Schwah profile image
Schwah

Great post. I suspect there are a lot of guys like me that would never be caught dead in a support group. Seems to touchy feely. But coming here is that support group. I visit every night. Thx all for your contributions.

Schwah

Dachshundlove profile image
Dachshundlove in reply to Schwah

It’s the best support group ever! We All have greater PC IQs because we have a place to share what each one of us has learned. Collective intelligence is powerful.

Gjames728 profile image
Gjames728 in reply to Dachshundlove

How does one join this support group?

Thanks! G.

Dachshundlove profile image
Dachshundlove in reply to Gjames728

Good morning Gjames728:

Share your prostate cancer story (ideally by placing it in your profile here). Most (not all) people here have metastatic prostate cancer. That is to say, a cancer, that is Not, based on current available treatments, likely to be cured.

And visit as often As you feel compelled to. Respond where you have something useful to add. Some people are not comfortable coming out with their stories. I personally think that finding words to express our troubles helps us to move through them. Welcome!

siouxbee19 profile image
siouxbee19

Well how lovely was that post! Thank you so much and back at you! And @Dachshundlove , it's all in the name!! 🐾♥️

Dachshundlove profile image
Dachshundlove in reply to siouxbee19

Hi Siouxbee19

Is that a long haired Chihuahua in your profile picture? Adorable💛💛

siouxbee19 profile image
siouxbee19 in reply to Dachshundlove

Yes, thank you very much! That is my precious Annabelle, one of my gazillion rescue animals. She just turned 18 human years in October 2019! I guess I'm doing something right! 🤔😉

Her twin brother, Rex, went to the bridge a year ago, our Molly left in July 2018, and our beloved Dachshund, Odie, unexpectedly had to be pts after a shocking cancer diagnosis.

It was especially hard for my dear husband (the reason for my presence here) because Odie was his sidekick! And this all happened right after my husband's diagnosis. And you know that Dachshund personality! ♥️

Sorry to ramble, can ya tell I love my dogs (and my husband 😉😀)?!

laclique profile image
laclique

I read you guys everyday... I am in awe of all your knowledge and generosity with each other. Thank you ...you humble me and give me faith . I confirm that I am one of so many invisible persons that treasure your posts... sadly I have no knowledge to offer your community as, you might think it strange, my partner from day one decided that his oncologist was in charge and never asked any questions concentrating on living his life fully ...

He is 54 and has been diagnosed with bone metastases 3 years ago., Done Taxoderm ,radiotherapy and ADT and undergone angioplasty and hip replacement in France ... indipendently and with the help from your informations I was organising to get him to Germany for PSMA litetium therapy but yesterday they found compression on his spine bone marrow...waiting to see whether they can avoid back op with radiotherapy and other meds...it is a tough road you guys are on but what unbelievably great souls you are. Thank you from the bottom of my heart and sorry for my uninformative lenghty message.

Dachshundlove profile image
Dachshundlove

Dear Laclicque:

Each and everyone of us has knowledge to share. I hope that the radiotherapy can prevent the need for surgery.

Not a bad thing to focus on life and enjoying each day. Cancer treatment can become an obsession. When we become too focused on illness and things out of our control it can compromise our enjoyment of life.

We are all here together and we will get through whatever is coming as a team!

As the saying goes - pay it forward. That's what this forum is about.

larry_dammit profile image
larry_dammit

Very well said, this brother and sisterhood I’d a reason I get up in the morning. I was so lucky to find it when I did, you guys and gals are my inspiration and lifeline that keeps me going ❤️ 🙏🙏🙏🙏

Pierreb profile image
Pierreb

Couldn't agree more. Thank you all. Your time, knowledge and wiliness to help is invaluable. I can not express fully express my gratitude to all you. Thank you all and have a good Thanksgiving!

leo2634 profile image
leo2634

Fighting the Beast with knowledge and compassion of my Brother's in arms is way better than going it alone. Thanks to all of you God Bless.

hansjd profile image
hansjd

You've said it all and you've said it so well. This forum is absolutely the best. We read it every day and have gained so much knowledge and welcome advice from the wonderful men and women on this site who must spend hours and hours researching and sharing what they find and what they have experienced. That's the power of the collective. None of us could hope to individually collate such a wealth of information. Thank you all for your wisdom and your generosity. You inspire us and give us hope. God bless!

Dachshundlove profile image
Dachshundlove in reply to hansjd

We are so blessed to have internet access and this amazing space where we can come together and be of service to each other.

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