My husband and I both write on this post. This week he decided on an oncologist. The treatment is Xtandi. I've been following this blog and have read that many of you are on this medication. Not many variations in treatment out there. I'm feeling anxious as we head down this road and wondered if some of you can give some feedback /advice in regard to this new step into what feels like a different way of living?
Thank you. It feels incredible to have a place to go and share this! Blessings
My father has been on this drug since 2 months,3 tablets daily, no side effects other than what was already there from 6 monthly Eligard(hormone treatment) shots. He already had chemo, radiation and prostatectomy over a span of two years. PSA is <0.01 in test done last week. He has been advised LFT, sr. creatinine, CBC , PSA test every month with this drug.Hope your husband has good response, best wishes!
Yes chemo and hormone were his first treatment, zoledronic for bone met was given along with chemo .He had radiation 1 month after chemo ended. recently had surgery to remove prostate due to recurrence at same spot in prostate.
I have been on Xtandi since December (4tablets daily) I have also been on Lupron since June. Started taking the Xtandi in the morning but found myself falling asleep driving to work. Changed to evenings and much better. Need to keep up the exercising to keep the fatigue minimal. I’ve been undetectable since July so I feel lucky.
Four years plus into this “journey” prostatectomy —— Lupron fail—orchiectomy —- Casodex fail ( despite exercise fatigue constant)—Xtandy now four months. Feel good except hot flashes are the same-PSA .26. I have joy again. Miracle drug for me!
I have been in this battle for almost six years (please see bio for complete treatment history).
Have now had Xtandi twice. First time in 2015-16 for about 12 months before failure. Then radiation and chemo. Chemo with Docetaxel/Carboplatin reset remaining cancer cells so a rechallenge with Xtandi has been working for the past 2 months. I take my 4 pills in the evening before bed with few side effects.
Good to hear you got a "reset" Mark, my onco says that may be my next play if/when Xtandi fails. He also mentioned T therapy to reactivate it, we'll see, no rush.
I've been taking Xtandi for over 2 years now, PSA remains undetectable, also taking Lupron and Avodart for over 4 years. Click on my profile for the rest of my treatments during the past 4+ years.
SE's that I think can be attributed to Xtandi are fatigue, aches and pains, dull headache, and memory and cognitive issues that all seem to have increased the longer I've been on it but if it keeps my cancer subdued, I'll deal with it.
hiya Ed - i know you, i think. glad to hear you're hanging on, buddy. i finally got that damn biopsy, GL 4+3, with 60% of all tissue sampled = GL 4. Probly opting for CyberKnife, 5 sessions of high-dose fractions. after that, going to Mayo for choline11 scan with this guy: youtube.com/watch?v=Nkqizmv... - dr. kwon. -- subtle humor, sharp.
On XTandi for a month following six infusions of taxitere. Also on lupron and Zometa. My PSA is continuing to drop. Stamina coming back, no new side effects, and getting rid of the old ones..
thank you all. I feel like I need to hear the "good news" Feeling more hopeful
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