I am so sorry to read your post, it is frightening how this cancer can suddenly turn and be very aggressive. Our oncologist called it a "tiger" and it would seem to be a very appropriate name. I know how helpless you must be feeling as I was in your shoes a few months ago.
When you are with him please talk to him as hearing is the last sense to go and the comfort he will have from hearing a friendly voice is the best thing you can do.
I posted last night and this morning my brother passed away.
Still can not understand how a person could be walking , talking , joking and enjoying watching TV in hospital and before that and suddenly started going down.
He suffered cardiac arrest on July 18 and never recovered from it.
Could not even talk after that - could only answer questions about pain etc by moving his head. Kept eyes closed.
Until July 17th , we were told that he is constipated because of narcotics being used to relieve pain and that is why is belly was extended.
I still do not know why hospital said on July 19th that his cancer had spread to liver as they did not do any MRI or CT Scan. He had cardiac arrest on July 18th.
On July 19th , the palliative team told us to let him go with dignity and they will stop everything except for Morphine and Oxygen and move him to comfort floor.
This was very hard to digest.
He was supposed to be released from hospital on July 9
Never even knew his cancer had spread to liver - None of MRI's or CT Scans showed this.
From right kidney, he had too much blood coming out and next day my brother noticed that he lost lost of blood in toilet.
His blood pressure sky rocketed.
They took right tube out and second Dr. who put it back in 2 days later told us that the first time an artery got punctured and that is why he was lost blood.
Sorry for your loss, you did everything you could to support him so please take comfort from that.
It is hard when the cancer gets out of control but my wonderful hospice nurse did warn me that this is so often the way that it ends. Mike also had nephrostomies for the last 9 months.
This is one of the most heart-rendering and tragic stories I herd in years! I can understand the shock and agony which can crush your feelings when a loving brother so unexpectedly has to leave you and your family and not to be with you any more. Sadly it's a point of no return I am unable to think of a way out to advise you in saving his life. This hidden monster - massive liver cancer indeed is unbelievable! Is this what we expect from proper medical investigations?!
My thoughts are with you and I pray for your brother.
I am so so sorry to hear your news. This is really the most tragic story I have heard in a long time.
It is frightening how this cancer can spread so aggressively. But more frightening is the fact that it wasn't detected for such a long time. How can something like that happen?
I don't think that there is anything you can do at this point really. Being with your brother and talking to him and give whatever comfort you can is the only way I think. In a way I am delighted to hear that the hospital is willing to let him go instead of artifically prolonging his life which could be very painful for him and you as relatives.
Dear Sood1954 - I am so sorry to read this post. It sounds so much like my husband. My husband had a UTI, went septic, recovered, had a combination chemo cabazitaxel and carboplatin number 4 of 6, never stopped urinating blood, had total normal urine blockage, began renal failure, hospitalized with nephrostomy tubes in both kidneys, 2 bags of blood every couple of days, platlets, etc. The doctors couldn't figure out why he was bleeding so much. My dear husband is now in hospice with morphine. His liver blood test is elevated -also never before - so I feel it is now in the liver, too...all this in a year of failing all treatments with the oncologist. Your brother and my husband have battled this horrible cancer. It is heart wrenching! I will pray for your brother and your family. I know my husband will go to heaven and that is the peace in my life . So many men die from this cancer - it is not always "you die with it not from it" that we heard from our doctor. Prayers to all and peace.
I do not think he has liver cancer. I suspect he has Prostate Cancer which spread to the liver. That is no consolation to you as it is cancer all the same, but to get any proper treatment he needs to get the facts all straightened out. Next issue was blood clots. PC sufferers who are on chemo seem to be prone to blood clotting. My onc saw my feet were swollen and had me take an ultrasound of my legs that found that I had blood clots in my legs what is called Deep vein thrombosis (DVT). I was put on blood thinners.
I am not sure what treatment he is getting but I would suggest he go to a National Cancer Center to see if something can be done. I am a patient at MSKCC in NYC but there are several others in other parts of US.
I'm so sorry for you .i rarely read these blogs any more as my husband died 9 months ago. It brings back too many sad memories. When the kidneys fail .the body fails .my husband too had liver problems a complication from prostate cancer ..understanding your grief ..a wonderful book has helped me along with a support group .best wishes to you and your family this is such a difficult time ..grief is on going .talk to your brother ..hold his hand ..I'm so sorry ...
Too many guys jump on the chemo bandwagon.....more than one Doc has advised me to only consider chemo as a last resort because it weakens the immune system and can cause the cancer to take off like a rocket
There are some elements of your posting that cause me some concern and I would like to know more about the documentation for them.
To begin with, you wrote: "The DaVinci Device still leaves prostate tissue behind BUT if the hospital or clinic has installed the FIX from DaVinci much less tissue will be left behind".
I had thought that the DaVinci device is merely a method for remote surgery through inserted tools that are still manipulated by a surgeon. The device doesn't actually remove the prostate, it's the surgeon who does it and if any parts of the prostate are left behind, it is because the surgeon missed them. Can you provide more information about the "FIX"?
Secondly, I'm very suspicious about clinical trials of prostate cancer treatment in Nazi concentration camps. I am aware of some experiments that they did on killing people, for example the freezing experiments. I hadn't heard of any prostate cancer trials. Can you point me to some documentation for this?
I'd also like to know more about your own case. Can you tell us your Gleason score, age and PSA at the time of your diagnosis 12 years ago and your current PSA? In addition to the supplements, what treatments have you had?
Maxlifespan aka Dr. Mengele ran many experiments in the camps using 4-MU. By all accounts 4-MU was effective because the PCa patients died with PCa not because of it.
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