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Aplastic anaemia
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Breathlessness
Good morning first of all I would like to say I have found a solution for my itching after B12 injections and hope it might help someone else. I now apply ice for 10 minutes before and after injection. I inject into thigh just off centre to outer part mid thigh. So far so good . My question is with regards
Good morning first of all I would like to say I have found a solution for my itching after B12 injections and hope it might help someone else. I now apply ice for 10 minutes before and after injection. I inject into thigh just off centre to outer part mid thigh. So far so good . My question is with regards
smg1950
in
Pernicious Anaemia Society
9 months ago
Less symptoms but still RLS sleep issues
I have supplemented iron for 4 months now and my RLS has reduced more and more but still have a bit of sleeping problems. I take no medications beside also Vitamin D. Last time my doctors checked my blood my ferritin level were in the normal range (around 140). Question is if I should continue taking
I have supplemented iron for 4 months now and my RLS has reduced more and more but still have a bit of sleeping problems. I take no medications beside also Vitamin D. Last time my doctors checked my blood my ferritin level were in the normal range (around 140). Question is if I should continue taking
LineVec
in
Restless Legs Syndrome
9 months ago
GP wont prescribe Hydroxycobalamin until further blood tests conducted despite neuro involvement.
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Betwelvepatient
in
Pernicious Anaemia Society
5 months ago
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What level is normal after B12 injections
First post after being diagnosed with very low B12 (67). I am in the UK and had the course of six injections within two weeks 12 weeks ago. My level of B12 has just been tested and is 360 but I have no idea whether this would be normal at this stage? I am debating whether to have another injection or
First post after being diagnosed with very low B12 (67). I am in the UK and had the course of six injections within two weeks 12 weeks ago. My level of B12 has just been tested and is 360 but I have no idea whether this would be normal at this stage? I am debating whether to have another injection or
NeverSayDi
in
Pernicious Anaemia Society
5 months ago
Paper: Receiving a Diagnosis of Pernicious Anemia: Exploring Experiences of Relationships With Health Professionals
I assume this has been posted before but I saw this for the first time today Seage, et al,
Receiving a Diagnosis of Pernicious Anemia: Exploring Experiences of Relationships With Health Professionals
, J Patient Exp. 2020 Oct; 7(5): 766–770. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7705842
I assume this has been posted before but I saw this for the first time today Seage, et al,
Receiving a Diagnosis of Pernicious Anemia: Exploring Experiences of Relationships With Health Professionals
, J Patient Exp. 2020 Oct; 7(5): 766–770. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7705842
jade_s
in
Pernicious Anaemia Society
9 months ago
MCV and supplement question
Hi all, I'm hypothyroid and frequently have MCV and MCH outside of range. In general I feel better supplementing with methyl Bs and have added folate. I want to ask though if there is anything concerning and how to address these results. Is my ferritin ok or are there additional tests to run? Thank
Hi all, I'm hypothyroid and frequently have MCV and MCH outside of range. In general I feel better supplementing with methyl Bs and have added folate. I want to ask though if there is anything concerning and how to address these results. Is my ferritin ok or are there additional tests to run? Thank
EchoWS
in
Pernicious Anaemia Society
9 months ago
Full-text article from 1969
This article is beyond me. I am posting it because it seems relevant on the face; in addition, it is a 1969 article, and full text of articles from the 1960s and 1970s are rarely available, which would seem to suggest that this article is a special case. Therefore, some people on this forum might be
This article is beyond me. I am posting it because it seems relevant on the face; in addition, it is a 1969 article, and full text of articles from the 1960s and 1970s are rarely available, which would seem to suggest that this article is a special case. Therefore, some people on this forum might be
WiscGuy
in
Pernicious Anaemia Society
5 months ago
Update- I no longer take Dipyridamole
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
WideBody
in
Restless Legs Syndrome
9 months ago
Liposomal Iron
I have atrophic gastritis and my stomach can not tolerate normal iron supplements.I came across Liposomal on the web and wondered if anyone has had any success taking this supplement please as I am iron deficient ? Thanks
I have atrophic gastritis and my stomach can not tolerate normal iron supplements.I came across Liposomal on the web and wondered if anyone has had any success taking this supplement please as I am iron deficient ? Thanks
davina70
in
Pernicious Anaemia Society
9 months ago
Diagnosis
Good Morning I have suffered with my condition for over 20 years and have also been told I was born with it, the doctor agrees I have all the symptoms of fibromyalgia but says they haven't givin it that label as it all falls under the same umbrella of musculoskeletal disorder, which is what I have
Good Morning I have suffered with my condition for over 20 years and have also been told I was born with it, the doctor agrees I have all the symptoms of fibromyalgia but says they haven't givin it that label as it all falls under the same umbrella of musculoskeletal disorder, which is what I have
pixieraine23
in
Fibromyalgia Action UK
9 months ago
intrinsic factor test
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
Painttube
in
Pernicious Anaemia Society
6 months ago
Anyone have hypercalcemia?
Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5 months or so. I still had some lingering symptoms that I felt were not related to pernicious anemia. Anyway, the other day I ended up in the ER with kidney stones and hyponephrosis (urine backing up into kidney, swollen
Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5 months or so. I still had some lingering symptoms that I felt were not related to pernicious anemia. Anyway, the other day I ended up in the ER with kidney stones and hyponephrosis (urine backing up into kidney, swollen
Iheartb12
in
Pernicious Anaemia Society
9 months ago
JFK - Kennedy and B12
Given the current coverage of the anniversary of the death of President Kennedy, it seems not unreasonable to post about his health issues - specifically the possibility of Pernicious Anaemia. This is a paragraph from near the end of the article. Not intended as anything other than an interesting footnote
Given the current coverage of the anniversary of the death of President Kennedy, it seems not unreasonable to post about his health issues - specifically the possibility of Pernicious Anaemia. This is a paragraph from near the end of the article. Not intended as anything other than an interesting footnote
helvella
in
Pernicious Anaemia Society
6 months ago
Exhaustion
Hello, my husband has 'early child a chirrosis' he has previously had bleeding varices and he has a clot on his portal vein. This is all due to complications following a splenectomy, which caused the clot, which is turn affected the liver. He is currently working stretches of 7 days in a row, with a
Hello, my husband has 'early child a chirrosis' he has previously had bleeding varices and he has a clot on his portal vein. This is all due to complications following a splenectomy, which caused the clot, which is turn affected the liver. He is currently working stretches of 7 days in a row, with a
Lili6
in
British Liver Trust
9 months ago
What does this mean?
Hi. Me = male, ET, 80 year old. I am off to see the Haematologist on Tuesday so I asked the GP surgery for a copy of my latest Blood count - and I would appreciate any comments. All levels refer to 'normal' reference ranges My White Blood Cell count, MCV, MCH, Neutrophil and Basophil are all above
Hi. Me = male, ET, 80 year old. I am off to see the Haematologist on Tuesday so I asked the GP surgery for a copy of my latest Blood count - and I would appreciate any comments. All levels refer to 'normal' reference ranges My White Blood Cell count, MCV, MCH, Neutrophil and Basophil are all above
quanglewangle
in
MPN Voice
9 months ago
B12 217ng/L low folate/serum ferritin
Hello,I have been suffering with exhaustion, lighted head and occasionally hard to catch my breath. My doctor ran bloods, my folate is low at 3.4ug/L, serum ferritin 19.9ug/L and B12 is within range at 218ng/L(but low end). I'm wondering did anyone take B12 shots with these levels and did it help? Or
Hello,I have been suffering with exhaustion, lighted head and occasionally hard to catch my breath. My doctor ran bloods, my folate is low at 3.4ug/L, serum ferritin 19.9ug/L and B12 is within range at 218ng/L(but low end). I'm wondering did anyone take B12 shots with these levels and did it help? Or
Sotired3
in
Pernicious Anaemia Society
9 months ago
Un knowledgable Neurologist aahhh!!
Hi, I am writing again to get the advice I have been waiting for months to see a neurologist and just heard today that the neurologist is not going to see me because of my b12 numbers He has decided even with all my neurological and neuropathy symptoms, and that after my doctor did tests and believed
Hi, I am writing again to get the advice I have been waiting for months to see a neurologist and just heard today that the neurologist is not going to see me because of my b12 numbers He has decided even with all my neurological and neuropathy symptoms, and that after my doctor did tests and believed
brenanddave
in
Pernicious Anaemia Society
9 months ago
b12 deficiency - when to have Pernicious anaemia test?
hi, I am rather new to all this and would be very grateful for some advice. I recently had a blood test as I had moved GP surgeries and it came back with low B12 (70). I am on a course of 6 injections over 2 weeks, just had my 5th today. I have been given a blood form for ‘pernicious anaemia
hi, I am rather new to all this and would be very grateful for some advice. I recently had a blood test as I had moved GP surgeries and it came back with low B12 (70). I am on a course of 6 injections over 2 weeks, just had my 5th today. I have been given a blood form for ‘pernicious anaemia
Digbydog123
in
Pernicious Anaemia Society
9 months ago
Advice on best treatment
I have had CLL since 2013 watch and wait. Recently hemoglobin levels dropped and a bit anemic so been advised 3 types of treatment. However left to make own choice. Guess would like to know what other people have tried and how effective treatment was.
I have had CLL since 2013 watch and wait. Recently hemoglobin levels dropped and a bit anemic so been advised 3 types of treatment. However left to make own choice. Guess would like to know what other people have tried and how effective treatment was.
Guinness4822
in
CLL Support
9 months ago
FINALLY found a scientific study that supports my theory about Brain Iron and Serum Iron. Finally!!!
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
DesertOasis
in
Restless Legs Syndrome
7 months ago
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