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Aplastic anaemia
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Hair loss
Hi all. Hope everyone is well. Just looking for some advice and reassurance really. For the last few months I've noticed a lot and I mean a lot of hair loss. When showering drying and brushing. And even through the day when my hair is down. I was on ferrograd and vit d supplements until about 9 weeks
Hi all. Hope everyone is well. Just looking for some advice and reassurance really. For the last few months I've noticed a lot and I mean a lot of hair loss. When showering drying and brushing. And even through the day when my hair is down. I was on ferrograd and vit d supplements until about 9 weeks
Darcey14
in
Pernicious Anaemia Society
2 years ago
Update
Hi All, just a quick update on my anaemia v erythrocytosis carryon! After 3 weeks of iron, I ended up with an HCT over .45, so was told to arrange a venesection which I did. Blood test 3 weeks later confirms HCT down to .37. Back to square one with tiredness, sores in mouth, etc for anaemia but I
Hi All, just a quick update on my anaemia v erythrocytosis carryon! After 3 weeks of iron, I ended up with an HCT over .45, so was told to arrange a venesection which I did. Blood test 3 weeks later confirms HCT down to .37. Back to square one with tiredness, sores in mouth, etc for anaemia but I
Aime
in
MPN Voice
3 years ago
Anyone know about Globulin levels
Anyone had experience of “low globulin” count when having a blood test? Had my monthly Methotrexate blood test last Tuesday, the GP rang me Wednesday afternoon to say my globulin count was a bit low & with my “Rheumatoid factor”. Of course he didn’t explain what it was & when I asked what needed to be
Anyone had experience of “low globulin” count when having a blood test? Had my monthly Methotrexate blood test last Tuesday, the GP rang me Wednesday afternoon to say my globulin count was a bit low & with my “Rheumatoid factor”. Of course he didn’t explain what it was & when I asked what needed to be
Shamrockgirl
in
NRAS
2 years ago
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Increasing self doses
After recent diagnosis and poor care from doctors, I am self injecting as I have said in a few previous posts. My plan was once every 2 weeks - boy I was wrong. Symptoms return like a total crash, really bad. I am now on 3 times a week just to keep the symptoms away, bearing in mind it takes 2 days from
After recent diagnosis and poor care from doctors, I am self injecting as I have said in a few previous posts. My plan was once every 2 weeks - boy I was wrong. Symptoms return like a total crash, really bad. I am now on 3 times a week just to keep the symptoms away, bearing in mind it takes 2 days from
Vitali-ep
in
Pernicious Anaemia Society
3 years ago
Latest CBC is in, all good.
I'm happy about my neutrophils and platelets (both went higher) and I feel like I can safely go to have the third vaccine at the end of December (6 mo. after the second one) because the first two did not produce a marked increase in my ALC count. Neither did I have any node enlargement. Now I need to
I'm happy about my neutrophils and platelets (both went higher) and I feel like I can safely go to have the third vaccine at the end of December (6 mo. after the second one) because the first two did not produce a marked increase in my ALC count. Neither did I have any node enlargement. Now I need to
LeoPa
in
CLL Support
3 years ago
Treating autoimmune hemolytic anemia (AIHA)
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
SantaZia
in
CLL Support
3 years ago
Help with bloods please including iron levels.
Bloods taken last week in the morning before Levo or any other medication at 8.50 in the morning. I’m currently taking 200mcg and 212.5mcg alternative days. As Aristo brand. Still getting a few palps and still very tired. Would I benefit from t3 if so why as need support as endo not wanting me to take
Bloods taken last week in the morning before Levo or any other medication at 8.50 in the morning. I’m currently taking 200mcg and 212.5mcg alternative days. As Aristo brand. Still getting a few palps and still very tired. Would I benefit from t3 if so why as need support as endo not wanting me to take
Cheekycharlie1981
in
Thyroid UK
2 years ago
Iron /Ferritin Level and Menopause
Hello Everyone...Quick question. Is it necessary to test your iron and ferritin if you no longer have a menstrual cycle? The GP who is filling in for the regular GP stated that since I no longer have a period, that I could not be anemic due to low iron/ferritin. This does not make sense to me , so
Hello Everyone...Quick question. Is it necessary to test your iron and ferritin if you no longer have a menstrual cycle? The GP who is filling in for the regular GP stated that since I no longer have a period, that I could not be anemic due to low iron/ferritin. This does not make sense to me , so
MightyMay
in
Thyroid UK
2 years ago
why I feel so hot after taking b12 timed release?
