I had active surveillance between 2007 and 2009 at UCSF. Their prominent doctors/researchers did not follow up with me in a timely manner to advise surgery after the tumor upgraded and expanded. As a likely result of this delay, though my surgical margins were negative, I now have a relapse 9 years later. Also my surgeon at UCI was adamantly anti-radiation, so I missed another opportunity early-on for that. MD Anderson apparently mis-read an MRI to boot (see my other post today).
For those on or considering active surveillance, I hope some of you will realize the risks in doing so and realize that ongoing prompt, thorough communication and assertive questioning is necessary to be maintained for best chance of success. Going to top Comprehensive Cancer Centers and seeing top doctors gave me false confidence. Had I known all this in advance, of course I would never have entertained it and now wish I had never heard of the concept to tempt me to go this way. Ultimately my RP resulted in none of the horrendous side effects my uro had scared my off with, so realize that in good hands, surgery may not be as bad as you think.
I hope this helps someone.