Hi, I was diagnosed with PC in November 2015, PSA of 89 and Gleason Score of 8. I'm 51. My post surgical Gleason Score was raised to 9 and there was metastasis in 5 lymph nodes. I'm currently on Lupron Depot (45mg every six months) and had expected a 8 week course of radiation starting in April. But my surgeon said that he'd like to get the results of a Decipher test first. I had never heard of this test before but in reading about it online, it seems to be a genomic test to determine the best course of treatment moving forward. Has anyone had any experience with this? Also, I'm having a side effect from the Lupron where the joints in my hands are achy and I get trigger finger in 4 fingers at night. Has anyone else experienced this side effect? I'm wondering if it goes away or if i should consider trigger finger surgery to relieve the pain. My surgeon said that he had not heard of that side effect from Lupron.
On the whole, I feel like I'm doing ok. But it's a mental challenge not knowing what's to come and when.
Glad to know your doctor is hitting it hard and fast. Genetics is a new field where I'm sure great advances will be made. I wouldn't jump on surgery on your hand just yet. See what the doctors think. My husband has been on Lupron continuously since 2005 and had some side effects, but nothing like that. Joint pain, yes. Zometa infusions were the worst but no more of those. Keep the faith.
I'm curious about your Zometa comment. Why did your husband quit those?
He went through a monthly infusion in 2006 for a year. Every month the side effect was different so we didn't know if it was caused by the Zometa or the cancer cranking up again. It was the Zometa. Headaches, joint pains, fever, muscle aches. I took a day off from work on the day of the infusion and the day after. He could barely get off the couch the next day. Was it effective in the long run? I'm sure it was. He had cancer throughout his tailbone. No more bone mets after that.
I inadvertently forgot to mention that it was the doctor who had ordered a year's worth of Zometa. Now, they've changed the protocol and don't give it that frequently. I believe I had mentioned earlier that they threw everything at him since his situation was not a good one. Still here going on year 13 since diagnosis and surgery. Keep the faith.