Wow. New to this site. Love the brotherhood and positivity of all the posts and replies. I think I found a home for my concerns.
I guess I need to post all my vitals and stats. That way any questions will have more meaning.
Essentially, I was DX in March of 2016. PSA 35 initially, then reconfirmed at 35, the biopsies....yadda yadda.
Had a RRP July 2016 at UCLA along with a clinical trial which included some hardcore drugs. xtandi was one of them. No margins, but seminal V , and some lymph nodes positive. (They knew this prior to surgery from imaging) I was also a staged a G9 ugh
After drugs wore off, I was undectable PSA in NOV 2016. Then had a .8 in Feb 2017. Then in about 3 months it was up in the 2s. Went back and forth with insurance to get Axumin scan.......they won. I paid out of pocket.
Scan showed prostate bed "suspicion " and some affected local lymph nodes. Nothing else anywhere! So the tumor board at new hospital (I moved across the country) agreed to radiate. I went on Lupron and then all the 35 sessions of RT to prostate bed and LNs.
My team hear has not mentioned any additional measures. Just said "stay on Lupron for 2 years and wait and see."
Should I be doing more ??????????? I get 3rd Lupron injection in a few weeks. Last PSA was undetectable.
Sorry for the brevity. I'll follow up again.