Seizures?

[patriciap]

My dad has stage four prostate cancer. Three days ago he had what looked to my mom like a 8-10 minute seizure. He was rushed to a Brooklyn hospital and given anti seizure meds. We eventually transported him to Sloan er where they admitted him. Mri of brain says no cancer in there and also no sign of stroke or seizure. Since episode he is have memory problems. They did a lumber puncture and checked his fluid. Only abnormal thing I saw was that his protein level in central nervous system fluid is high... memory is still compromised dats later. Can’t remember the episode at all. And was having trouble remembering name of hospital , former presidents. Things like that. Seems like it is getting slightly better than before when he couldn’t remember he had cancer or his grandchildren

Any thoughts? I’m scared it’s spread to the fluid but I haven’t heard anything yet. Any reason why protein would b up... any ideas or thoughts to ask dr would be appreciated. They are discharging him today but don’t know whatsvwrong

[YostConner]

Seizures are a potential side effect of Xtandi. Is he on it?

[patriciap in reply to YostConner]

No. Zytiga and Lipton and zometa

[phelie]

My husband, advanced prostate diagnosed 8/16, had spinal tap to check fluid which didn't show cancer cells but high protein. He had already experienced cranial nerve damage to the left side of his face. He did have lesions on the skull base. Had 14 radiation treatments to his skull the end of February. Please have Drs keep checking his head and watch for numbness in the face or ear pain. Hoping your father does ok. Good luck.

[patriciap in reply to phelie]

Thank you. Check numbness or ear pain because it may signal lesions?

[phelie in reply to patriciap]

Yes those are signs of skull mets. I truly hope he doesn't get those. My husband is getting hospice care now.

[boseley]

I was diagnosed with PCa Sept 2013 and went on Lucrin, as it was outside the capsule. In Sept 2016 I had a seizure at 0230 while asleep. About 15 minutes long. CT scan next morning showed no metastatic cancer in head so sent home. No seizure medication prescribed. PSA was only slowly climbing at that time.

Had RT (62 Grays) in Oct 2016.

However in January 2017 had a major (grand Mal) seizure at 11am and reseized at local hospital. Spent 5 days in base hospital.

As my PSA was stating to rise quickly I was changed from urologist to MO . He could find no relationship between PCa and seizure so has treated them as two separate entities.

PSA started going up rapidly late 2017 so tried Casodex for 2 months to no effect so was put on Zytiga Dec 2017 That has dropped PSA from 72 to 4.6 now.

Am on Leviteracetam anti seizure med and had no more seizures since, and am driving again. Relatively minor side effects.

I am intrigued that someone else with PCa has also had a seizure.

[patriciap in reply to boseley]

They put him on an anti seizure med as well. This is all so strange. Thank you for answering. If we learn more I will update you!

[Mathes72]

Was he on xtandi?

[patriciap in reply to Mathes72]

No. On lupron and zytiga

[JoelT]

Pat,

I just noticed your post. You said that your dad was taken to a Brooklyn Hospital and then went to Memorial, this means that he is in the city.

I wanted to make sure that he knows about our support group for men with advanced PC that meets twice a month in the city (on the first and third Thursdays of each month). He should consider attending, he will find a bunch of other really caring and informed men to give him support, love and information.

Joel