So the biochemical recurrence has me worried. I'm 14 years since my initial radical prostatectomy. PSA levels have been rising for 3 years. My question is at what point should my Urologist suggest for me to see oncologist? I'm not putting numbers, I've read so many conflicting suggestions online. I will say my initial diagnosis was made at age 53 ( now 67, going to be 68 May 27th) Gleason score of 7, and PSA 5.2, and Cancer stage T2c. So being curious as I am would like some input on this.
Also I've had leakage since after surgery. Started with one pad, sometimes two a day. I could live with that. Started leaking more 2 to 3 pads a day everyday. Had cysto on 4/7/15 and found scar tissue, had surgery to remove on 4/22/15. wore catheter for 2 weeks and leakage was worse, 6 to 7 pads a day. another cysto on 11/10/15 reviled more scar tissue. Back to surgery on 11/17/15, which they found a staple left from initial surgery, it was removed.
More about that staple.... I went to the hospital and ask for the OR report to find out exactly what had transpired. Actual dictation.
" Upon entrance in the bladder neck area he was noted to have a foreign body present. I was able to grab it and remove it without difficulty. It was apparently a clip from his surgery that eroded into the bladder neck region probably due to his prior laser of his bladder neck. The patient tolerated the procedure well, had to compilations. Again, his bladder neck was open. This may have why I was unable to scope him in the office."
I'm using 3 to 4 pads a day fully soaked, sometimes leaks through and I have wet jeans. I've learned years ago that if I wear really tight undies putting the extra pressure it lessons the leaking. I walk a lot and watch what I drink and still it leaks. I went to a festival yesterday (live in Louisiana and we have festivals all the time) and have to bring a back pack with extra pads. My Uro wants to implant the AMS 800 Urinary Control System. My worries are that I'll still have to wear pads and have this foreign object implanted and still have recurrent urine leakage. Anyone had this done? and how did it work for you?
And don't even get me started on my sexual problems!
Any advice would be appreciated!