Thinking of firing my current MO, in all fairness he has told me each of the 2 times I have seen him that he is not up on prostate cancer meds & treatment. Asked him about getting a Decipher test done, he did not know what it was and told me usually the urologist orders the gene tests. Half the time I am there he is searching through the NCCN guidelines when I ask a question, not instilling alot of confidence yet.
I am doing fine now I think, just had brachy and have started EBRT, taking ORGOVYX but wondering if a 2nd gen ADT should be added as suggested by the radiation oncologist who did the brachy. I am Gleason 9 with extra prosthetic extension, supposedly localized from the regular scans done. Kind of at a loss,small town not alot of choices. Should I just find a good urologist or do any MO's work with folks remotely? Anyone working with a MO that way? I had hoped the local radiation oncologist who is doing the EBRT could handle but he said he doesn't get involved in the drug side of things.
Maybe a decent primary care doctor but right now I have a PA who is a great guy just don't know if he would want to handle this or have the knowledge. Guess I'm just venting at the moment back from a very discouraging visit with my MO. Thanks for listening.
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watertender
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I know that Winship Cancer Institute will work with your doctor locally to provide your oncology care. Even though I live relatively close (about 45 mins away from my Oncology Team), they offered to let me stay closer to home and work with my regular doctor…
Your MO doesn't sound very useful in treating your prostate cancer. Maybe you'd be better off with a good urologist who has extensive experience treating men with prostate cancer. That's where I am at. Primary care doctor or PA? Nah, you need better care than that.
Hi Watertender, I do not even have a MO yet. I just received my brachytherapy boost this past Wednesday. I have been on ADT (6 mo. Lupron + Casodex 50 mg daily) since September 06. My initial PSA was 14.5 and T was never baselined. Just before brachytherapy, my PSA dropped to 0.34 and T is 15. Next week I will start my simulation for 25 sessions of IMRT, same as what you had. If our PSA drops and stays low, do we even need a MO or are you just planning things for later on down the road?
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