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Aplastic anaemia
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Vitamins
Hi allI posted here last week my vitamin test results from medichecks. My active B12 and folate were low so as per advice on the forum I have held off supplementing until my GP tests for pernicious anaemia. My mother had PA and I certainly do have some symptoms of B12 deficiency. I'm due to get my bloods
Hi allI posted here last week my vitamin test results from medichecks. My active B12 and folate were low so as per advice on the forum I have held off supplementing until my GP tests for pernicious anaemia. My mother had PA and I certainly do have some symptoms of B12 deficiency. I'm due to get my bloods
Hollybushroad
in
Thyroid UK
11 months ago
Iron panel interpretation please
This is a friend’s recent iron panel I’ve looked on rT3 adrenals where it says a low transferrin level indicates a lack of capacity for supplemental iron. I really don’t understand this when it’s clear her whole panel is low, including ferritin. My grasp of iron is poor so anyone who
does
have
This is a friend’s recent iron panel I’ve looked on rT3 adrenals where it says a low transferrin level indicates a lack of capacity for supplemental iron. I really don’t understand this when it’s clear her whole panel is low, including ferritin. My grasp of iron is poor so anyone who
does
have
Noelnoel
in
Thyroid UK
6 months ago
Blood test iron results
Recent blood test looking at iron levels / potential anaemia. Iron level, serum 9.0 umol/L, transferrin level, blood 2.88 g/L, transferrin saturation 14%, ferritin level, serum 12 ug/L ( Mar 2021 54 ug/L). Not had a clear assessment yet, anybody able to give an interpretation?
Recent blood test looking at iron levels / potential anaemia. Iron level, serum 9.0 umol/L, transferrin level, blood 2.88 g/L, transferrin saturation 14%, ferritin level, serum 12 ug/L ( Mar 2021 54 ug/L). Not had a clear assessment yet, anybody able to give an interpretation?
50568789
in
Restless Legs Syndrome
6 months ago
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Transferrin Saturation
I have a GP appointment a week Monday. Recently had a Medichecks nutrition test and results: Ferritin : 44.2 ug/L (R. 13 - 150) Vit. B12: 67.6 pmol/L (R.37.5 - 150) Vit.D: 119/nmolL (R50 - 200) Medichecks GP said B12 on the low side, as is Ferritin. He recommended I have a serum MMA
I have a GP appointment a week Monday. Recently had a Medichecks nutrition test and results: Ferritin : 44.2 ug/L (R. 13 - 150) Vit. B12: 67.6 pmol/L (R.37.5 - 150) Vit.D: 119/nmolL (R50 - 200) Medichecks GP said B12 on the low side, as is Ferritin. He recommended I have a serum MMA
notpink
in
Thyroid UK
11 months ago
UK person wanting injectable methylcobalamin
Hello everyone, I'm based in the UK and have Pernicious Anaemia. I was able to buy methylcobalamin 1mg for self-injection online from Arnika Apotheke in Germany back in 2019/2020 and had it shipped to the UK. But a year ago, in 2022, when I messaged to purchase more, they said they were no longer able
Hello everyone, I'm based in the UK and have Pernicious Anaemia. I was able to buy methylcobalamin 1mg for self-injection online from Arnika Apotheke in Germany back in 2019/2020 and had it shipped to the UK. But a year ago, in 2022, when I messaged to purchase more, they said they were no longer able
Seasidesunshine1979
in
Pernicious Anaemia Society
11 months ago
Blood Test results
Hi Having finally got broadband working again I was able to check my blood test results. They included: Serum Iron: 25.2 umol/L [range 10.6 - 28.3] Serum transferrin: 2.42 g/L [range 2.02 - 3.63] Serum ferritin level: 70 ng/ml [range 30 - 400] Transferrin saturation index : 42% Blood tests for
