I'm so upset, cannot request a visit, the phone system kills my request!
Dana Farber is subsidized from grants, they get billions from all over, but they cannot answer my call, a patient with PCa, this is beyond belief. I will expose them, they are not on our side.
I'm so commited to make account for real cancer patients in need, any subsidized cancer organization should have a way in, Dana Farber is typical of business only way. time for us patients to demand more!
I ask my doctors for their emails. Some will, some won't. I find they are more likely to respond to that than a phone call. I keep emails very brief (just the facts) and don't send them if an office visit is more appropriate. It's much less frustrating than playing phone tag.
I did have email, but lost it all, do you have a direct contact, I'm a bit lost ramping up with my PCa, a tough guy that got weak at moment...
Thank you TA, you are so awesome...
I had no problem getting through...the woman was real friendly... then she asked who referred me and I said Dr. Nalakrats at which point she threatened to kill me and even went so far as saying I was now on their hit list, so I went out and bought the biggest Gator I could find and just left them a message....come and get me MF's.
Gus
No worries, the Gator will retreat when served with fresh bagels, you are welcomed...
Yeah, I'm a tough guy, but I'm lost at the moment , looking for some help from my family here, can anyone give me a working number to Dana Farber?
Nala, I expected more from you, don't play with me, we are all brothers in arms, please help me contact Dana Farber, this is what I'm asking help, you know I love you guys...
Try 617-582-9725 fro DFCI scheduling in genitourinary oncology. At least that's what I have in my phone. I am out of the country or would call to confirm that's the correct number.
That's the right number.
(I was just there yesterday.)
My first MO set up my initial consult at DFCI for me. I haven't had any trouble getting through since.
I got connected, the problem was an office staff shortage last week, thus the endless phone tag loop.
Thank you very much, sometimes can get a bit dramatic at times, the trauma of being a Yankee fan in Boston...
By the way, my first team is Lahey Health Systems, simply because PCa treatments are based on standard protocols. And I can talk to my team nurse anytime and have MyChart access, an Web health personal record portal. All test results and images are available, the all mighty Dana-Farber does not offer this service..
Your DFCI info should be available on the Partners portal. patientgateway.partners.org
Ok, got on it, MyChart as well, Epic is ruling the market..
World Champions! 😎
Yankees needs a bunch of pitchers, not much fun seeing the Red Sox beat them all the time, I'm not going to Fenway Park anymore. 
Sorry you are having a hard time. The sometimes helpless feelings of having this disease can bring on frustration and panic that is hard to control. What has helped me the most dealing with PCa is gathering knowledge and understanding of treatments and of course time with the beast. I wish you peace and more importantly progress in finding what you seek.
I'm a warrior, but sometimes get lost in the battle, thank you for the kind words, it helps so much... 
It's that NY blood.... we are patients with no patience.... you know what they call a split second in NYC? It's the length of time between the traffic light turning green and the time the dickhead behind you beeps his horn.
Good Luck, Good Health and Good Humor.
j-o-h-n Friday 01/11/2019 5:46 PM EST
Please, please don't get me started about driving in Boston area...
Anyway, got my visit today, was great, PSA 0.38, Testosterone nowhere to be found...
Wow you hit the jackpot... driving in Boston?.... it's like playing Russian roulette with a loaded gun. The cars they sell in New England are not equipped with directional signals. And the streets in Boston are just wide enough for Paul Revere's horse. Better you than me.
Good Luck, Good Health and Good Humor.
j-o-h-n Friday 01/11/2019 6:09 PM EST
Genetic testing 
Need Boston area help 
Aggressive Prostate Cancer and an angry patient
Abiraterone / Docetaxel
Still here and looking forward to 2020
