Getting closer to why!: Hello friend's... - Anticoagulation S...

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Getting closer to why!

Teresaelliott22 profile image
7 Replies

Hello friend's .. I got my blood test back andwe are closer to finding out why I have a clot. First thing he started me on Fergon Iron it is a different strain Gluconate. 3 xs a day 325mil. We also know that I have a genetic protien S deficiency which can cause blood clots. My protein acid level was 44 it needs to be 60 to 100 it keeps the blood from clotting and flowing healthy. I have always eaten well 3 meals a day.. Now I eat 5 meals high protein diet !! He took more blood last week when I went to get results to compare after getting those back myB12 is low. No a big surprise to me because once a month I Bleed like CRAZY because of Xarelto. So I go back wed. To talk more about all this. Until then they want 3 day's of stool samples mailed to the lab thank goodness they have a nice kit that makes it easy. I am feeling great and I am confident this will pass in time. The swelling is gone and the ultrasound is scheduled in 90 day's So I will run do commpression socks and figure this out.

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Teresaelliott22
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7 Replies
jaxta51 profile image
jaxta51

So glad you are getting some answers, somehow it's all easier to deal with when you know why it's happening. Sorry don't know anything about the protein s deficiency but someone else on here might do. Anyway sounds like you're making progress at last, best of luck!

Teresaelliott22 profile image
Teresaelliott22 in reply to jaxta51

Thank you and yes it ferls as though we are making progress.

moo196 profile image
moo196

Hope you find the answers you need. :-)

Personally I'm trying not to become too medicalised about things because I believe ( rightly or wrongly ) that once you start investigating it can just lead to more problems/ investigations etc ..... like- if blood protein levels are too low but you are eating lots of healthy things it may not as simple as improving with diet .... I do know that my b12 is low - therefore have injections on a monthly basis and won't investigate other reasons why unless I need to..... I need to live a bit inbetween.

Off on a major trip soon - with or without the blood clot on the brain - I'm not letting it beat me !

Take care

K

Teresaelliott22 profile image
Teresaelliott22 in reply to moo196

With out answers you can't rule out cancer, blood thinners wont cure that.

I also have a daughter who is 12 and I am happy tp know that a Genetic protein deficiency could have caused this because it's bettet then cancer my levels can be fixed. I also will have my daughter checked to see if she has this because in high school I had seizes now I know why. Uf ypy don't work towards gixing the body.you hsve tp take this med. Forever I don't want that and will do what ever it takes, it's not good to tske a pill to mask the true reson you csn be happy and still figure it out. I am also have a verry FULL AND FUN LIFE sorry I made you think not my kid's don't really know much because I dont complain and smile through it. I came on this sight hoping to get my feelings out. But giving up on the body is simply NOT my style. I'm feeling better every day and I hope to get off the meds. In 3 month's.If you know why it is possible if not you rake the drugs and just keep taking. Good luck!

Have a safe trip.

Teresaelliott22 profile image
Teresaelliott22 in reply to moo196

PLEASE don't let it Beat You!

Teresaelliott22 profile image
Teresaelliott22

Sorry about the spelling I am on phone and have tinny key's and nig thumps, lol 😁I have always disliked pills and I believe we can heal our body's if we know whats wrong. I have fixed the Iron. Protein by eating it 5xs a day and yes may need B12 shots but yeah

They haven't said cancer so I am still blessed. And feel great!

Teresaelliott22 profile image
Teresaelliott22

Haha Big thums

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