Hi Having finally got broadband working again I was able to check my blood test results. They included: Serum Iron: 25.2 umol/L [range 10.6 - 28.3] Serum transferrin: 2.42 g/L [range 2.02 - 3.63] Serum ferritin level: 70 ng/ml [range 30 - 400] Transferrin saturation index : 42% Blood tests for
Rameau
in
Restless Legs Syndrome
11 months ago
Fundraising
I am very fortunate that I can pop down to P.A. Society Head Quarters to lend a hand. I did this morning. There are 4 volunteers helping the small amount of staff run the organisation . The person there today was inundated when I rocked up. As they are everyday. We could talk for weeks but I said, ‘No
I am very fortunate that I can pop down to P.A. Society Head Quarters to lend a hand. I did this morning. There are 4 volunteers helping the small amount of staff run the organisation . The person there today was inundated when I rocked up. As they are everyday. We could talk for weeks but I said, ‘No
Narwhal10
in
Pernicious Anaemia Society
9 months ago
How likely is it I have PA
Hello, I would appreciate some feedback on your own experiences of diagnosis. - 3 months ago I had a B12 level of <142 and a range of related symptoms - Full Blood count did not show an abnormalities but I was also deficient in ferritin. - I am 37 and have been diagnosed with hashimotos since I
Hello, I would appreciate some feedback on your own experiences of diagnosis. - 3 months ago I had a B12 level of <142 and a range of related symptoms - Full Blood count did not show an abnormalities but I was also deficient in ferritin. - I am 37 and have been diagnosed with hashimotos since I
Sparkleros
in
Pernicious Anaemia Society
6 months ago
High Folate, Low Normal B12
Regarding folate masking a B12 defciency…my folate was 24 ng/mL and my B12 was 252 pg/mL when I asked to be tested for deficiency in January. I was having neurological symptoms such as anxiety, pulsatile tinnitus, tingling in legs and feet. Other symptoms include digestive issues (I believe I have low
Regarding folate masking a B12 defciency…my folate was 24 ng/mL and my B12 was 252 pg/mL when I asked to be tested for deficiency in January. I was having neurological symptoms such as anxiety, pulsatile tinnitus, tingling in legs and feet. Other symptoms include digestive issues (I believe I have low
JHEW0836
in
Pernicious Anaemia Society
11 months ago
Iron blood test results
Please see below results. Would appreciate some advice. I have changed the brand of iron supplement I am taking, as I was struggling to raise my levels previously. Now take 2x Thorne Gentle Iron on alternate days.
[u]Inflammation[/u]
CRP HS 4.21 mg/L (Range: 0 - 5) *see note below
[u]Iron
Please see below results. Would appreciate some advice. I have changed the brand of iron supplement I am taking, as I was struggling to raise my levels previously. Now take 2x Thorne Gentle Iron on alternate days.
[u]Inflammation[/u]
CRP HS 4.21 mg/L (Range: 0 - 5) *see note below
[u]Iron
Molly161018
in
Thyroid UK
11 months ago
Does the pill have the same effect as the injection?
I am from Argentina. My son has been struggling with depression and anxiety for years. 2 years ago we found out he had high homocysteine, low B12 and he has MTHFR. He is being treated with B12 pills (Jarrow) his values have improved but his symptoms persist. I saw your information in PERNICIOUS
I am from Argentina. My son has been struggling with depression and anxiety for years. 2 years ago we found out he had high homocysteine, low B12 and he has MTHFR. He is being treated with B12 pills (Jarrow) his values have improved but his symptoms persist. I saw your information in PERNICIOUS
MarianaCD
in
Pernicious Anaemia Society
11 months ago
Wake up very cold around 230 to 330 am . Any suggestions?
Wake up very cold and was wondering if any supplements might help this. Taking iron pills and b12 injections currently.
Wake up very cold and was wondering if any supplements might help this. Taking iron pills and b12 injections currently.
