So its been nearly 5 years since i had pain start on my right side below ribs, since then pain has increased and expanded ( now includes whole pelvis, low back, still right side, now goes up both sides of ribs, left leg numb when walking, pain down front of both thighs, shoulders and wrists, burning in groin, vulvodynia, pain after eating, horrific bloating..) in this time i have had xrays, ct scan, numerous ultrasounds, an mri on my low spine (after falling down the stairs 3 times) laparoscopy to check for endo (none seen and no biopsys taken, suggested adenomyosis, then discharged)
Been under pain clinic now for about 1.5 years seen a consultant once, then nothing for a year! Had to call them make sure i hadnt been discharged. Under gynae as i have had period issues since starting them, had polyp removed, then told nothing wrong but they started me on zolodex (godsend!) for 1 year which has helped with the periods and flare ups they cause, but stopping this in December.
I am struggling to explain how im feeling to either doctor as i feel they dont listen to me and just hear what they want to (as proven by a recent clinic letter from the pain nurse)
I work within the hospital i am a patient at so i find it even harder to talk to the doctors!
Made to feel like im nuts or putting it on or just plain ignored!
My physio suggested it might be fibromyalgia so I said this to the nurse who asked if i had been diagnosed with it, no love thats why i asked you!
Im on 150mg of pregabalin twice a day, it helps but not a lot.
Im doing everything they tell me to do, yoga, meditation, breathing, walking, tens machine but honestly there is only so much i can do!
Im glad there is nothing glaringly wrong, so they tell me but i just feel abandoned by the NHS that I take pride in working for.
Finally seeing the pain consultant again in Dec but no idea what to say so any ideas on how to approach the situation greatly appreciated x
Sorry about the long post but its getting to me a bit now x
Bulky uterus - Adenomyosis?