What to Ask?

[Blair77]

My 49 year old husband dx 2017 de novo metastatic is seeing Dr Schulz this Thursday. He’s done Docetaxel, he’s on Lupron and is currently failing Xtandi. What to ask for next steps? We are trying to go on a clinical trial at UCSF but things are moving slowly.

[CantChoose]

clinicaltrials.gov/ct2/show...

[Blair77 in reply to CantChoose]

Yes! I’m totally wondering about that trial myself!

[Tall_Allen]

What's the clinical trial?

[Blair77 in reply to Tall_Allen]

Keytruda and LU 177

[Tall_Allen in reply to Blair77]

Good trial - as you know, they haven't started recruiting yet. I hope he gets in.

[Hidden]

There's also the VISION trial. UCSF is one of the locations for the trial. The trial is for LU-177.

clinicaltrials.gov/ct2/show...

[tango65]

I believe he qualifies for the Lu 177 PSMA trials and for the Ac 225 PSMA trial:

clinicaltrials.gov/ct2/resu...

clinicaltrials.gov/ct2/resu...

[Schwah]

Scholz is my dr. I think he awesome. He should be able to set you on a good path

Schwartz

[drfabio]

Hi Blair. Mark Schulz is great and should be able to help here. The questions are going to be related to blood counts, if the cancer can be demonstrated on a PSMA imaging study, and a few other parameters to see if your husband qualifies for one of the Lu-177 clinical trials. Let us know if you need assistance beyond what Mark is able to provide, as I have connections throughout regarding the G68 PSMA imaging and Lu-177 treatments, being directly involved in these. Our team provides direct support and navigational help that is generally not available through other clinics, and we co-manage a number of folks with the POS team, providing Integrative Onocology care. Just wanted to you know that you have resources at your disposal if you need them. drfabio.com

[Magnus1964]

Other ADT drugs are another option, casodex, zytiga, etc.

[Blair77 in reply to Magnus1964]

Thanks, but he’s been through those too😕

[HopingForTheBest1]

What about genetic testing, which can help determine viable treatment options?

[zengirl]

Blair-

I am with you. My husband also goes to Schulz. We got a call in to UCSF. There are a couple of trials coming up but things are suspended right now, due to lack of medication which comes from Germany. I have the woman's direct phone number if you want it. Let me know if there is anyway I can help you. Please.

[Blair77 in reply to zengirl]

So sweet of you 🥰

[zengirl in reply to Blair77]

We are in this, together.