84withb12d
in
Pernicious Anaemia Society
11 months ago
Iron Infusion Attempt
This week I saw Dr Robin Fackrell privately at Bath Sulis Hospital to discuss whether an iron infusion would be an appropriate way forward for me and if so how I could progress this. The outcome of the session is that Dr Fackrell will write back to my GP recommending this course of action for my RLS
This week I saw Dr Robin Fackrell privately at Bath Sulis Hospital to discuss whether an iron infusion would be an appropriate way forward for me and if so how I could progress this. The outcome of the session is that Dr Fackrell will write back to my GP recommending this course of action for my RLS
Munroist
in
Restless Legs Syndrome
11 months ago
Iron could help B12 levels
Hi everyone, I’ve never post before… but I came across some useful information that could help you all. In my own personal experience I developed a b12 deficiency for no particular reason, I’ve been tested for pernicious anemia and that came back negative, I put it down to a mixture of a restricted
Hi everyone, I’ve never post before… but I came across some useful information that could help you all. In my own personal experience I developed a b12 deficiency for no particular reason, I’ve been tested for pernicious anemia and that came back negative, I put it down to a mixture of a restricted
MarvelDC
in
Pernicious Anaemia Society
6 months ago
Boron, an interesting article about supplement for T3 increase
Found this article which I found interesting as a possible supplement to assist with T3 may consider after next blood test if no improvement. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/?fbclid=IwAR3dMJ-9rLLZ47g1qBU4LbMViJROk8gIbRNhijGMMW3giwHjVbsY06Huppk
Found this article which I found interesting as a possible supplement to assist with T3 may consider after next blood test if no improvement. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/?fbclid=IwAR3dMJ-9rLLZ47g1qBU4LbMViJROk8gIbRNhijGMMW3giwHjVbsY06Huppk
Humphre
in
Thyroid UK
6 months ago
thought I’d do a new post
I wrote last week about iron results, and was asked if I had more results so I’m giving them now I was on 150 thyroxine/12/1/2 t3 , haemoglobin level. 141g/l. ( 115-165g/l White blood 7.3. ( 4.10- 11/10g/l Platelet count 208. (135-450g/l Red cell count 4.9 (3.8-4.8 Heamatocrit 0.429 (0.37-
I wrote last week about iron results, and was asked if I had more results so I’m giving them now I was on 150 thyroxine/12/1/2 t3 , haemoglobin level. 141g/l. ( 115-165g/l White blood 7.3. ( 4.10- 11/10g/l Platelet count 208. (135-450g/l Red cell count 4.9 (3.8-4.8 Heamatocrit 0.429 (0.37-
Kowbie
in
Thyroid UK
11 months ago
B12 problems?
I don't know what your symptoms are but I was vitamin b12 deficient with a similar reading and I had the symptoms of tingling and wierd dizziness among others. Despite this I was told it was fine as within normal limits. It is a large range and stands to reason that that reading can be low for some
I don't know what your symptoms are but I was vitamin b12 deficient with a similar reading and I had the symptoms of tingling and wierd dizziness among others. Despite this I was told it was fine as within normal limits. It is a large range and stands to reason that that reading can be low for some
trisha7
in
Thyroid UK
11 months ago
New papers on PA
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
jade_s
in
Pernicious Anaemia Society
9 months ago
Besremi working well- 150 mcg every month instead of bi-weekly
So, my WBC, RBC, HCT, and hemoglobin went down below the range for a couple of months. Instead of lowering the dose, the haematologist advised me to keep the 150 mcg dose but inject it every month instead of bi-weekly. My latest CBC and CMP show that all blood counts/parameters except hemoglobin were
So, my WBC, RBC, HCT, and hemoglobin went down below the range for a couple of months. Instead of lowering the dose, the haematologist advised me to keep the 150 mcg dose but inject it every month instead of bi-weekly. My latest CBC and CMP show that all blood counts/parameters except hemoglobin were
Pat032018
in
MPN Voice
11 months ago
Advice on latest test results
Hi, I got diagnosed with underactive thyroid in September 2023. I was put on 50g of Levothyroxine and iron tablets as I had low ferritin and anemic. My latest results show I'm no longer anemic but my ferritin is still relativity low despite having been on iron tablets for 2 months. Dr seems to be
Hi, I got diagnosed with underactive thyroid in September 2023. I was put on 50g of Levothyroxine and iron tablets as I had low ferritin and anemic. My latest results show I'm no longer anemic but my ferritin is still relativity low despite having been on iron tablets for 2 months. Dr seems to be
Shoesy99
in
Thyroid UK
6 months ago
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