With Hope

[Mota59]

Stage 4 advanced Pca with mets in the bones Cancer hit me April 17, 2018.

[ctarleton]

What do you hope for, Mota59? What gives you the most concern right now? What kind of support do you need from others right now as you begin to live with your new reality? ....

These might be some of the more important questions for you to ponder and discuss during the next few months and years.

The other "details" of your medical "stuff" will come to you in due time, as you keep sharing, asking, and learning.

Welcome.

Charles

[Mota59 in reply to ctarleton]

Thanks, its funny my wife encouraged me to seek out a support sight, and i cant believe how you all help, with the encouragement that gives the hope to continue to step foward, thanks

[Jmhanshaw]

Sorry to hear of your diagnosis. I know the feeling as last year I was also surprised as well with a stage 4, Mets,lymph node invasion, PSA over 300. I immediately was put on Lupron injections and did docetaxel chemo then radiation, no surgery. My PSA is now .063. So, early aggressive treatment has dramatically lowered my psa. Chemo went well with no awful side effects. If you do chemo You might consider wearing cold gloves, put feet in ice (supposedly reduces chemo from reaching these areas to prevent peripheral neuropathy) and mouth (to prevent loss of taste). peripheral neuropathy has been the worst side effect for me. Keep your chin up through this as all is not lost.

[Mota59 in reply to Jmhanshaw]

I appreciate and welcome all responses, thanks you, im still hoping for no chemo, and at least now i have some insight, thaks

[Dan59 in reply to Mota59]

You might tell what your details of diagnosis , such as psa, Gleason score, whether you had positive scans or not and what treatment you are on, Learn all you can , knowledge is power, wish you the best

Dan

[Mota59 in reply to Dan59]

Yah, still learning how to to work this sight, i thought i had already put details,

[Dan59 in reply to Mota59]

What treatments are you doing , and how has your psa responded so far, several guys with starting psa 800 on this list, if you need some hope check out my profile

[Hidden]

I’m 3yrs in front of you Mota59... welcome to the pack.. you will adapt to living with APC. It’s a game changer.. Love what yo7 love in order to endure what you must to walk more days in the sunshine.. Your in the eye of the storm . You’ll get out of eye and you’ll keep paddling to live life to its fullest. I’m looking forward to several months from now when your on the othersid3 of treatment with good news... Stay exercising and active even while in treatments.. fatigue is an issue for most of us.. You will need to dig deep to push PC down. But it is very doable.. Now more than ever , be proactive for your health..

[pakb]

I feel fortunate that none of our docs gave us a stage or any life expectancy when my husband was diagnosed this past August. As all my friends in the oncology field, and lots on here, will tell you- those stats are old knowledge and the field of oncology is moving forward at lightening speed right now. So much coming soon- hopefully very soon for some. My husband's PSA was also close to 800 when it was finally tested (his wasn't tested til two weeks on bicalutimide after random tissue biopsy during a TURP) so may have been higher. Also with bone and lymph mets. He's on Lupron and did 6 rounds chemo up front. Since he is young and in great shape we are hitting hard to get control fast. Now on Zytiga + prednisone. 8 mos after diagnosis and he feels good- still works out a lot and works his job. This is an amazing site for hope and info. Make sure your wife goes to all doc visits and keeps a notebook of detailed notes and questions. And enjoy each day. ❤

[joancarles]

Hello Mota59, it has been 9 months since the diagnosis. My PSA was 1300. Yesterday I visited with an oncologist and PSA of 0.18. Zytiga is working. The truth is that I get well. My age is 51 years old, the truth is that I was very athletic. At this moment this is over and my sport is walking as much as I can. Fight, discipline and think that new advances are going to help us. Good luck

[j-o-h-n]

I I thought I was a healthy guy strong went to the gym had good outlook on life went in for a normal annual exam and came back miserable and devastated that's when I was told I had stage 4 prostate cancer PSA count 800 <===<<< from bio

I took the liberty of copying (above) your bio for members to view.

We all had that feeling when we heard the big C word. You will find excellent advice and information on this site. So get off the edge of that flower bed and start seeing a good oncologist that specializes in Pca. BTW, where are you located, and don't say laying down on the edge of that flower bed. Ask questions here and ask if someone can recommend a good oncologist in your area.

Good Luck and Good Health.

j-o-h-n Friday 05/04/2018 6:28 PM EDT

[Mota59 in reply to j-o-h-n]

The best thing I've done since the bad news is log onto this site, I feel like part of a team that has the same goal, you all have given me hope and the will to fight this parasite, I'm interested in supplements that are specifically formulated to fight pca ,and does anyone know an oncologist that specializes in Pca , BTW (I don't really know what BTW is?) in the Fresno, Ca area ?

[j-o-h-n in reply to Mota59]

SUPPLEMENTS = You may want to visit the PDF file from:

maxlifespan <===<<< 2 days ago 26 Replies

"This is a List of the Supplements I Take Daily

Here is a link to the list of relatively supplements I take that have been shown effective against prostate cancer in animals and in some human studies. Be careful when taking more than one supplement that has anti-coagulant effects to prevent excessive bleeding. Do NOT take any of these supplements without your physician's approval and under physician supervision:"

healthunlocked.com/api/redi...

I'm not into supplements. Logon again in a few days and ask about Docs in Fresno area.

Good Luck and Good Health.

j-o-h-n Saturday 05/05/2018 1:27 AM EDT

Viva Mexico.

[j-o-h-n in reply to Mota59]

I had to correct the address o the pdf file. sorry

SUPPLEMENTS = You may want to visit the PDF file from:

maxlifespan <===<<< 2 days ago 26 Replies

"This is a List of the Supplements I Take Daily

Here is a link to the list of relatively supplements I take that have been shown effective against prostate cancer in animals and in some human studies. Be careful when taking more than one supplement that has anti-coagulant effects to prevent excessive bleeding. Do NOT take any of these supplements without your physician's approval and under physician supervision:"

healthunlocked.com/api/redi...

I'm not into supplements. Logon again in a few days and ask about Docs in Fresno area.

Good Luck and Good Health.

j-o-h-n Saturday 05/05/2018 1:31 AM EDT

Viva Mexico.

[Mrkharn]

Good luck to you

Mark