Difficulty handling

[Kevinski65]

When I come in to this site I freak out. I can't believe what I'm reading. Some people are doing well and some die in 2 years after going through the ringer. There's much valuable information in here. I took alot of supplements. I guess I'm doing well by today's standards. Can't figure out why others are not. Good luck and prayers for all.

[Magnus1964]

It's a crapshoot. At diagnosis my Gleason score was 9, PSA 39. This is considered to be aggressive. That was in 1992.

My advice is become a vegetarian, get lots of exercise, and research supplements, i.e. vitamin D3, IP6, green tea, etc.

[Kevinski65 in reply to Magnus1964]

Thanks for writing back. I too was at your level. My PSA 31, Gleason 9, M1, stage 4, doubling time 5 months. I'm 7 years out. I am on Lupron and Xtandi. The first 2.5 years just Lupron , Xtandi was added after that. During the first 2.5 years I was taking every supplement you can think of. I took 8 at a time then after a month switch to others. Now I just take Zyflamend. They've studied Zyflamend whole body at u of Washington. I do think these supplements help but only if stick with it. Also, there must be some genetics involved. They're finding variations like ar-v7 at John Hopkins. I'm out of my depth here but prostate cancers are not alike. I'm no health care practitioner, but I know everyone is different. There's lots of side effects to Lupron and Xtandi. No one gets off Scott free. Good luck to everyone.

[Magnus1964 in reply to Kevinski65]

Why switch after one month? My rule is take a supplement until my PSA started to rise again.

My thought is the cancer finds a work-around to supplements the same way it find a work-around to ADT drugs.

[MJCA]

I understand what you say. Some things are difficult to read. Maybe I am simplistic. I stay informed. I put trust in my doctors. I do what they say. You can read study after study. My personal philosophy, the more crap you put into your body, the higher probability of more side effects. Best of luck. Stay cool.

[j-o-h-n]

Kevin it's like this.... some people ski and no problem some ski and break a leg. It's scientifically called "shit happens".

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 03/02/2019 8:02 PM EST

[Kevinski65 in reply to j-o-h-n]

Lol... amusing outlook but very true. I guess what gets to me is I don't really know the details. Did or does this guy smoke, drink alcohol, eat red meat. Now they're finding variations in the genetics of PCa. I'll just have to deal with it. The information on this site is valuable. Maybe soon scientists will at least turn this into a long term disease for most men.

[j-o-h-n in reply to Kevinski65]

From your lips to God's ears.

I attribute mine from watching too many pornos.

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 03/03/2019 10:32 AM EST

[Zetabow]

I don't know for sure as this is fairly new to me but some of the reading I've done if the Mets gets into the Marrow (as in my case) it's seems the prognosis can be quite poor, in Nov my Oncologist said from his experience 44 months is about average for the level of spread I have in legs and Lymph nodes. I'm not overweight, fairly young (55) and very fit (pro coach/sportsman), so I'm just looking at it as a number and live every day as full as I can.

Just trying to find that balance of coming to terms with my fate but not quitting either.

[Drcrunch in reply to Zetabow]

Had similar diagnosis, but psa was 3000. They said six months if lucky. It is now nine years and and have not had pain since nine years ago. They actually took me off all medicine for year and a half for intermittent vacation. Stay positive.

[Kevinski65]

Amazing results for you...

[Grumpyswife]

Well my guy has continued to eat and drink pretty much whatever he wants including Yuengling Black and Tan and Fireball. He has no idea what a healthy diet is. He finally quit smoking on the sly two years ago. He has always been skinny but seems to be getting skinnier and has been diagnosed with pCa for 18+. His comorbiteties will probably get him first

[dockam in reply to Grumpyswife]

Haha, was in DC for a PCa summit a couple weeks ago and had Yuengling Lagers -Yum