Baby it’s hot sometimes : I’m on the... - Advanced Prostate...

Advanced Prostate Cancer

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Baby it’s hot sometimes

Excell profile image
20 Replies

I’m on the hormones. Now 1 month, and I’m having hot flashes Which Is very annoying, especially at night when I’m trying to sleep. How long will this happen will it continue until I am off the hormones and have rebuilt my body or is this something that I must get use too. Or??????

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Excell profile image
Excell
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20 Replies
FCoffey profile image
FCoffey

They never went away for me. After 6 months of never getting into REM sleep because the hot flashes woke me to sweat-soaked sheets every 20 minutes, I took a break from Lupron. Quality of life matters to me.

Once testosterone levels were in the normal range the hot flashes were the last toxicity to disappear. They took 10-14 days.

During my second bout of castration I tried gabapentin. It helped, initially, but I had to keep increasing the dose. I started at 100 mg and got two nights sleep before the hot flashes returned. 200 mg bought another few nights. I ended up at 600 mg and getting no sleep again.

I'm discussing use Depo Provera intramuscular injection 400mg ONCE with my oncologist as I resume the torture for the third time.

Good luck. I'm told that my case is exceptionally severe. "Multiple Grade 3 toxicities" is what my oncologist wrote in my file and in a letter to my PCP. Hopefully your hot flashes will diminish or respond to gabapentin better than mine did.

Tall_Allen profile image
Tall_Allen

It may get better over time, or not. There are several solutions (none of them perfect):

• Acupuncture

• Estrogen patches

• Effexor (venlafaxine)

• Gabapentin

Some doctors favor Megace patches, but that has more risk of side effects. "Natural" remedies have bombed out in clinical trials. Estrogen has other benefits (e.g., reducing bone loss, reducing testosterone production), but it encourages growth of breast tissue, so tamoxifen should be taken with it.

Sherpa111 profile image
Sherpa111 in reply to Tall_Allen

Thank you.

Shooter1 profile image
Shooter1

Tried Megace, worked for a while. Found venlafaxine worked better for me.

Essex488 profile image
Essex488

Try using a fan on your nightstand to cool you.

in reply to Essex488

Ceiling fan.

Fitzbruce1 profile image
Fitzbruce1

I am 5 months into hot flashes which I prefer to call Power Surges. They were so powerful for the first few months but they have really slowed down recently. Having a small fan next to your favorite chair and on your nite stand has gotten me through it quite nicely. Good luck n Power Surge on Brother!

DaC00tie profile image
DaC00tie

The hot flashes bothered me....a lot....the sweat would literally drip off my face. And for some reason, when I first laid down in bed I would get a hot flash. My first Lupron injection was for 30 days, my second was for 3 months, I had my third 3 month injection about 3 weeks ago. Ever since then they have all but disappeared. I still get one when I exert myself (work out). I had my first radiation treatment yesterday and asked my new radiation oncologist about this. His reply was that for some reason the makeup of the Lupron is inconsistent between doses, he doesn't know why. He said it could either be that or that my body has adjusted to it after 5 months. I don't have any technical data on it, I'm just relating my experience.

Tjc1 profile image
Tjc1

I take Mgace also called Megestrol and bye bye hot flashes. Some say magace promotes pca growth but im here 8 years later after Dx with no hot flashes. I'll throw evey med i take away but not my magace! I tried stopping it a few times and the hot flashes returned.

leo2634 profile image
leo2634

10 months in Zytiga hot flashes all but gone after the 4th month. I wish I could trade off the other side effects for the hot flashes again .

EdBar profile image
EdBar

Estradiol patches work great for me, I was getting severe hot flashes coupled with a sickly feeling happening hourly (I counted 15 one day). Dr. Myers put me on estradiol patches and it worked like a charm. Boob growth has been minimal, I exercise a lot and keep my weight in check, and at my age who cares, sure beats hot flashes.

Ed

I found a fan on me at night helped!

JimVanHorn profile image
JimVanHorn

Hot flashes became milder after four months on Lupron. After two years they were very manageable and disappeared after 4 years.

I use Indica before bedtime. It allows me to sleep the through the night without any hot power surges.

leo2634 profile image
leo2634 in reply to

I use a few glasses of Coppala wine before bed. I still somewhat get hot flashes but I don't care.

j-o-h-n profile image
j-o-h-n in reply to leo2634

Cheers....

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 12/06/2018 7:01 PM EST

Hawk56 profile image
Hawk56

Just finished 18 months of Lupron, last 90 day shot was in May. hot flashes, intolerance to heat and increased sweating still in play albeit less, still, annoying. My wife learned to appreciate dual climate controls in our cars. Other than tolerating these side affects, only a fan blowing on me would help or stepping outside on the back deck in winter! There are drugs which may alleviate somewhat these SEs but I figured since there was no disruption to my life, work, travel, exercise, just dealt with it.

Joeym1040 profile image
Joeym1040

Similar i had bad hot flashes every 45 mins, 24 hrs a day. Tried soy, accupunture, Chinese herbs. I still have them, but not as often and not as severe. This since 2011. The only thing that worked for me was venlafaxine (effexer), which was recommended by a

nurse, not the Doc. We are all different, keep trying until something works. Good luck.

tallguy2 profile image
tallguy2

The generic venlafaxine eliminated about 90% of the sweats and hot flashes for me.

j-o-h-n profile image
j-o-h-n

Geez I guess I hit the Hot Flash jackpot... cause I had very few in the beginning. It's the luck of the draw... Like getting fxxxing Pca.

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 12/06/2018 7:04 PM EST

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