My symptoms was started to develop fast because Cyanocobalamin didn't work for me and I was in agonizing situation I couldn't stand on my feet and my pain was unbearable. then I found my Ferritin is low and helped a lot after taking that but my weakness was phenomenal and extreme weakness along with
My symptoms was started to develop fast because Cyanocobalamin didn't work for me and I was in agonizing situation I couldn't stand on my feet and my pain was unbearable. then I found my Ferritin is low and helped a lot after taking that but my weakness was phenomenal and extreme weakness along with
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
Could this be b12 deficiency? What is wrong with me?
Hi all All started last year when I was feeling tired and light headed, after a few weeks it didn’t go away so I spoke to my doctor. She ran some blood tests which came back: Folate 3 Ferritin 4 B12 525 (not supplementing) She put me on folic acid for 3 months and iron tablets. 3 months later my levels
Hi all All started last year when I was feeling tired and light headed, after a few weeks it didn’t go away so I spoke to my doctor. She ran some blood tests which came back: Folate 3 Ferritin 4 B12 525 (not supplementing) She put me on folic acid for 3 months and iron tablets. 3 months later my levels
Whatiswrongwithme
in
Pernicious Anaemia Society
2 years ago
Anyone had covid on adalimumab?
Well the inevitable happened and as covid started ripping through my eldest‘s (9y) class the school kept insisting that only children needing to self-isolate did not have mandatory attendance and the fact I am vulnerable didn’t count… well as of this morning he has a positive lateral flow although no
Well the inevitable happened and as covid started ripping through my eldest‘s (9y) class the school kept insisting that only children needing to self-isolate did not have mandatory attendance and the fact I am vulnerable didn’t count… well as of this morning he has a positive lateral flow although no
Hidden
in
NRAS
3 years ago
What tests to choose
I was diagnosed with b12 deficiency I self inject monthly but recently collapsed with symptoms of severe anaemia. Waiting for fbc via gp but want to add active b12 from private testing. I have to have venous sample as I never can fill the tube from fingerprick and the nurse is happy to fill tubes but
I was diagnosed with b12 deficiency I self inject monthly but recently collapsed with symptoms of severe anaemia. Waiting for fbc via gp but want to add active b12 from private testing. I have to have venous sample as I never can fill the tube from fingerprick and the nurse is happy to fill tubes but
Mag999
in
Pernicious Anaemia Society
3 years ago
Folate deficiency
Hi everyone, I’m new to this page. I have had very low folate for the second time and I am currently taking supplements still. I am a young, healthy teacher who eats a very good diet eating lots of food with folate in it. I don’t drink alcohol and no idea why my folate is so low, apparently my b12 levels
Hi everyone, I’m new to this page. I have had very low folate for the second time and I am currently taking supplements still. I am a young, healthy teacher who eats a very good diet eating lots of food with folate in it. I don’t drink alcohol and no idea why my folate is so low, apparently my b12 levels
Rosiehorn
in
Pernicious Anaemia Society
3 years ago
Repeating intrinsic factor antibody blood test
Hello Does anybody have any references to show a consultant that wants to repeat an ifab blood test? I have gastric parietal cells and am ifab positive with reading of 8 (range 0-5). He says I'm only weekly positive for ifab so wants to repeat the test. I had one down in June that was negative, then
Hello Does anybody have any references to show a consultant that wants to repeat an ifab blood test? I have gastric parietal cells and am ifab positive with reading of 8 (range 0-5). He says I'm only weekly positive for ifab so wants to repeat the test. I had one down in June that was negative, then
Aumshantii
in
Pernicious Anaemia Society
3 years ago
Steroid injection
Hi everyone. I had a steroid injection this morning in my little finger. It's been locking alot lately and causing pain in my lower arm. I'm told it's because of skin thickening in my hand. Only diagnosed in July. Has anyone else had this experience?
