Have the ATM germ cell gene defect with Gleason 9 DX(so thinking BT/radiation may not be a good choice). Trying to wrap my brain around RP side effects. So ED is pretty much a given, but I am wondering about urinary incontinence. I have read its as high as 10% long term. Was wondering if any body has any info/personal experience on this. I think I could cope with one hit (permanent ED, ugh)but not so sure if I could handle two(permanent urinary incontinence.) Any input here greatly appreciated.
As an aside, has any one had the The Retzius-sparing RP approach? Any input greatly appreciated.