We finally have found an Oncologist after 2.5 years dealing with my husbands Advanced Prostate Cancer. I have done a lot of research on repurposed drugs and the protocol in London just makes sense to me with little downside. There is a video on UTube, I could not get to post about Care Clinic. I ordered drugs from abroad that we could not get prescribed from docs in the US, but I'm too worried about giving them to my husband without a doctor monitoring. We were about to go to London, when I learned Care Oncology Clinic was treating in the US!
Decisions on care are very personal! But I wanted to share our case managers name Jason Butcher 800-392-1353. He gives a free 30 minute consult. Our treating Oncologist is Paul Zang with MD Anderson. His resume is impressive. Costs I feel are very low. Drugs are US made and costs $60/month tailored for each person. This treatment can be combined with Chemo or other treatments. Hope this may help someone. Best wishes to all.
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paige20180
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Not at all. We haven’t had our appointment with Dr Zang yet but if you look at the CareOncology home page they list metformin, atorvastatin, doxycycline and mebendazole. The website explains why they feel these drugs may have potential promise.
Thank you. I am taking Berberine in place of metformin, red yeast rice in place of Atorvastatin, doxycycline in place of doxycycline and fenbendazole in place of mebendazole...pretty close to their protocol;.
We are working with another integrated doc that focuses on PC and makes other suggestions with pharmas. I feel it’s really worth being in this program to receive these medicines from a US pharmacy since most doctors won’t support you trying the protocol. We were between a rock and hard place ordering from abroad not knowing what you are getting. $60/month is worth US made drugs to try and ordering drugs was expensive.
We were told the protocol is slightly tailored for each person. Our consultant Jason, said supplements and diet would be discussed . There are other prescriptions you could add if you wanted on your own. I’ve added aspirin. I read a small dose of cimetidine (anti acid) increases effect of medendazole and more MZ is found in your plasma. We check his kidneys, liver full panel monthly and if his body isn’t handling this, we can always stop.
We do lots of supplements from Life Extension . I like them because a doctor told us how and when to take their supplements. like Cruciferous Blends, Vit D and Vit C daily and Vit C intravenous infusions 2X a week with an antibiotic. Reseveratrol, pomegranate, reshi, blueberry, DIM, i3 carbonyl. Pecta sol.
I would think people that do COC would be trying other things.
I’m not advocating anything. Treatment is very personal and each man needs to do what he feels is best. We chose to do this because me husband is off all medications. He sees a great dr at Mayo in MN. My husband was taken off lupron to see if radiation worked. He grew 2 metastasis so fast it was terrifying. The spots were radiated and his PSA goes down by half every 2 weeks. We have a PET in November to make sure no new metastasis have formed and inflammation seen in August was just inflammation and not cancer. He was doing Vit C infusions but I wanted him on anti inflammatories and an antibiotic ASAP.
I know Lyme is not cancer but my friend went from nearly crippled back to a vivacious woman. She sees the doctor featured in "Under Our Skin". This doctor was attacked and the state he practiced in tried to pull his license. He dared to do what he believed in and to think outside the box. My mother also stopped rheumatoid arthritis using pharmaceuticals not typically used and stopping sugar. Because I have seen loved ones stop symptoms and live healthy lives, I am probably more open minded.
It’s early but 7 weeks after radiating a huge spot on T6 and small spot on a femur with a PSA doubling every 2 weeks, we are nearly undetectable.
I feel while we are at this stage on no drugs what so ever, waiting to see if he forms any other metastasis, we should throw anything we can at this shit. It can not possibly hurt more than more toxic drugs that come down the road. His dr thinks he may be cured if we zap immediately anything that tries to grow.
Our quality of life is so much better feeling like we are fighting as best we can. I do not suffer from anxiety. I can not take medication and I have never had anxiety in my life. Lately, I don’t worry to death, and can focus at work and I don't worry our kids. We have hope so we have benefited just from being less fearful.
Some say this doesn’t work but there are stories of complete remission. Maybe it was in conjunction with chemo and other drugs. But I read from several people on line they feel it has helped. We have nothing to lose but about $1,800 a year. Worth us trying just for the placebo effect we’ve already benefited from.
But again, I respect whatever others decide! This is a nasty, horrendous disease. I judge no one as they go down this road. Take care all of you.❤️
You said he grew 2 mets after stopping Lupron. Was that determined by a PSA increase followed by a scan or did you just get a scan at some time span after stopping Lupron? Also what type of scan was that?
Dr Kwon-Mayo completed radiation 6/18. Husband was on Lupron 4 months prior to radiation, during radiation and for 13 months after radiation. Lupron most likely wore off July 1, 2019. PSA done 7/30/19 .3 up from undetectable. 8/12 PSA 1.3. Choline 11 PET at Mayo showed a "huge" lesion on T6 and small spot on femur. Dr Kwon couldn't believe my husband could not feel it. It was starting to impact his spinal cord. The two lesions were radiated 4 days later. PSA is .33 7 weeks later and reduces by 50% each 2 weeks.
It's been difficult getting the choline 11 PET paid for. We win on appeal with BCBS proving the scan is medically necessary. My husband had a bone and CAT scan 2 years ago at Hopkins. They could not see a 1.2 cm tumor and allowed the disease to progress. From that experience we are firm believers in imaging.
We will probably fly to Germany for a PSMA Gallium if we need routine scans to verify radiation worked. We are set up with Saarland University in Homburg just in case my husbands disease gets out of control. We can also receive a PSMA scan for $1800. I doubt my husbands next Choline 11 will be covered by insurance with such a low PSA. The choline PET at Mayo costs $14,000 out of pocket.
We may opt to do no scans or a MRI if PSA goes undetectable.
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