Hi everyone. I had a steroid injection this morning in my little finger. It's been locking alot lately and causing pain in my lower arm. I'm told it's because of skin thickening in my hand. Only diagnosed in July. Has anyone else had this experience?
Pink07
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Base cell carcinoma
I have a small base cell carcinoma. The dermatologist had prescribed a cream which by all accounts sounds like 6 weeks of sore inflamed skin ( it’s on my face between my eyes ) . I have private health care and I’m wondering if it would be better to have Mohs surgery instead. Any advice gratefully received
I have a small base cell carcinoma. The dermatologist had prescribed a cream which by all accounts sounds like 6 weeks of sore inflamed skin ( it’s on my face between my eyes ) . I have private health care and I’m wondering if it would be better to have Mohs surgery instead. Any advice gratefully received
Chungy
in
Thyroid UK
2 years ago
Test result help
I've had intrinsic factor levels checked and the results were 1.0 U/MI what dies this mean....my b12 was 814 and haematocrit lower than usual, I've been getting reoccurring anemia for 2 years now and having a lot of symptoms of b12 deficiency despite having a higher level. But intrinsic factor has me
I've had intrinsic factor levels checked and the results were 1.0 U/MI what dies this mean....my b12 was 814 and haematocrit lower than usual, I've been getting reoccurring anemia for 2 years now and having a lot of symptoms of b12 deficiency despite having a higher level. But intrinsic factor has me
Jaye75
in
Pernicious Anaemia Society
3 years ago
Prognosis
Hello, I had pernicious anemia about two years ago and it was corrected with injections. Intrinsic factor test was negative. However, with the time I needed injections again. I read in the internet that pernicious anemia is caused by autoimmune gastritis and that this gastritis may lead to cancer. I
Hello, I had pernicious anemia about two years ago and it was corrected with injections. Intrinsic factor test was negative. However, with the time I needed injections again. I read in the internet that pernicious anemia is caused by autoimmune gastritis and that this gastritis may lead to cancer. I
LarissaGishar
in
Pernicious Anaemia Society
2 years ago
Treatment
Recently diagnosed. My GP doctor suggested injection of 1000mcg once a month. But I’ve read it should be more like daily or at least weekly. He plans to use cyanocobalamin, but I’ve read that methylcobalamin is the better. What is the consensus for dosage and either methyl or cyano?
Recently diagnosed. My GP doctor suggested injection of 1000mcg once a month. But I’ve read it should be more like daily or at least weekly. He plans to use cyanocobalamin, but I’ve read that methylcobalamin is the better. What is the consensus for dosage and either methyl or cyano?
PA1920
in
Pernicious Anaemia Society
3 years ago
Did anyone had long lasting effects from an EMG/NCS?
Mine was absolutely awfull. Electrical shocks felt like I was getting electrocuted. I’m on the small side 52 kg ( 114 pounds) and 1m59 (5,2 feet) and my guess is that the doctor used too high of a voltage. The doctor had problems with the machine and was very frustrated and in a bad mood. He kept zapping
Mine was absolutely awfull. Electrical shocks felt like I was getting electrocuted. I’m on the small side 52 kg ( 114 pounds) and 1m59 (5,2 feet) and my guess is that the doctor used too high of a voltage. The doctor had problems with the machine and was very frustrated and in a bad mood. He kept zapping
Tess2222
in
Pernicious Anaemia Society
3 years ago
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